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Research that Makes a Difference for Individuals with Autism Spectrum Disorders
May 2018 Research News & Updates
Dear ARI subscriber,

As many of you know, last month the Center for Disease Control (CDC) published new prevalence rate numbers in which 1 in 59 children in the U.S. are diagnosed with autism. Not surprisingly, the same explanations were raised as in the past; that is, the increase is due to better awareness and/or a true increase in autism. Many will agree that it's a combination of the two; but the bottom line is that autism is very prevalent worldwide. It is time for both the public and private sectors to provide appropriate resources to better understand autism and provide adequate support to those on the spectrum and their families.

ARI's staff and I continue to work tirelessly to establish and maintain ARI's initiatives and programs. We conduct and support cutting-edge research, communicate daily with researchers and other non-profits worldwide, and disseminate relevant information to the autism and medical communities as well as the public.   

Last month ARI held its 24th annual think tank in which researchers and experienced clinicians met for three days to discuss numerous issues related to physical health and well-being.  I also presented the keynote address at the sixth annual international conference in Moscow, Russia. The conference was attended by families, professionals, and government officials throughout eastern Europe.

For those in Poland, Jessica Kingsley Press recently published a Polish translation of the book, Self-Injurious Behavior in Autism (Zachowania Autoagresywne w Autyzmie), edited by Jane Johnson and me.  

The terms of two of ARI's Board members recently expired. I would very much like to thank Jane Johnson, Kim Taylor, and Dr. Paul Hardy for their hard work and dedication to ARI as well as the autism community.

Note: Summer is just around the corner!

Stephen M. Edelson, Ph.D.
Executive Director, Autism Research Institute
Researchers Invited to Apply
Research professionals: ARI research grant application online
The Autism Research Institute conducts, sponsors, and supports research on the underlying causes of and treatments for Autism Spectrum Disorder. Our grant application is now online and we are currently accepting applications from qualified research professionals. 
Learn More
Autism Research News & Updates
Comprehensive Nutritional and Dietary Intervention for Autism Spectrum Disorder-A Randomized, Controlled 12-Month Trial

New research, partially funded by ARI showed positive results suggesting that a comprehensive nutritional and dietary intervention is effective at improving nutritional status, non-verbal IQ, autism symptoms, and other symptoms in most individuals with ASD. Parents reported that the vitamin/mineral supplements, essential fatty acids, and HGCSF diet were the most beneficial.
Cortical responses to social stimuli differ in infants with later ASD

Children who later develop autism spectrum disorders (ASD) exhibit unusual cortical reactions to social stimuli early in infancy, a new study reports.
Maternal infection can alter offspring's sociability

More evidence that maternal infections during pregnancy can alter the behavior of offspring comes from a recent study of pigs.
New research supports "magic world" hypothesis of autism
A new study presented at the 2017 Society for Neuroscience annual meeting supports the theory that some of autism's core features stem from an inability to detect patterns and predict the future. Individuals with such a deficit may find social situations challenging and be hypersensitive to sensory stimuli.
Some of the research articles above also appear in a recent issue of ARI's Autism Research Review International newsletter.  
 Free Webinars This Month
Watch ARI past and future webinars online for free
Emotional Regulation and ASD Carla Mazefsky, Ph.D.
Watch now: Emotional Regulation & ASD Carla Mazefsky, Ph.D.

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ARI webinars are made possible through generous donor support including a grant from Local 25 Boston Teamsters
Upcoming webinar: May 21st - Benefits, Accommodations, & Advocacy in Employment for Individuals with Autism

Presented by Presented by Amanda Tami, LPC, BCBA and Claire Schutte, Psy-D, BCBA-D 
The Johnson Center for Child Health & Development

This webinar is presented in partnership with the Johnson Center for Child Health and Development.
Upcoming webinar: May 23rd - Evidence Supporting a Nutritional Approach for ASD and Comorbid Conditions
nutrition webinar
Learn about evidence-based nutritional support for ASD patients as well as comorbid diagnoses including Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and postural tachycardia syndrome (POTS). Presented by Vicki Kobliner MS RDN
Complimentary Continuing Education
CME Webcasts: Anxiety, Immunological Issues in ASD

The health of children and adults with autism can be improved by clinicians knowledgeable about the medical etiologies associated with this complex disorder.
CME Webcasts - Part 1 - extended Metabolic and gastrointestinal   View & print flyer  
Watch Part 2 Archives   Sleep issues, tips for compassionate care featuring Dr. Temple Grandin and more Embed and Share  
Immunological Issues and Anxiety
 Translations  Portuguese Certificados gratuitos  
Opportunities to Participate in Research
The UCSD Newborn Screening Autism Risk Study
Researchers at the University of California, San Diego are seeking participants born in California, currently aged 3-6 with and without autism.
"Can newborn screening (NBS) results be used to predict the future risk of ASD before the first symptoms appear?" This is the question we will try to answer in this study. Your participation will allow us to go back in time, to analyze the results of your child's California State NBS tests that were performed at birth. No new samples are required.
For additional information, please visit the research study website or contact the Naviaux Lab at [email protected] or call 619-884-8021.
Siblings needed for research study: Why are boys more likely to have an autism spectrum disorder?
Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are investigating whether the reason why boys are more affected than girls is related to differences in intestinal bacteria.  
We are seeking families to participate in this study who have boy and girl siblings with autism.  These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken.
For additional information, please contact Harland Winter, MD at [email protected] or call 617-724-2004.
Survey takers needed: Autism & Ehlers-Danlos/Joint Hypermobility Syndrome
Researchers at the University of South Carolina are interested in learning more about certain medical issues experienced by adults 25 years of age or older with a diagnosis of ASD and/or EDS/JHS. The online survey takes 10-15 minutes to complete.   
Resiliency Program for Parents of Children with ASD
Massachusetts General Hospital's Parental Stress Study is offering a video-conferencing program to teach resiliency to parents who have children with Autism Spectrum Disorders. The program will be 8 weeks long, and meet once a week for 1.5 hours. Please contact the Study investigators if you have any questions.
Experiences of Children and Teens with ASD 
This is a study that will compare how children ages 11-18 with and without autism experience the world around them. 
Parent-Training Program Study
Dr. Lauren Moskowitz, a frequent ARI webinar presenter on challenging behaviors and anxiety, is seeking participants in a research study on the effectiveness of a group parent-training program for parents of children with autism spectrum disorder (ASD) and other developmental disabilities (DD). Parents in the New York City or Long Island area are invited to participate.
Inflammatory Subtype: Biomarkers 
Dr. Harumi Jyonouchi is conducting research to characterize a previously unidentified inflammatory subtype of autism to improve autism treatment options. Individuals aged 1-30 years with autism and also typically developing individuals are invited to participate

Contact the Study Investigators
Adults: Survey takers needed
If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.

Learn More and take the survey
Treatment-Effectiveness Survey
Researchers at Arizona State University are conducting a survey to evaluate the effectiveness of treatments for autism, including medications, diets, therapies, and education. The investigators hope to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.).  Survey results will be posted online for families and clinicians, and published in a scientific journal.

Share your experience - take the survey
Making a Difference in 2018

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