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October 2014  

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In This Issue
Support ARI with a Puzzle Piece Campaign
Tips for an ASD-Friendly Halloween
Register now: Free Webinar on Technology and ASD
2015 webinar survey
Deadline for Last Adult Medical Survey Drawing is October 31st
Webinar Recordings Now Online: Anxiety, Safety and More
Check us out on 'Flipboard'
Join Our Mailing List


Study Now Enrolling: Special Diets for Treating Seizures in Autism

Recruiting children (ages 3-11 years) who have Autism, Asperger's, or PDD-NOS and seizures (2 or more per month)

 

Four-month treatment study involves a Gluten-Free, Casein-Free, Modified Atkins Diet (high in protein and healthy fats, and very low in carbohydrates). Each participant will receive a dietary consult and a meeting with a study physician.

 

Optional follow-up 6 months and 12 months after the end of the treatment study.

 

 

Learn more/view the the application (.pdf

Host a screening of AGI's film: "Trauma Warriors"

Recently, ARI's Autistic Global Initiative team premiered the feature film "Trauma Warriors" at the CU School of Medicine, Denver, in collaboration with JFK Partners.

  

We received a large number of inquiries and regrets from those unable to travel to Colorado to attend. In response, AGI is now opening up a film-hosting program. The film will not be offered online via YouTube or webinar, but we are happy to offer you and your community hosting options. Learn More.

  

Questions? 

Email:  agi@autism.com 

Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

Give now to support our work in 2014

Charity NavigatorAdvancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism. Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.  Ready to give? Donate Now 

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up

In Remembrance: Dr. Jaquelyn McCandless

Our very dear friend, Jaquelyn McCandless, M.D. passed away earlier this year. She was a colleague and mentor to many people within the Autism Research Institute network, as well as a beacon of light to many families worldwide. She participated in our think tanks and was a frequent lecturer at our conferences and clinician seminars. Dr. McCandless' book, Children with Starving Brains, first published in 2002, still provides advice to many. We will all miss her greatly. 

 

ARI has established a memorial research fund in honor of Dr. McCandless. One-hundred percent of the contributions to the fund will be earmarked for research studying interventions that were pioneered and/or supported by Dr. McCandless. You can make a donation on ARI's secure website by selecting "I want my donation credited to the Jaquelyn McCandless Autism Research Project (JMARP)" (located near the bottom of the webpage).  

 

Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
Dear ARI Subscriber,  
  
Edelson

Our webinars have returned to the Internet in full swing. As many of you know, the webinar topics are announced in this monthly e-newsletter as well as on our free webinar portal.

We will be closing down our online subtype survey in November. If you had planned to participate in the research study, please do so in the near future. Those who complete the survey will receive a one-year subscription to our quarterly science newsletter, the Autism Research Review International.

We are happy to announce that we have uploaded a Serbian version of our popular Autism Treatment Evaluation Checklist (ATEC). Other available languages include: Chinese, English, German, Italian, Portuguese, Russian, Spanish, and Turkish. 

We are working very hard these days on many new and exciting projects. We will announce them in this e-newsletter in the near future.  

 

Steve Edelson, Ph.D.
Director, Autism Research Institute 

Have an Autism Friendly Halloween - Tips and Tricks to Make the Day a Treat


Plan Ahead:

Create a social story of what Halloween may be like for your child, with some pictures or drawings. This will help your child prepare for the unusual events of the day.

 

  • Try on costumes before Halloween. Chose one that fits well and feels comfortable. Some kids may prefer a Halloween costume that fits over their regular clothes, like wings or capes. Costumes that can be made from sweats (adding ears to hoods and tails to pants) are simple and sensory friendly.

  • Practice going to a neighbor's door, ringing the bell or knocking on the door and receiving candy.

On Halloween:

  • Know your child's limits and do only what he or she can handle. For example, if your child is unsure about trick-or-treating, you can start by going to just 1 or 2 houses. Assess how your child is doing and quit while it's still fun.

  • Take your child to an activity in the community, such as a school festival or a neighborhood party where the child is already comfortable and knows people.

  • Partner with family and friends that your child likes. It's okay to get in the car and drive to trick or treat at just their houses.

  • If you are giving out candy at your home, give your child the option to give a piece of candy. During the days before Halloween, practice greeting people and giving out candy.

  • If your child is afraid of going out at night, plan indoor or daytime Halloween activities.

  • Remember that it's perfectly fine to turn off the lights and shut down Halloween whenever it becomes too much.

Regarding Candy: Plan ahead to prevent dietary infractions or battles.

Some ideas:

  • Leave acceptable treats or non-food items (like Pok√©mon cards or other small toys) with sympathetic neighbors ahead of time and only visit those houses.

  • Purchase a desirable item that your child can trade their candy for at the end of the night.

  • Start the tradition of the "Candy Fairy" - children leave out their treats out overnight and in the morning the Candy Fairy has replaced them with a toy/book/movie the child will be excited about.

More tips and links:

Receive a Certificate of Participation after attending a free online webinar
You can now receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Tune in October 29th - includes live Q&A:
ipad
Technology Updates - Gadgets for ASD
Updates on the use of technology - focusing on 'apps' for iPads and other devices - to improve the quality of life for individuals with ASD. Session will include an overview of various tools that are available to enhance functional communication skills, provide visual supports for learning, and tools to support daily living.

Traci Sutton, M.S., CCC-SLP received her BS Degree in Speech-Language Pathology from Oklahoma State University and her MS in Speech-Language Pathology from the University of Oklahoma Health Sciences Center. She has experience in the public school system, where she worked with one of the district's inclusive Autism Programs. Currently, Traci is an Educational Consultant for School Support Services, OUHSC Project PEAK; Co-Presenter for the Autism Registry Training for Oklahoma educators, OUHSC Centers for Learning and Leadership; and has a private practice in Norman, OK.
REGISTER 

  


Tell Us What You'd Like to See - Take our 2015 Webinar Survey  
At the Autism Research Institute we have focused on providing conferences that are unbiased and broad-reaching, to assist families in making informed treatment decisions. We also strive to provide professional education that gives thoughtful, inquisitive clinicians the means to offer support that is safe and effective. We are planning our 2015 webinars and we want to know what you'd like to see.

Take our 2015 webinar survey
Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey will automatically be entered for a chance to win an Apple iPad.
 

 Adult Medical Survey  

Complete this survey by October 31 to qualify for the final Adult Survey iPad Drawing

If you have a son or daughter age 18 years or older, or if you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.

  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.

  

What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.

  

Purpose: The purpose of this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.


Compensation: Participants will be entered in a contest to win an Apple iPad. The next drawing - for participants who complete the survey by 11:59 p.m. PDT Oct. 31 - will be held on Nov. 1, 2014. Note: one entry per individual with ASD.

  

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing. 

  

TAKE ADULT MEDICAL SURVEY

 
Did You Know ARI Records and Uploads Our Webinars?  Watch and Share These Informative Webinars by Top Experts 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars, Past Webinars


TITLE
PRESENTER
WATCH NOW
Sleep Issues and Autism Spectrum Disorders  
P. Gail Williams, MD

Inclusion Beyond the Classroom
Jeanna Martinez, CCLS
 
Safety Issues in the Home and School*
Jeanna Martinez, CCLS & Rebeca Flores, RN

Anxiety & OCD in Autism Spectrum Disorders

  

S Chandra, MD  

Positive Reinforcement: It's That Important*
Regan Fitzgerald, MED, BCBA
Neuroinflammation
A Zimmerman, M.D.


* Presented in partnership with The Johnson Center for Child Health and Development

Flipboard Fans: Keep up with ARI on Your Personalized Page
Flipboard is an app that aggregates news, social media, feeds, and other content and presents it in a personalized magazine-like format. It is available for iPad, iPhone, Android, and Kindle Fire.

You can visit flipboard.com for more information on the features and functionality of the Flipboard app. 
Learn More and Visit ARI's page