February 2016 


In This Issue
Register for Free Self-Injury Webinar
Autism.Jobs provides employment resources
New Survey: Seniors with ASD
New Study Examines Vitamin D Use and ASD Recurrence in Siblings
Complimentary CME in Joint Providership with Cleveland Clinic
Watch Free Webinar Recordings
ARI's Scientific Advisory Board
Join Our Mailing List
Free Webinar Feb 18th:  Navigating Support in Higher Education for Students with ASD*
Dr. Claire Schutte of The Johnson Center for Child Health and Human Development will review support and resources for students with autism and related developmental disorders as they enter into higher education. This will include how to find the right "fit" when looking at programs and schools, a review of typical sources of support provided by colleges, as well as private sources of support. 

Presented in partnership with the Johnson Center for Child Health and Development
Printable Flyer: CME for Medical Professionals

This activity - offered in joint providership by Cleveland Clinic and ARI - provides expert insight about behavioral improvement that can be achieved when underlying comorbid medical and neurological issues associated with ASD are addressed.

Print flyer (.pdf)

Survey Takers Needed for Study On Healthcare Experiences for People with ASD and Practitioners 
The Johnson Center for Child Health and Development is conducting some surveys for practitioners, parents and individuals on the spectrum.  Click the titles below to participate.

Survey for Healthcare Providers: The goal of this survey is to gain better understanding of the experiences, knowledge, supports, and challenges that providers may encounter when supporting patients with autism. This information will allow us to provide more accurate and relevant training and support materials to healthcare providers.
Survey for Individuals with ASD: This survey has been designed to learn about the healthcare experiences of people with an autism diagnosis. For healthcare providers and services to improve, it is important to hear the experiences of  patients and, if applicable, their caregivers. The information provided here will help inform trainings and materials provided to healthcare professionals so that the experience of the patient is the top priority.
Caregiver Survey: This survey has been designed to learn about the healthcare experiences of people with an autism diagnosis. For healthcare providers and services to improve, it is important to hear the thoughts of their caregivers. The information provided here will help inform training and materials provided to healthcare professionals so that the perspective and experience of the patient is the top priority.

Gift Idea:
50th Anniversary Updated Edition of Bernard Rimland's Infantile Autism
With updates from some of the best-known names in the autism field, Bernard Rimland's seminal work on autism theory is now available for a new generation of readers in this anniversary edition of Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Development.

"Dr. Rimland is to be commended for presenting the first evidence that autism was a biological condition. When his book was published, he was a lone visionary."
- from the foreword by Temple Grandin, Ph.D.
Free Support Videos: Blood Draws, Easing Anxiety 

Medical visits can be stressful for anyone. Individuals with autism often face extra challenges during procedures like physical examinations and blood draws due to difficulty communicating about the symptoms they are experiencing and the sensory issues that can occur in the clinical setting. Print and share the video series flyer.   


The fear and anxiety felt during medical procedures by those with autism can also be stressful for caregivers and medical professionals administering treatment. This video series was developed by treatment professionals at the Johnson Center for Child Health and Development.  


Watch and share these brief helpful videos to prepare for medical visits. 


Social Story: Today I Am Having a Blood Draw
Social Story: Today I Am Having a Blood Draw


Caregiver Strategies: Positioning for Comfort
Caregiver Strategies: Positioning for Comfort
Easing Anxiety: Medical Play
Easing Anxiety: Medical Play


AutismJobs for Job Seekers, Families and Caregivers, Job Coaches and Employers 


Discover the advantages of hiring individuals with autism. Access practical information that helps candidates become "job ready" and helps employers create autism-friendly workplaces. This database is a searchable collection of autism employment resources with a wealth of practical advice. It includes links to a variety of resources including articles, videos, books and more. Guides highlight key steps in the employment process.  We hope you'll find this database helpful in matching job seekers and employers in ways that reward both. Learn more and visit Autism Jobs 

Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
Clinical Research in ASD
In collaboration with the
Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.

We know you'll be hearing from many worthy charities launching year-end giving campaigns in the weeks to come, and we hope you'll include ARI on your list.  As part of our commitment to following the science wherever it leads, ARI does not seek or accept sponsorships or donations from special-interest groups, insurance companies, pharmaceutical companies or the government.

Ready to support ARI's research that makes a difference in 2016?
Quick Links
Dear ARI Subscriber,  

January came and went within a blink of an eye.  I hope you and your family have settled down into the new year (I still continue to type/write 2015).
We recently went "live" with a new survey focusing on seniors with autism. We are conducting this survey with Dr. Margaret Bauman at Boston University School of Medicine. As you can probably guess, there is very little information with regard to the lives and needs of adults with ASD, most especially those who have entered their senior years. It is our hope that the information obtained from this project will provide needed information that can be used to inform the community as well as government and social agencies.

If you or somebody in your care is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online survey form at: www.ASDSeniorSurvey.com

And finally, we recently finished editing a book on understanding and treating self-injurious behavior. The book will be published by Jessica Kingsley Publishers. We will announce the publication of the book as soon as it is available to order.

Steve Edelson, Ph.D.

Director, Autism Research Institute 

Tissue is Needed to Find Answers: Families Urged to Register The Individuals in Their Care
Brain and tissue banks serve the critical purpose of collecting, preserving and distributing tissue to qualified scientific investigators who are dedicated to the improved understanding of autism spectrum disorders and the development of effective treatments.

Donated tissue may provide key information necessary to help the thousands of individuals with autism spectrum disorders.

Tissue donation is accepted by most major religions.  All costs incurred by the donation are covered by the tissue bank. The procedure to recover tissue does not interfere with a traditional funeral service.

To register contact the University of Maryland Brain and Tissue Bank - sponsored by the National Institutes of Health and ARI or Autism BrainNet sponsored by SFARI and Autism Speaks:

Autism BrainNet
Toll-free: (877) 333-0999
Email Autism BrainNet
Visit the website
University of Maryland
Toll free: 800-847-1539
Visit the website






Adults with ASD: Survey Takers Needed

If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.

We invite you to complete the survey on quality of life issues associated with senior adults on the autism spectrum. We hope the results from this survey will provide much insight about the needs and challenges faced by seniors with autism (ages 50 and older) and their support providers.  We anticipate that this study will also inspire others as well as better inform the autism community, government agencies, and other welfare and health-related organizations about such quality of life issues. 
Once the data from this survey are collected and analyzed, we will contact those who completed the questionnaire and send them a summary report of the findings.
New Study: Will vitamin D supplementation during pregnancy and early childhood reduce the recurrence rate of autism in newborn siblings?

Vitamin D deficiency is widespread in the world including the vulnerable group of pregnant women. Vitamin D deficiency during pregnancy is hypothesized to contribute to the cause of autism. Further, it is hypothesized that vitamin D supplementation during pregnancy and early childhood will reduce the recurrence rate of autism in newborn siblings.
To investigate the hypothesis an open label prospective study was performed prescribing vitamin D during pregnancy to mothers of children with autism at a dose of 5000 IU/day. The newborn siblings were at high risk for the recurrence of autism. The newborn infants were also prescribed vitamin D, 1000 IU/day to their third birthday. The newborn siblings were followed for three years and during that time, were assessed for autism on two separate occasions: at 18 months and 36 months of age. The results were compared to the reported recurrence rates in siblings of autistic children in the literature.

ARI helped fund this study. Read more


View the Autism Spectrum Disorders: Research and Medical Treatment Implications webcast series. Learn how behavioral improvement can be achieved when underlying comorbid medical and neurological issues associated with autism spectrum disorders are addressed.     


Many individuals with autism experience chronic physical discomfort, yet lack the ability to describe their medical problems - particularly in clinical settings. Clinicians who have the ability to identify symptoms and communicate with patients on the autism spectrum can dramatically improve patient care. Participate in the webcast series today!    


Print and share the series flyer 

These activities have been approved for AMA PRA Category 1 Credit™.

Starting February 22nd: AGI's Building Independence for Living Training

Starting soon: the Autistic Global Initiative and the Houlton Institute's online course emphasizing foundational knowledge and competencies needed to support adults with autism in daily living settings.

The program includes lectures, videos, moderated discussions, activities, chat rooms, reading activities and more--all at your own pace.

This course enables learners to engage with autism--either as a supporter or as an individual on the spectrum--in their attempt to gain an appreciation of its complexities using evidence-based tools and practices.  
When? Next session starts Monday, February 22nd

Format: 12-session, instructor-led, self-paced online course with 24/7 technical support.  

  • Program cost is $299
  • Continuing education units (1.2 CEU through Oregon State University): add $45
  • There are a limited number of scholarships available - apply online 
  • Sensory Regulation
  • Communication
  • Citizenship and Community Life
  • Sexuality
  • Safety
  • Health and Wellness
  • Transportation
(855) 468-5866

Did You Know ARI Records and Uploads Webinars?  Watch and Share Free Talks by Top Experts 
We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars, Past Webinars

Medical Issues in Autism, Pt. 3
Elizabeth Mumper, M.D.

Autism & Helminths: The Good, the Bad, and the Rumors
William Parker, PhD

Caring for the Caregiver
Kelly Barnhill, MBA, CN, CCN

Sensory Processing and Autism

Lucy Jane Miller, PhD, OTR

Gestational Influences
Judy Van de Water, PhD

Ask the Nutritionist: Live Q&A with Dietitian
Vicki Kobliner, MS, RDN

Implementing Dairy Free SCD for Individuals with Autism 

P. Ferro, RN & R Prasad

* Presented in partnership with The Johnson Center for Child Health and Development

ARI SAB: Research that Makes a Difference

ARI's Scientific Advisory Board (SAB) provides informed support and direction for our research initiatives. Dr. Stephen M. Edelson leads the group, assembling thought leaders in the medical and scientific community in order to further ARI's ongoing commitment to research that makes a difference.
Learn more

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