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March 2014  

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In This Issue
Biomarker Study Seeks Participants
Remembering Dr. Jaquelyn McCandless
Complete a research survey for a chance to win an IPad
New Videos: Everyday Epigenetics
Gear Up for Your Autism Awareness Month Campaign
Join Our Mailing List
Charity Navigator
Give now to support our work in 2014

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism.    

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

 

Ready to give? Donate Now 
ARI Webinars: Sign Up to Hear Top Experts Online for Free - Ask Your Questions in Real Time

At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can't join us live for the lecture and Q&A on the day a talk occurs, you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz. Check the 2014 webinar schedule  

  

Next Webinar:  

 

Learning Can Be Fun: An Overview of Naturalistic Teaching Methods 
Join us for Regan Fitzgerald, MED, BCBA's talk offering innovative strategies for teaching individuals with ASD. People often believe autism teaching programs are rigid and boring. In fact, when done well these are the last words that should describe a program. Learn more about engaging and interesting teaching methods that can be used to teach a person with ASD almost any skill. Presented in Partnership with The Johnson Center for Child Health and Development.


NIH Autism Spectrum Disorder Research:
Imaging & Biomarker Study Seeks Participants Ages 18-45  

Do we see immune differences in the autistic brain? Research seeks to detect and measure an immune target in the brain. Researchers will compare the brain scans of 18- to 45-year-olds with autism to those without autism.

There is no cost to participate. Compensation is provided for participation. Transportation may be provided. 

 

For information: 

Call: 301-435-8982 (TTY: 1-866-411-1010),

Email:  AutismBrain@mail.nih.gov  

Website: Learn More 

 

Please refer to protocol # 11-M-0118

National Institute of Mental Health, National Institutes of Health, Department of Health & Human Services

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
From the Director

edelson
Dear ARI Subscriber,

For many organizations, including ARI, Autism Awareness month is one of the busiest times of the year. The new prevalence numbers released by the CDC (1 in 68) are disappointing, and there is quite a bit of confusion these days regarding both diagnosis and prevalence. Last week I wrote a brief editorial titled "Diagnosis and Prevalence of Autism -- What a Mess!" You can read the editorial by visiting the www.ClinicalResearchInAutism.com website.

 

I hope you have had a chance to complete the autism subtype survey; the survey has been translated into Spanish, French, and Italian. If we can replicate our previous findings, these results could have an impact on the field regarding both the underlying cause and the most effective interventions for each subtype. Those who complete the survey receive a copy of the results as well as a one-year complimentary subscription to our science newsletter, the Autism Research Review International.

 

And finally, as many of you know, Dr. Jaquelyn McCandless passed away last month. She was a caring and passionate physician who was instrumental in the biomedical movement. Working closely with her husband and daughter, we have established a research fund in her honor. See article below.

 

Stephen Edelson, Ph.D.

Executive Director, Autism Research Institute 

In Remembrance: Dr. Jaquelyn McCandless
Our very dear friend, Jaquelyn McCandless, M.D. passed away earlier this year. She was a colleague and mentor to many people within the Autism Research Institute/Defeat Autism Now! network, as well as a beacon of light to many families worldwide. She participated in our think tanks and was a frequent lecturer at our conferences and clinician seminars. Dr. McCandless' book, Children with Starving Brains, first published in 2002, still provides advice to many. We will all miss her greatly. 

ARI has established a memorial research fund in honor of Dr. McCandless. One-hundred percent of the contributions to the fund will be earmarked for research studying interventions that were pioneered and/or supported by Dr. McCandless. You can make a donation on ARI's secure website by selecting "I want my donation credited to the Jaquelyn McCandless Autism Research Project (JMARP)" (located near the bottom of the webpage).  

 

Donate to the McCandless Research Fund 



Parents & Caregivers Urged to Complete Updated ARI E-2 Survey to Identify Autism Subtypes 
  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.  

 

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com.  

 

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.
In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD.

Once the data has been collected and analyzed, we will send a summary report to all of the participants. If we do replicate our previous findings, we will also inform each participant to which subgroup their son or daughter belongs to.

 

Where: International - this study is open to participants worldwide.   

 

When: Data collection is ongoing, and the next iPad drawing will take place on April 30, 2014. The winner of the drawing will not be announced publicly.

 

Take the Subtype Survey   

 

Missed a Presentation? It's Not Too Late: March
Webinar Recordings Now Online  

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer monthly presentations throughout the year. Upcoming webinars   


TITLE
PRESENTER
WATCH NOW
Ask the Nutritionist*


Kelly Barnhill, MBA, CN, CCN
Everyday Epigenetics
Martha Herbert, M.D., Ph.D.

Influencing Language Development through Exercise
David Geslak, BS, CSCS, ACSM-HFS

* Presented in Partnership with The Johnson Center for Child Health & Development
Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

 

Project Success Stories 

I think it is an excellent idea to raise money for autism research that is not beholden to government, big corporations and pharmaceutical companies, organized medicine, or anyone else, but simply to the people of this country, many of whose families have been affected by autism.  I took these 50 puzzle pieces to the barber shop where I get my haircut and they had them all signed and sold in about two weeks. The owner said, "If you do this again next year, bring us 200 instead of 50." Every customer they asked was willing to contribute.     
Kathleen E.

I am a mother of a 4-year-old boy with autism. This project is such a great idea and we would like to support ARI to help fund research for biomedical treatments through selling puzzle pieces. We believe that autism is treatable and want to help support the cause!     
Parent, Jamaica, IA 

I am the parent of a 14-year-old with autism. I also work at a school where I work with other kids with autism. Their parents and I have been talking and want to do a fundraiser for Autism and we came across yours. We are all looking forward to working with you on this cause. We have two schools and two businesses that are willing to sell them for us. We will work on finding more places. I just received a call from South Lafourch Bank and they are willing to sell them at all five of their branches during the month of April. We are still working on getting the other banks in the area involved.    

Tracy - Larose, LA

I am the mother of a beautiful 3-year-old boy named Nicky who has Autism. I am ready to do anything I can to help. My mother in law works in a Catholic high school of around 400 and almost everyone there knows my little Nick and I don't think I'd be surprised as to the generosity that will be put forth for the cause. Please, if there is anything else I can do that you know of to raise awareness and raise money for the cause let me know! Thank you so much for fighting for my son before he was even born!    

Bloomingdale IL

The reason I got involved with the million puzzle piece fundraiser is because my cousin Aaron is autistic. I'm just trying to help my cousin and the millions of other people and families affected by autism.  
Center Valley, PA

I went to the autism.com website when I was searching for information about autism for my research paper for an English class and happened to come to the article on the Million Puzzle Pieces. I first came in contact with autism when we found that one of my cousins was autistic many years ago. Since then, I've been paying much more attention to it by movies (such as Rain man) and many books. I would like some puzzle pieces that will be available at my high school and other activates I am involved in.     

Marshalltown, IA

I am a president of an education organization here at the University of Wisconsin-Whitewater. In April, my organization as well as 2 other education organizations on campus have an autism awareness benefit, and raise money. I have a lot of friends and family that would support me in raising the money as well as the benefit my organization does. I have been attracted to autism and working with children as well as helping raise money for two years now and would love to continue this journey on finding research!    

Whitewater, WI

I'm a mother of a nine-year-old son who has Autism. I wanted to join the million dollar puzzle project to help raise awareness and money for Autism Research. I'm selling puzzle pieces at my son's school, where I also work as a nurse. I'm displaying the pieces in a local business, my husband's office and my mother's workplace. This is a very small town but I plan to reach as many people as possible. Thanks for letting me be a part of this wonderful project.  
Greensburg, KY

I decided to participate in the Million Dollar Puzzle project to help spread awareness and educate others about autism. I am the mother of a child who has autism, so it is important to me to do whatever I can for the autism community. I am distributing the puzzle pieces through e-mail.  
Wake Forest, NC

I am a special education teacher and was interested in selling the puzzle pieces at our school. We plan on selling these at our school during the month of April as part of our Autism Awareness month. Thank you for your help!   
Potomac, MD

I look forward to receiving the puzzle pieces and getting started with this project. My 5 year-old-daughter, Chely, was diagnosed last year and is such a fixture in my office that she's been kind of adopted by everyone here. Again thanks so much and we look forward to receiving our puzzle pieces.   
Baton Rouge, LA