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Research that Makes a Difference for Individuals with Autism Spectrum Disorders
September 2018 Research News & Updates
Dear ARI subscriber, 

With the new school year upon us, ARI's staff and I wish families with school-aged children a pleasant and educational year.  Please feel free to share resources from autism.com, as well as specific articles, with teachers and the administration. Some articles that may be of interest include:
 
Later this month I will be traveling to Ukraine and Moldova. I plan to present talks, discuss research with scientists and physicians, and visit with parents. As always, there is much to share and a great deal to learn.
 
I am sad to report that Lynda Huggins recently passed away. Lynda was a pioneering mover and shaker in the state of Louisiana. She was also very active at the national level. Lynda was  a strong supporter of ARI over the years and spearheaded our Autism Puzzle Pieces program. We will miss her dearly.

Sincerely, 
Stephen M. Edelson, Ph.D.
Executive Director, Autism Research Institute
Preparing for Natural Disasters
Preparing for hurricanes and natural disasters 
Hurricanes and other natural disasters can be difficult for all families, and particularly for persons with autism. Preparation and support materials can help.
 
Autism Society of North Carolina - Information and tips 
Helping children cope - Johnson Center for Child Health & Development  
Autism Research News & Updates
Intervention teaches children with ASD to respond correctly when lost in the community

Elopement, or wandering off without permission, is a significant danger for children with autism spectrum disorders (ASD). Nearly half of young children with ASD have eloped, and the vast majority of deaths of young children with ASD result from accidental drowning after a child has eloped.
EEG screening may allow doctors to accurately predict autism spectrum disorders in infants

It may be possible to predict an autism spectrum disorder (ASD) diagnosis with high accuracy in infants using electroencephalogram (EEG) data, a new study reports.

Cats, children with ASD can form valuable relationships

While children with autism spectrum disorders (ASD) frequently benefit from interacting with dogs, a new study indicates that many can also form valuable relationships with cats.
 
Some of the research articles above also appear in a recent issue of ARI's Autism Research Review International newsletter.  
ARI News
ARI receives $25k for research and education  
 
Local 25 Boston Teamsters renewed their support for ARI's research and education initiatives earlier this month with a $25,000 gift. Now in its 11th year, the Teamsters Local 25 Autism Fund has donated more than $4 million to support autism organizations since its inception. ARI is honored to be among the charities receiving support.
 
Annual Report: Learn about our work 

The past couple of years have been game-changing for ARI.  Learn about our efforts to look for common ground for collaboration and accelerate progress in autism research and education. We understand what it means to be different,
because we have always been unique. Learn all about where your support has taken us.
 Free Webinars
Susan Swedo, M.D.: PANS / PANDAS & ASD
Susan Swedo, M.D.:
PANS / PANDAS & ASD
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ARI webinars are made possible through generous donor support, including a grant from Local 25 Boston Teamsters
Upcoming webinar: EDS and Hypermobility in ASD 
Presented by Dr. Emily Casanova. Dr. Casanova's research background is in embryology, genetics, neuropathology, and bioinformatics, with particular focus on neurodevelopmental conditions and a strong emphasis on autism. 
 
 
This webinar is made possible in part by a generous grant from Local 25, Boston Teamsters.
Upcoming webinar: Q & A: Ask the Nutritionist
Ever had a question you wanted to ask a nutritionist? Here's your chance - Kelly Barnhill will be taking participants' questions live during this webinar.
 
Presented by Kelly Barnhill, MBA, CN, CCN, the Director of the Clinical Director and Nutrition Clinic at The Johnson Center for Child Health and Development.
 
 
This webinar is presented in partnership with the Johnson Center for Child Health and Development
Upcoming webinar: Self-Injury and ASD - Updates
Join Dr. Lauren Moskowitz as she discusses self-injury and other challenging behaviors.
 
 
This webinar is made possible in part by a generous grant from Local 25, Boston Teamsters.
Complimentary Continuing Education
 
CME Webcasts: Anxiety, Immunological Issues - New Talks Set for Later in 2018

The health of children and adults with autism can be improved by clinicians knowledgeable about the medical etiologies associated with this complex disorder. Watch for new talks later this year on psychopharmacology and genetic factors in ASD. 
ON DEMAND
TOPICS 
OPTIONS
CME Webcasts - Part 1 - extended Metabolic and gastrointestinal   View & print flyer  
Watch Part 2 Archives   Sleep issues, tips for compassionate care featuring Dr. Temple Grandin and more Embed and Share  
Immunological Issues and Anxiety
 Translations  Portuguese Certificados gratuitos  
Opportunities to Participate in Research
Microbiota Transplant Therapy for Adults with Autism 
To study a new, investigational treatment to reduce gut and stomach problems in adults with autism.  
 
For additional information, please visit the research study website 
The UCSD Newborn Screening Autism Risk Study
Researchers at the University of California, San Diego are seeking participants born in California, currently aged 3-6 with and without autism.
 
"Can newborn screening (NBS) results be used to predict the future risk of ASD before the first symptoms appear?" This is the question we will try to answer in this study. Your participation will allow us to go back in time, to analyze the results of your child's California State NBS tests that were performed at birth. No new samples are required.
 
For additional information, please visit the research study website or contact the Naviaux Lab at [email protected] or call 619-884-8021.
Siblings needed for research study: Why are boys more likely to have an autism spectrum disorder?
Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are investigating whether the reason why boys are more affected than girls is related to differences in intestinal bacteria.  
 
We are seeking families to participate in this study who have boy and girl siblings with autism.  These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken.
 
For additional information, please contact Harland Winter, MD at [email protected] or call 617-724-2004.
Resiliency Program for Parents of Children with ASD
Massachusetts General Hospital's Parental Stress Study is offering a video-conferencing program to teach resiliency to parents who have children with Autism Spectrum Disorders. The program will be 8 weeks long, and meet once a week for 1.5 hours. Please contact the Study investigators if you have any questions.
  
Experiences of Children and Teens with ASD 
This is a study that will compare how children ages 11-18 with and without autism experience the world around them. 
  
Parent-Training Program Study
Dr. Lauren Moskowitz, a frequent ARI webinar presenter on challenging behaviors and anxiety, is seeking participants in a research study on the effectiveness of a group parent-training program for parents of children with autism spectrum disorder (ASD) and other developmental disabilities (DD). Parents in the New York City or Long Island area are invited to participate.
Inflammatory Subtype: Biomarkers 
Dr. Harumi Jyonouchi is conducting research to characterize a previously unidentified inflammatory subtype of autism to improve autism treatment options. Individuals aged 1-30 years with autism and also typically developing individuals are invited to participate

Contact the Study Investigators
 
Adults: Survey takers needed
If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.

Learn More and take the survey
Treatment-Effectiveness Survey
Researchers at Arizona State University are conducting a survey to evaluate the effectiveness of treatments for autism, including medications, diets, therapies, and education. The investigators hope to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.).  Survey results will be posted online for families and clinicians, and published in a scientific journal.

Share your experience - take the survey
Making a Difference in 2018

When you support us you send a message that you care about ARI's independent legacy and value objective research conducted free of influence.


 
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