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August/September 2014  

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In This Issue
Help AGI "Beta Test" its new app and apply for a free iPad
Support ARI with a Puzzle Piece Campaign
Register for free Webinars: Visit the Online Learning Hub
Check us out on 'Flipboard'
Deadline for Next Adult Medical Survey Drawing is This Sunday
Register now: Free Sleep Webinar set for Oct. 1
Time to Evaluate: ATEC
Webinars for Back-to-School, Transition and More
Join Our Mailing List
 

Help AGI "Beta Test" its New Support Course App
Free iPads are first-come/ first-served for 70 registrants 

 

Help ARI's Autistic Global Initiative team beta test its new app for direct support providers and receive a free iPad. The app provides a mobile method for support teams and single users to develop and implement individualized supports for a person with autism.

The Autistic Global Initiative will distribute 70 free iPads to registered participants in the September 15 online course for direct support providers to adults with autism. Learn more

iPads are first come, first served. Registration for the course: $300.
The iPad is free.  
 
Please contact: ana@HoultonInstitute.com if you have any questions. 



Study Now Enrolling: Special Diets for Treating Seizures in Autism

Recruiting children (ages 3-11 years) who have Autism, Asperger's, or PDD-NOS and seizures (2 or more per month)

 

Four-month treatment study involves a Gluten-Free, Casein-Free, Modified Atkins Diet (high in protein and healthy fats, and very low in carbohydrates). Each participant will receive a dietary consult and a meeting with a study physician.

 

Optional follow-up 6 months and 12 months after the end of the treatment study.

 

 

Learn more/view the the application (.pdf

Host a screening of AGI's film: "Trauma Warriors"

Recently, ARI's Autistic Global Initiative team premiered the feature film "Trauma Warriors" at the CU School of Medicine, Denver, in collaboration with JFK Partners.

  

We received a large number of inquiries and regrets from those unable to travel to Colorado to attend. In response, AGI is now opening up a film-hosting program. The film will not be offered online via YouTube or webinar, but we are happy to offer you and your community hosting options. Learn More.

  

Questions? 

Email:  agi@autism.com 

Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

Give now to support our work in 2014

Charity NavigatorAdvancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism. Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.  Ready to give? Donate Now 

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up

In Remembrance: Dr. Jaquelyn McCandless

Our very dear friend, Jaquelyn McCandless, M.D. passed away earlier this year. She was a colleague and mentor to many people within the Autism Research Institute network, as well as a beacon of light to many families worldwide. She participated in our think tanks and was a frequent lecturer at our conferences and clinician seminars. Dr. McCandless' book, Children with Starving Brains, first published in 2002, still provides advice to many. We will all miss her greatly. 

 

ARI has established a memorial research fund in honor of Dr. McCandless. One-hundred percent of the contributions to the fund will be earmarked for research studying interventions that were pioneered and/or supported by Dr. McCandless. You can make a donation on ARI's secure website by selecting "I want my donation credited to the Jaquelyn McCandless Autism Research Project (JMARP)" (located near the bottom of the webpage).  

 

Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
Dear ARI Subscriber,  
  
Edelson

For many of our subscribers, school is right around the corner or has already begun. We wish all of you a successful and low-stress 2014-2015 academic year.

 

We are about to analyze the data for ARI's subtype survey. If you have not done so yet, or you have not finished completing the  survey, we would appreciate it if you could complete it by the end of next month (September). Those who complete the survey will receive a one-year complimentary subscription to our science newsletter, the
In addition, if we can classify autism into subgroups, you will be informed of your son's/daughter's results.

And finally, if you live in the San Diego area or plan to visit in the future, please stop by our art gallery. Proceeds from the sales benefit autism research. The web address is: www.KensingtonGallery.org 

 

Steve Edelson, Ph.D.
Director, Autism Research Institute 

Flipboard Fans: Keep up with ARI on Your Personalized Page
Flipboard is an app that aggregates news, social media, feeds, and other content and presents it in a personalized magazine-like format. It is available for iPad, iPhone, Android, and Kindle Fire.

You can visit flipboard.com for more information on the features and functionality of the Flipboard app. 
Learn More and Visit ARI's page 
 
Dr. Paul Hardy to speak on Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus next month

hardy
ARI Board President Paul Hardy, M.D.
Next month ARI is co-sponsoring a presentation by Board President Paul Hardy, M.D. at a New Hampshire educational seminar featuring experts on Pediatric Autoimmune Neuropsychiatric Disorders Associated with 
Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric 
Syndrome (PANS). The disorders most commonly affects a subset of children and adolescents and are characterized by an encephalitic-like onset of neuropsychiatric symptoms following an infection such as Strep, Pneumonia, or Mononucleosis. Dr. Hardy's talk will address the challenges of evaluating and treating the disease.

DATE: 1-6 p.m., Saturday, Oct. 11
LOCATION: SERESC, Bedford, NH - Directions
COST: $45
CO-SPEAKERS INCLUDE:
Rosario Trifiletti, M.D.; Geordie Thomson, M.D.; Peggy Chapman, CNS, BC
  

Printable flyer 

Online Registration

 

For more information regarding this upcoming event, please contact: Robin McCune at enviromutt@gmail.com

Our Work: ARI-Funded Research Studies

The Autism Research Institute (ARI) conducts, sponsors, and supports research on the underlying causes of and treatments for Autism Spectrum Disorder (ASD).  In order to provide parents and professionals with an independent, unbiased assessment of causal and treatment-efficacy issues, ARI seeks no financial support from government agencies or drug manufacturers.

We therefore rely on the generosity of donors to continue to advance autism research.  We are dedicated to 'Research that makes a difference!' with a sharp focus on what might be beneficial for people with ASDs here and now.

 

Learn more: 

ARI Funded Research Studies (2012-2013) 

 
Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey will automatically be entered for a chance to win an Apple iPad.
 

 Adult Medical Survey  

Complete this survey by October 31 to qualify for the final Adult Survey iPad Drawing

If you have a son or daughter age 18 years or older, or if you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.

  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.

  

What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.

  

Purpose: The purpose of this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.


Compensation: Participants will be entered in a contest to win an Apple iPad. The next drawing - for participants who complete the survey by 11:59 p.m. PDT Oct. 31 - will be held on Nov. 1, 2014. Note: one entry per individual with ASD.

  

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing. 

  

TAKE ADULT MEDICAL SURVEY

 
Receive a Certificate of Participation after attending a free online webinar
You can now receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Tune in October 1st - includes live Q&A:
Sleep Issues & ASD 
Disordered sleep is frequently associated with behavior problems and inattention in typically developing and developmentally disabled children. Sleep problems in ASD are correlated with increased maternal stress and parental sleep disruption. Repetitive behaviors and insistence on sameness may also be increased with poor sleep patterns.

Gail Williams, M.D. is an Associate Professor for the University of Louisville Department of Pediatrics and Clinical Co-Director of the University of Louisville Autism Center. She is a board certified developmental/behavioral pediatrician and works in a multidisciplinary setting seeing children of all ages with such concerns as autism, learning disabilities, attention deficit hyperactivity disorder, Tourette syndrome, and mental retardation. Dr. Williams is also the director of the STAR (Systematic Treatment of Autism and Related Disorders) biomedical clinic. While her primary responsibilities are clinical, she also engages in clinical research and has authored several articles on autism and other developmental topics.
REGISTER 

  

ARI's ATEC: A Useful Tool To Track Individual Treatments & Patient Progress Over Time
ARI's Autism Treatment Evaluation Checklist (ATEC) is a one-page form designed to be completed by parents, teachers, or caretakers. It consists of 4 subtests:
  • Speech/Language Communication (14 items)
  • Sociability (20 items)
  • Sensory/ Cognitive Awareness
  • Health/Physical/Behavior 
Unlike most of the scales, it is not copyrighted and may be used free of charge by any researcher. Users of the ATEC may have it scored free by entering the responses via computer to the ATEC form on the website for immediate and free-of-cost scoring. ATEC forms are only accepted online. It is available in nearly a dozen languages.

Learn More
Ready for Another School Year?  From Special Diets at School to Transition, Watch Informative Webinars by Top Experts 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars, Past Webinars


TITLE
PRESENTER
WATCH NOW
Q&A: Parents, Clinicians & Educators as Collaborators
Kelly Barnhill, CCN, CN, Ali Carine, MD, and Christine Muczyk

Medical Issues and the Educator's Role
Ali Carine, MD
 
Family-Centered Transition
D. Hagner, Ph.D. & A. Kurtz M.Ed.

Education in Schools

  

Ron Leaf, PhD

What Comes Next? Post- Secondary Transition
David Black, PhD
Teaching Social Skills
Mina Park, PhD