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May 2015   

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In This Issue
Register now for Free Webinars: Sulforaphrane Research, Navigating Insurance Coverage and more
Survey: Which Speakers & Topics do You Want to Hear?
Clinicians Warn: MMS Unproven, Potentially Harmful
ASA Keynote to Honor Bernard Rimland
PhotoShare Drawing Winner
Content Collaboration with Cleveland Clinic
New Medical Support Social Story, Videos
ARI's Scientific Advisory Board
Join Our Mailing List
Print and Share: Support Videos for Medical Procedures
  


ARI has published a quarterly newsletter, the Autism Research Review International (ARRI), since 1987. The ARRI has received worldwide praise for its thoroughness and objectivity in reporting the current developments in biomedical and educational research. 

The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week.  A one-year subscription is $20 (U.S. funds; $24 outside the U.S. - includes shipping). Each issue is sent via first class mail.

 

Keep up with the latest research updates - subscribe now through ARI's Autism Store on Amazon.com

 

Visit the ARRI archives to peruse a clickable, alphabetical article index of Autism Research Review International issues 1987 to 2006, Volumes 1 to 20.

 

Visit the online archives & subscribe  

Receive a Certificate of Participation after attending a free online webinar
You can receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Upcoming Free Webinars:
Register and tune in for this webinar Wednesday, May 20 with Tom Malterre, M.S., C.N. 

A Parent's Guide to Navigating Insurance Coverage
 Register and tune in for this webinar Thursday, May 21 with administrative staff from The Johnson Center for Child Health and Development.

See more upcoming talks 

50th Anniversary Updated Edition of Bernard Rimland's Infantile Autism
 
With updates from some of the best-known names in the autism field, Bernard Rimland's seminal work on autism theory is now available for a new generation of readers in this anniversary edition of Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Development.

'Dr. Rimland is to be commended for presenting the first evidence that autism was a biological condition. When his book was published, he was a lone visionary.'
- from the foreword by Temple Grandin, Ph.D.

Bonus: ARI will be giving away one copy of this new book every month to an enews subscriber.  

  


AutismJobs for Job Seekers, Families and Caregivers, Job Coaches and Employers 

 

Discover the advantages of hiring individuals with autism. Access practical information that helps candidates become "job ready" and helps employers create autism-friendly workplaces. This database is a searchable collection of autism employment resources with a wealth of practical advice. It includes links to a variety of resources including articles, videos, books and more. Guides highlight key steps in the employment process.  We hope you'll find this database helpful in matching job seekers and employers in ways that reward both. Learn more and visit Autism Jobs 


Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
Clinical Research in ASD
In collaboration with the
Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
 
   
ARI's Autism Treatment Evaluation Checklist (ATEC); free assessment tool now available in 14 languages:

A major obstacle in autism research has been the lack of a valid means of measuring the effectiveness of various treatments. The Autism Treatment Evaluation Checklist (ATEC) was developed by Bernard Rimland and Stephen M. Edelson of the Autism Research Institute, to fill this need.  

ARI is grateful to the volunteers who have worked to translate the ATEC into these languages.  Do you speak a language that is missing?  Email Melanie@autism.com if you are able to contribute a new language translation to this ongoing project.

Our thanks to friends in Holland for assistance translating the ATEC to Dutch earlier this month.

Tell Us What You'd Like to See - Take our Webinar Series Topic Survey  
At the Autism Research Institute we have focused on providing presentations that are unbiased and broad-reaching, to assist families in making informed treatment decisions. We also strive to provide professional education that gives thoughtful, inquisitive clinicians the means to offer support that is safe and effective.

We are gathering information for the development of several in-depth webinar series. We want to know what topics interest you - please take a moment to share your opinion.

Take our webinar series survey
Charity NavigatorGive now to support our work in 2015

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism. Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.  Ready to give?  

Donate Now 

Raise Awareness & Support Research That Makes a Difference - Order Your Free Kit Now

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

Quick Links
Join Our Mailing List
Dear ARI Subscriber,  

 

Next week I travel to Moscow to co-chair an international conference on autism devoted to a wide range of issues related to autism and autism spectrum disorders. If you live in Europe or would like an adventure, you may want to attend --   learn more online: watch "Autism: Challenges and Solutions" (video) and visit the Moscow conference website. 

 

Given that many of our supporters have been following our work for decades, we continue to receive inquiries about adult services. Although ARI does not provide direct services, we do sponsor an online 12-week Residential/Daily Living Support course and an online employment portal. Later this year we plan to premiere an online employment course as well as a webcast series on recreational activities.

 

We continue to receive rave reviews regarding the republication of Dr. Bernard Rimland's 1964 seminal book, Infantile Autism. The book came out last year, in honor of the 50th anniversary of its first publication, from Jessica Kingsley Press. Besides the original text, the book also includes updates by experts in the field on various topics raised by Dr. Rimland in the book. You can order the book at JKP.com or Amazon.com. This book is well worth reading!

 

I hope all is well,

Steve Edelson, Ph.D.
Director, Autism Research Institute 
Clinicians Warn: Chlorine Dioxide Treatment known as "Miracle Mineral Solution" is Unproven, Potentially "Seriously Damaging"

 

Concerned about reports of negative side effects from a treatment called MMS, ARI reached out to a handful of clinicians and asked them to share their thoughts. Their response:

 

We recognize the urgency parents may feel when confronted with a diagnosis of autism, which may lead them to undertake desperate treatments such as Miracle Mineral Solution (MMS, a.k.a. CD for chlorine dioxide, or ASEA). Any medical treatment that uses "Miracle" on its label raises serious questions of old-fashioned fraud. In particular, suspicions arise with MMS, a product whose primary ingredient has side effects known to be seriously damaging. We recognize that there are off-label treatments with variable amounts of data that parents and practitioners will attempt. As pioneers in the use of a biomedical approach to autism, however, we maintain that it is critical that a treatment be considered reasonably safe before we give it to children. We do not consider MMS to meet these standards, and it violates the principal precept of medical bioethics: "first, do no harm."
 
While many families spend years trying to detoxify their children, MMS introduces a known toxin into their bodies. MMS has properties similar to Clorox® bleach, which can burn the upper digestive tract. The mucous threads that children expel during MMS treatment, which have been touted as worms (though laboratory analysis does not support this claim), are the body's method of protecting itself from induced oxidative stress in the lower digestive tract equivalent to the mid-day sun in its ability to produce severe sunburn.
 
We simply cannot know what, if any, damage may occur in the long term. We have seen severe mineral deficiencies, malabsorption, loss of beneficial flora, and anemia in our patients who have undergone this treatment. The disruption of children's gut epithelium and flora could have unforeseen consequences to their immune systems. At some point later in life, they may be also at higher risk for esophageal or stomach cancers, among other issues.
 
Some parents of sick children report dramatic improvements in stool as well as other symptoms. Does this mean MMS is an effective treatment? Not necessarily. Nature's strong impulse toward healing is stimulated by stress. Fasting, physical exertion to the point of exhaustion, sleep deprivation, torture, and severe physical and emotional trauma muster the resources of the mitochondria, muscles, mind, and soul to rise to the occasion. While any resulting temporary improvements may seem "miraculous," there are safer and lower-risk ways to induce a healing response.
 
Given these issues, we advise against using MMS at this time. We hope parents will remain critical of unsubstantiated claims that children have recovered or greatly improved in the absence of objective proof. We also strongly encourage any parents who choose to administer MMS to their children to report it to their physician so that side effects can be monitored.

Sidney Baker, MD; Nancy O'Hara, MD; Suruchi Chandra, MA; Ali Carine, DO; Dana Laake, RDH, MS, LDN; John Green, MD; Kelly M. Barnhill, MBA, CN, CCN; Maya Shetreat-Klein, MD; Vicki Kobliner MS RDN; and Elizabeth Mumper, MD
ASA Celebrates 50 Years of Advocacy at July Conference - Keynote to Honor Dr. Rimland

 

Mark Rimland, pictured here with his father Dr. Bernard Rimland, will introduce the keynote speakers in honor of his father at this summer's ASA Conference in Denver, CO Friday, July 10th.

This year marks the 50th anniversary of the Autism Society, and their founder, Dr. Bernard Rimland, will be honored in a keynote talk titled Neurophysiology and Sensation in Autism.  The talk, scheduled for Friday morning, July 10, will be presented by Drs. Margaret Bauman and Lucy Jane Miller. 

 

As you may know, in 1964 Dr. Rimland argued that autism was due to a neurological condition rather than a result of parental neglect.

 

Dr. Rimland's son, Mark, and ARI Executive Director, Dr. Steve Edelson, will be on hand to introduce the keynote talk.

 

The Autism Society conference will held on July 8-11 in Denver, Colorado.  

 

Conference registration 

Schedule 

Accommodations   

Drawing Winner: 2015 Autism Research Institute "Story in a Snapshot" PhotoShare  

 

2015 PhotoShare Drawing Winner "Evan"

In 2012, we held a photo contest, and the response was overwhelming. Since then, we've continued to receive photographs to share with the autism community. 

 

Throughout the month of April we received hundreds of beautiful images from families around the world. Our lucky drawing winner of a $100 Amazon.com gift card is "Evan" (pictured, right) - his mom Jennifer Rosenthal submitted this lovely snapshot with the caption "Waiting for the School Bus."   

 

We'll be sharing your photos on Facebook and the ARI website-be sure to like us on Facebook, find us on Google+, or follow us on Twitter or Flipboard for more information and links to come.  

 


 

View the Autism Spectrum Disorders: Research and Medical Treatment Implications webcast series. Learn how behavioral improvement can be achieved when underlying comorbid medical and neurological issues associated with autism spectrum disorders are addressed.     

 

Many individuals with autism experience chronic physical discomfort, yet lack the ability to describe their medical problems - particularly in clinical settings. Clinicians who have the ability to identify symptoms and communicate with patients on the autism spectrum can dramatically improve patient care. Participate in the webcast series today!    

 

Print and share the series flyer 


These activities have been approved for AMA PRA Category 1 Credit™.

Medical visits can be stressful for anyone. Individuals with autism often face extra challenges during procedures like physical examinations and blood draws due to difficulty communicating about the symptoms they are experiencing and sensory issues that can occur in the clinical setting. Print and share the video series flyer.   

 

The fear and anxiety felt during medical procedures by those with autism can also be stressful for caregivers and medical professionals administering treatment. This video series was developed by treatment professionals at the Johnson Center for Child Health and Development.  

 

Watch and share these brief helpful videos to prepare for medical visits. 

 

Social Story: Today I Am Having a Blood Draw
Social Story: Today I Am Having a Blood Draw

 

Caregiver Strategies: Positioning for Comfort
Caregiver Strategies: Positioning for Comfort
 
Easing Anxiety: Medical Play
Easing Anxiety: Medical Play

Did You Know ARI Records and Uploads Webinars?  Watch and Share These Informative Talks by Top Experts 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars, Past Webinars


TITLE
PRESENTER
WATCH NOW
Microbiome Research in Autism Spectrum Disorders

William Parker, Ph.D.
Optimistic Parenting: Hope and Help for Individuals with Challenging Behavior
V. Mark Durand, Ph.D.

Ask the Nutritionist - Live Q&A

Environmental Toxins & Autism Spectrum Disorder
Healthy Pregnancy Preconception thru Post Natal Strategies
Dana Laake, RDH, MS, LDN
Facilitating Community Think Tanks for Teams on the Autism Spectrum
Valerie Paradiz, PhD, & Chloe Rothschild


* Presented in partnership with The Johnson Center for Child Health and Development
ARI's Scientific Advisory Board
ARI's Scientific Advisory Board (SAB) provides informed support and direction for our research initiatives. Dr. Stephen M. Edelson leads the group, assembling thought leaders in the medical and scientific community in order to further ARI's ongoing commitment to research that makes a difference. Learn more about the research we fund.

2015 ARI SAB members include:


Jim Adams, Ph.D.
Arizona State University

Harumi Jyonouchi, M.D. 

St. Peter's University Hospital

New Bruiswick, NJ 

Paul Ashwood, Ph.D. 

University of California, Davis

 

Rafail Kushak, Sc.D., Ph.D. 

Massachusetts General Hospital

 

Kelly Barnhill, MBA, CN, CCN

Johnson Center for Child Health & Development
Lucy Jane Miller, Ph.D., OTR
Clinical Director, STAR Center

Margaret Bauman, M.D.

Boston University Medical Center
Marvin Natowicz, M.D., Ph.D.
Cleveland Clinic

Manuel Casanova, M.D.   

University of Louisville

 

Robert Naviaux, M.D.
University of California, San Diego
Sydney M. Finegold, MD
University of California, Los Angeles
Andrey Rhetsky, Ph.D.
University of Chicago

V. Mark Durand, Ph.D.   

University of South Florida, St. Petersburg 

 

Judy Van de Water Ph.D.
University of California, Davis
Richard Frye, M.D., Ph.D.
Arkansas Children's Hospital
Harland Winter, M.D.
Massachusetts General Hospital for Children
Paul Hardy, M.D.  
Hardy Healthcare, ARI Board President
Jill Young, Ph.D., BCBA
Therapeutic Pathways
Robert Hendren, D.O. 
UCSF Benoif Children's Hospital
Andy Zimmerman, M.D.
Kennedy Krieger Institute
S. Jill James, Ph.D. 
Arkansas Children's Hospital