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July 2014  

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In This Issue
Host a "Trauma Warriors" screening
Study Now Enrolling: Special Diets for Seizures in ASD
Mark Rimland: An Inspiration
Deadline for Final Subtype Survey iPad Drawing is July 30th
Missed a webinar? Watch the free replay online
Join Our Mailing List
Host a screening of AGI's film: "Trauma Warriors"

Last month, ARI's Autistic Global Initiative team premiered the feature film, "Trauma Warriors," at the CU School of Medicine, Denver, in collaboration with JFK Partners.

 

We received a large number of inquiries and regrets from those unable to travel to Colorado to attend.  In response, AGI is now opening up a film-hosting program. The film will not be offered online via YouTube or webinar, but we are happy to offer you and your community hosting options. Learn More.

 

Questions? 

Email:  agi@autism.com 



Study Now Enrolling: Special Diets for Treating Seizures in Autism

Recruiting children (ages 3-11 years) who have Autism, Asperger's, or PDD-NOS and seizures (2 or more per month)

 

Four-month treatment study involves a Gluten-Free, Casein-Free, Modified Atkins Diet (high in protein and healthy fats, and very low in carbohydrates). Each participant will receive a dietary consult and a meeting with a study physician.

 

Optional follow-up 6 months and 12 months after the end of the treatment study.

 

 

For more information, go to www.arkansasautismalliance.org 

   

In Remembrance: Dr. Jaquelyn McCandless

Our very dear friend, Jaquelyn McCandless, M.D. passed away earlier this year. She was a colleague and mentor to many people within the Autism Research Institute network, as well as a beacon of light to many families worldwide. She participated in our think tanks and was a frequent lecturer at our conferences and clinician seminars. Dr. McCandless' book, Children with Starving Brains, first published in 2002, still provides advice to many. We will all miss her greatly. 

 

ARI has established a memorial research fund in honor of Dr. McCandless. One-hundred percent of the contributions to the fund will be earmarked for research studying interventions that were pioneered and/or supported by Dr. McCandless. You can make a donation on ARI's secure website by selecting "I want my donation credited to the Jaquelyn McCandless Autism Research Project (JMARP)" (located near the bottom of the webpage).  

 

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

Charity Navigator
Give now to support our work in 2014

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism. Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

Ready to give? Donate Now 
Dear ARI Subscriber,  
  
Edelson
I would like to thank all of the people who completed our autism subtype survey and adult medical survey. If you have not had a chance, we would appreciate it if you could complete one or both surveys in the near future. We plan to collect data for a few more months.

I will be speaking next month at Prof. Jim Adams' 9th Annual 'Back to School' autism conference set for August 23-24 in the Los Angeles area.  If you plan to attend, please stop by the ARI booth and say "hi."

This year marks the 50th anniversary of Dr. Bernard Rimland's seminal book, Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior.  Among the book's many theses, Dr. Rimland argued for a neurobiological cause of autism as opposed to the commonly held view of a psychodynamic, faulty-parent cause of autism. I recently wrote an editorial about his son, Mark Rimland, who was the inspiration for the bookl. Within a few months, Jessica Kingsley Publishers will reprint the book along with updates from experts in the field.

For those traveling to San Diego for vacation this summer, we are always happy to meet families at our Institute. In addition, the Kensington Gallery, located next door, has many unique and art-related gifts, including paintings, prints, and note cards by Mark Rimland.  Mark is usually painting and greeting visitors at the gallery on Saturday afternoons. 

 

Steve Edelson, Ph.D.
Director, Autism Research Institute 

   

rimlandMark Rimland: An Inspiration to Us All
This year marks the 50th anniversary of Dr. Bernard Rimland's book, Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior. With the publication of this revolutionary book, Dr. Rimland single-handedly transformed the field of autism research and treatment.

Soon after he realized that his son Mark had autism, Dr. Rimland began scouring the research literature to figure out how best to help him. He reviewed the literature in great detail, and soon realized that the entire professional community supported a psychodynamic cause of autism without any scientific evidence. In his book, Dr. Rimland convincingly demonstrated that the published evidence was consistent with an organic, physiological cause.

Note: Jessica Kingsley Publishers will be reprinting a 50th anniversary edition of Dr. Rimland's seminal book this year. Besides the original text, the book will include updates from many of the top experts in the field.

When I travel around the country to attend conferences and meetings, many parents and professionals ask me about Dr. Rimland's son Mark. How old he is, what he does, where he lives, and so on. I feel fortunate to know Mark very well. I met him when I was 19 years of age, and he was 21. Over the years, we have developed a very close friendship. We usually go out for breakfast on Sunday mornings, and we try to get together at least one or two more times during the week.
 
Mark is now 58 years old, and lives with his mother and brother in Kensington, a small district in San Diego. Similar to his father, Mark loves to converse with people, has a great sense of humor, and has many friends in the neighborhood. Mark does not drive a car, but he can take the city bus. He often strolls around his neighborhood to greet people and to get a little sunshine. He likes to visit a local coffee shop in the evenings, and spends time visiting with friends and drinking herbal tea. People in the community often comment that Mark is the unofficial "Mayor of Kensington."

One of Mark's closest friends is Gregory Page,  a popular singer-songwriter in San Diego who also has a strong following in other countries, including Australia and the Netherlands. Internationally acclaimed singer and songwriter Jason Mraz and Jim Croce's son A.J. have produced many of Gregory's albums. Gregory has used Mark's artwork on two of his album covers, and he wrote the cover track about Mark for one of his albums titled "All Make Believe."

 

Mark has a calendar memory, and he sometimes entertains people by telling them what day of the week they were born once they tell him their birth date. He also has an incredible memory for events in his life, often describing minute details and the exact date. He loves listening to music, including songs by the Beatles and the Doors, and enjoys reading books.

 

Mark is an established artist, and his works sell for hundreds or sometimes even thousands of dollars; he started painting at the age of 21. Mark even remembers the date when he started painting-September 15, 1977-since this was a memorable moment in his life. Read More 

Receive a Certificate of Participation after attending a free online webinar
You can now receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Next Webinar - Tuesday, Aug, 12 - includes live Q&A:
"Inclusion - Beyond the Classroom"
When you hear the word inclusion in relation to autism, most often it is referring to classrooms. But what about extracurricular activities, the work place, and other social settings? Learn more about inclusion across the community and ways to foster an inclusive environment for your loved one. Presented by Jeanna Martinez, M.S., CCLS & Nisey Webb, Outreach Coordinator at The Johnson Center for Child Health and Development. REGISTER 

  


Presented in partnership with the Johnson Center for Child Health and Development 

   

Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey will automatically be entered for a chance to win an Apple iPad.

Updated ARI E-2 Survey to Identify Autism Subtypes 
Complete this survey by Midnight
July 30th to qualify for the final iPad Drawing
  

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.  

  

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com.  

  

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.
In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD.

Once the data has been collected and analyzed, we will send a summary report to all of the participants. If we do replicate our previous findings, we will also inform each participant to which subgroup their son or daughter belongs.

 

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing, and the next iPad drawing - for participants who complete the survey by 11:59 p.m. PDT July 30th - will take place on July 31st, 2014. The winner of the drawing will not be announced publicly.

 

TAKE THE SUBTYPE SURVEY   

 

 

 Adult Medical Survey  

Complete this survey by Midnight
August 31 to qualify for the next iPad Drawing

If you have a son or daughter age 18 years or older, or if you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.

  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director,  and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.

  

What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.

  

Purpose: The purpose of this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.


Compensation: Participants will be entered in a contest to win an Apple iPad. The next drawing - for participants who complete the survey by 11:59 p.m. PDT Aug. 31 - will be held on Sept. 1, 2014. Note: one entry per individual with ASD.

  

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing. 

  

TAKE ADULT MEDICAL SURVEY

 
Missed a Presentation? It's Not Too Late: Recent Webinar Recordings Now Online  

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars   


TITLE
PRESENTER
WATCH NOW
Positive Reinforcement - It's That Important*
Regan Roth-Fitzgerald, MEd, BCBA
Positive Reinforcement: It's That Important | Regan Fitzgerald, MED, BCBA
Addressing Anxiety and OCD in ASD
Suruchi Chandra, MD

Neuroinflammation in ASD
Andrew Zimmerman, MD

Housing and Programs for Adults with ASD*
Claire Schutte, Psy-D, BCBA

* Presented in Partnership with The Johnson Center for Child Health & Development