Research that Makes a Difference for Individuals with Autism Spectrum Disorders
November 2018 Research News & Updates
 
Dear ARI subscriber, 

We continue to focus on ways to provide up-to-date information to families, those on the spectrum, and professionals. Some examples of our projects this fall include: hosting weekly online webcasts on a variety of topics, preparing for a December 2018 think tank at Columbia University in New York, and distributing research summaries in our science newsletter, the Autism Research Review International, and e-newsletters. With the year gradually winding down, we hope you will consider making a donation to support our research agenda as well as our programs, projects, and initiatives. And if you find our information relevant and useful, we would appreciate your letting others know about our organization. Mark your calendar: #GivingTuesday is on November 27th. As we reflect on the service of veterans this weekend and prepare for the busy weeks ahead, all of us at ARI wish you and your family a cheerful and pleasant start to the holiday season. 

Stephen M. Edelson, Ph.D.
Executive Director, Autism Research Institute
Autism Research News & Updates
Infants' pupil responses may help predict later ASD

The pupillary responses of infants to changes in light may help researchers diagnose autism spectrum disorders (ASD) very early in life, according to a new study.
Study finds no effect of metformin on memory in individuals with ASD
 
Increasing numbers of individuals with autism spectrum disorders (ASD) are taking metformin to counteract weight gain caused by antipsychotic drugs such as risperidone (Risperdal). While studies differ as to the results of metformin on memory-with some reporting that it enhances memory, and others reporting that it impairs it-new research suggests that it has neither a positive nor a negative effect on memory in individuals with ASD.

Some of the research articles above also appear in a recent issue of ARI's Autism Research Review International newsletter.  
Just Released
New book release- Defining Autism
A Guide to Brain, Biology, and Behavior

Written by Emily L. Casanova and Manuel F. Casanova. The Casanovas are past ARI webinar presenters. 
 
From ARI Director Steve Edelson, "Finally!  A book on autism that discusses important and relevant issues with scientific support. This is must reading for parents and professionals who want to know the facts about autism. The book is clear, concise, and quite insightful." 

 Free Webinars
Cognitive Enhancement Therapy presented by Shaun Eack, Ph.D, University of Pittsburg
Watch past and future webinars online for free

Donate now to support this important free service for parents and professionals.
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ARI webinars are made possible through generous donor support, including a grant from Local 25 Boston Teamsters
Upcoming webinar: Complementary Care & ASD
 
Considerations for Support Beyond ECI and School Services
 
Presented by Anissa Ryland
Director, The Johnson Center for Child Health & Development
 
 
This webinar is presented in partnership with the Johnson Center for Child Health and Development
November Happenings
Holiday Planning - Resources for Families

The holiday season brings its joys - and potential challenges - for persons with autism. Disrupted routines, travel, house guests, and new foods and experiences abounding, it can be completely overwhelming.

Tips, tricks, recipes, and activities are plentiful online - you can find our collection of useful links here.
Complimentary Continuing Education
 
CME Webcasts: Anxiety, Immunological Issues - New Talks Set for Later in 2018

The health of children and adults with autism can be improved by clinicians knowledgeable about the medical etiologies associated with this complex disorder. Watch for new talks later this year on psychopharmacology and genetic factors in ASD. 
ON DEMAND
TOPICS 
OPTIONS
CME Webcasts - Part 1 - extended Metabolic and gastrointestinal   View & print flyer  
Watch Part 2 Archives   Sleep issues, tips for compassionate care featuring Dr. Temple Grandin and more Embed and Share  
Immunological Issues and Anxiety
 Translations  Portuguese Certificados gratuitos  
Opportunities to Participate in Research

 
The Hartwell Foundation Kids First Subtype Survey.
 
Survey questions are simple, focused on basic behavioral and medical information and can be completed in about 10 minutes.
 
The collected data will provide a unique opportunity for researchers to begin classification of ASD, and as new categories are identified, the effort will expand to more sophisticated requests for information.   
 
For additional information, please visit the research study website and when asked, enter ARI as your referral code

Microbiota Transplant Therapy for Adults with Autism 
To study a new, investigational treatment to reduce gut and stomach problems in adults with autism.  
 
For additional information, please visit the research study website 
The UCSD Newborn Screening Autism Risk Study
Researchers at the University of California, San Diego are seeking participants born in California, currently aged 3-6 with and without autism.
 
"Can newborn screening (NBS) results be used to predict the future risk of ASD before the first symptoms appear?" This is the question we will try to answer in this study. Your participation will allow us to go back in time, to analyze the results of your child's California State NBS tests that were performed at birth. No new samples are required.
 
For additional information, please visit the research study website or contact the Naviaux Lab at rriggs@ucsd.edu or call 619-884-8021.
Siblings needed for research study: Why are boys more likely to have an autism spectrum disorder?
Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are investigating whether the reason why boys are more affected than girls is related to differences in intestinal bacteria.  
 
We are seeking families to participate in this study who have boy and girl siblings with autism.  These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken.
 
For additional information, please contact Harland Winter, MD at GenderDimorphism@autism.com or call 617-724-2004.
Resiliency Program for Parents of Children with ASD
Massachusetts General Hospital's Parental Stress Study is offering a video-conferencing program to teach resiliency to parents who have children with Autism Spectrum Disorders. The program will be 8 weeks long, and meet once a week for 1.5 hours. Please contact the Study investigators if you have any questions.
  
Experiences of Children and Teens with ASD 
This is a study that will compare how children ages 11-18 with and without autism experience the world around them. 
  
Parent-Training Program Study
Dr. Lauren Moskowitz, a frequent ARI webinar presenter on challenging behaviors and anxiety, is seeking participants in a research study on the effectiveness of a group parent-training program for parents of children with autism spectrum disorder (ASD) and other developmental disabilities (DD). Parents in the New York City or Long Island area are invited to participate.
Inflammatory Subtype: Biomarkers 
Dr. Harumi Jyonouchi is conducting research to characterize a previously unidentified inflammatory subtype of autism to improve autism treatment options. Individuals aged 1-30 years with autism and also typically developing individuals are invited to participate

Contact the Study Investigators
 
Adults: Survey takers needed
If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.

Learn More and take the survey
Treatment-Effectiveness Survey
Researchers at Arizona State University are conducting a survey to evaluate the effectiveness of treatments for autism, including medications, diets, therapies, and education. The investigators hope to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.).  Survey results will be posted online for families and clinicians, and published in a scientific journal.

Share your experience - take the survey
Making a Difference in 2018 and Beyond
Research is the Key to the Future 
Artist Mark Rimland
Giving Tuesday is set for November 27th, and with your help we'll raise funds to continue our work supporting research into effective treatments. Your tax deductible pledge or one-time gift of ANY size will help us continue this important work in 2019 and beyond.    
 
Donors giving now through midnight, Pacific Time on Giving Tuesday will receive a free set of notecards featuring paintings by Mark Rimland, an artist with autism and son of ARI's founder, Bernard Rimland. 
When you support us you send a message that you care about ARI's independent legacy and value objective research conducted free of influence.


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