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Research that Makes a Difference for Individuals with Autism Spectrum Disorders
August 2018 Research News & Updates
Dear ARI subscriber,
I hope you and your family are enjoying the summer - it's been a busy season for all of us at ARI with exciting new projects underway, internships wrapping up, continuing education filming and preparation for the busy fall months that are almost upon us. 
I am pleased to share that a new study validating the Autism Research Evaluation Checklist (ATEC) appears this month in the Journal of Autism and Developmental Disorders - read online
If you are gearing up for the school year and need information about strategies and advice for successful collaboration with educators, be sure to check out our webinar archives for expert insight and support. Past talks are online here 

Stephen M. Edelson, Ph.D.
Executive Director, Autism Research Institute
Autism Research News & Updates
Eye movements offer clues about symptoms in autism

The eye movements of individuals with autism spectrum disorders (ASD) may offer insight into their symptoms, a preliminary study suggests.
ASD and Ketogenic, GFCF diets

Both a modified Atkins diet and a gluten-free, casein-free diet appear to be valuable interventions for young children with autism spectrum disorders (ASD), a new study by researchers in Egypt concludes.

People with ASD less surprised by the unexpected

Individuals with autism spectrum disorders (ASD) may overestimate the volatility of the world around them, a new study suggests.
Some of the research articles above also appear in a recent issue of ARI's Autism Research Review International newsletter.  
ARI News
Journal publishes new study validating the ATEC 
Longitudinal Epidemiological Study of Autism Subgroups Using Autism Treatment E
valuation Checklist (ATEC) Score

The results of the subgroup analyses of an observational cohort of children whose parents completed the Autism Treatment Evaluation Checklist (ATEC) over a period of several years. A linear mixed effects model was used to evaluate longitudinal changes in ATEC scores within different patient subgroups. 
Thank You ARI Summer Interns 

Interns can make a big difference for non-profits, and all of us at ARI are grateful to Sawyer School of Business students at Suffolk University for supporting our work. Seminar projects presented during the university's 2018 "Consumer Insights & Decision-making" class led to summer internships for two students - Nicole Cacchiotti and Deveney Melanson (pictured). All of us at ARI extend our deepest gratitude to these energetic, talented professionals.

Annual Report: Learn about our work 

The past couple of years have been game-changing for ARI.  Learn about our efforts to look for common ground for collaboration and accelerate progress in autism research and education. We understand what it means to be different,
because we have always been unique. Learn all about where your support has taken us.
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ARI webinars are made possible through generous donor support, including a grant from Local 25 Boston Teamsters
Upcoming webinar: 18 is Coming: Considerations for Parents and Caregivers as Your Child Approaches Adulthood

Presented by Claire Schutte, Psy-D, BCBA-D and Laura Hewitson, PhD
This webinar is presented in partnership with the Johnson Center for Child Health and Development
Upcoming webinar: Overview: Neuropathology of autism and related conditions
Presented by Dr. Emily Casanova. Dr. Casanova's research background is in embryology, genetics, neuropathology, and bioinformatics, with particular focus on neurodevelopmental conditions and a strong emphasis on autism. 

This webinar is made possible in part by a generous grant from Local 25, Boston Teamsters.
Complimentary Continuing Education
CME Webcasts: Anxiety, Immunological Issues - New Talks Set for Later in 2018

The health of children and adults with autism can be improved by clinicians knowledgeable about the medical etiologies associated with this complex disorder. Watch for new talks later this year on psychopharmacology and genetic factors in ASD. 
CME Webcasts - Part 1 - extended Metabolic and gastrointestinal   View & print flyer  
Watch Part 2 Archives   Sleep issues, tips for compassionate care featuring Dr. Temple Grandin and more Embed and Share  
Immunological Issues and Anxiety
 Translations  Portuguese Certificados gratuitos  
Opportunities to Participate in Research
Microbiota Transplant Therapy for Adults with Autism 
To study a new, investigational treatment to reduce gut and stomach problems in adults with autism.  
For additional information, please visit the research study website 
The UCSD Newborn Screening Autism Risk Study
Researchers at the University of California, San Diego are seeking participants born in California, currently aged 3-6 with and without autism.
"Can newborn screening (NBS) results be used to predict the future risk of ASD before the first symptoms appear?" This is the question we will try to answer in this study. Your participation will allow us to go back in time, to analyze the results of your child's California State NBS tests that were performed at birth. No new samples are required.
For additional information, please visit the research study website or contact the Naviaux Lab at [email protected] or call 619-884-8021.
Siblings needed for research study: Why are boys more likely to have an autism spectrum disorder?
Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are investigating whether the reason why boys are more affected than girls is related to differences in intestinal bacteria.  
We are seeking families to participate in this study who have boy and girl siblings with autism.  These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken.
For additional information, please contact Harland Winter, MD at [email protected] or call 617-724-2004.
Resiliency Program for Parents of Children with ASD
Massachusetts General Hospital's Parental Stress Study is offering a video-conferencing program to teach resiliency to parents who have children with Autism Spectrum Disorders. The program will be 8 weeks long, and meet once a week for 1.5 hours. Please contact the Study investigators if you have any questions.
Experiences of Children and Teens with ASD 
This is a study that will compare how children ages 11-18 with and without autism experience the world around them. 
Parent-Training Program Study
Dr. Lauren Moskowitz, a frequent ARI webinar presenter on challenging behaviors and anxiety, is seeking participants in a research study on the effectiveness of a group parent-training program for parents of children with autism spectrum disorder (ASD) and other developmental disabilities (DD). Parents in the New York City or Long Island area are invited to participate.
Inflammatory Subtype: Biomarkers 
Dr. Harumi Jyonouchi is conducting research to characterize a previously unidentified inflammatory subtype of autism to improve autism treatment options. Individuals aged 1-30 years with autism and also typically developing individuals are invited to participate

Contact the Study Investigators
Adults: Survey takers needed
If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.

Learn More and take the survey
Treatment-Effectiveness Survey
Researchers at Arizona State University are conducting a survey to evaluate the effectiveness of treatments for autism, including medications, diets, therapies, and education. The investigators hope to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.).  Survey results will be posted online for families and clinicians, and published in a scientific journal.

Share your experience - take the survey
Making a Difference in 2018

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