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June 2018 Research News & Updates
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Dear ARI subscriber,
With a new season almost upon us, I know many of you are figuring out your plans for the summer. If you are visiting the San Diego area, please stop by ARI's office in the Kensington district and say "hello." You can also visit an art gallery located next to the institute where Mark Rimland, our founder's son, has artwork on display (along with other artists).
I am pleased to announce that ARI has again received the highest (four-star) rating from Charity Navigator. The rating is based on accountability, fiscal management, and transparency.
Many parents and professionals within the autism community rely on ARI's Autism Treatment Evaluation Checklist (ATEC) to monitor progress, as well as to document benefits of a new treatment (or lack thereof). More than 500,000 ATEC forms have been completed over the past two decades. Recently, I wrote an editorial on how the ATEC was developed, along with its application. Since structure and routine are often modified during the summer, you may want to consider completing the ATEC in the near future in order to monitor your child's overall behavior over the next few months.
The staff at ARI and I wish all of you a safe and peaceful summer.
Sincerely,
Stephen M. Edelson, Ph.D.
Executive Director, Autism Research Institute
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Autism Research News & Updates
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ARI's Autism Treatment Evaluation Checklist (ATEC): Its Development and Application
The Autism Treatment Evaluation Checklist, or ATEC, is one of the most widely used assessment tools in the autism community. The checklist is designed to evaluate the efficacy of treatments and to monitor how an individual progresses over time. The ATEC is used by parents and researchers as well as by schools, medical and behavioral clinics, and insurance companies. More than half a million ATEC forms have been completed over the past two decades.
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Ubiquitin gene defect leads to excess of cerebellar synapses
An excess of brain synapses-the connections between cells that allow them to signal one other-may be a key factor in autism, according to new research.
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Inflamed astrocytes may contribute to ASD
Inflammation of astrocytes (star-shaped cells that provide support for neurons in the brain and central nervous system) may play a role in autism, according to new research.
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Link between ASD, inflammatory bowel disease
A new study adds to evidence that children with autism spectrum disorders (ASD) have a higher prevalence of inflammatory bowel disease (IBD) than children without ASD. |
Watch ARI's past and future webinars online for free
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| | Watch now: Emotional Regulation & ASD Carla Mazefsky, Ph.D. |
D onate now to support this important free service for parents and professionals.
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ARI webinars are made possible through generous donor support, including a grant from Local 25 Boston Teamsters
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Upcoming webinar: Gender Dysphoria and ASD
Some studies show that people who don't identify with their birth sex (gender dysphoria) have higher-than-expected rates of autism. Tune in for this presentation by psychologist, lecturer, and author, Wenn Lawson, Ph.D.
This webinar is made possible in part by a generous grant from Local 25, Boston Teamsters.
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Upcoming webinar: ASD & Technology
SASD and Technology: Join us for a discussion on the current state of research regarding ASD and technology, and apps that are recommended for use by people with ASD.
Presented by Morgan Devlin, Research Assistant, The Johnson Center for Child Health & Development
This webinar is presented in partnership with the Johnson Center for Child Health and Development
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Upcoming webinar: Depression & ASD: What are the signs, symptoms, and considerations for treatment?
Presented by Claire Schutte, Psy-D, BCBA-D and Amanda Tami, LPC, BCBA-D
This webinar is presented in partnership with the Johnson Center for Child Health and Development
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Congrats to all the Graduates!
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And to Tyler, from our April 2018 ARI Story Share
"Tyler is 18 and will graduate high school this June. He was diagnosed with autism at 22 months. By the time he was 3, I had heard of ARI. With each and every year he has continued to make progress, and this year he made his biggest gain in his speech! My advice is to never give up on making progress! It is slow but consistent! Thank you ARI for helping me help my child live a pain-free, healthier life!
Tyler received an academic excellence award this spring! I am so proud of him!"
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Charity Navigator Awards ARI Highest Rating
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On June 1, ARI once again earned a four-star rating from Charity Navigator. "It's important our donors trust that we're using our funding wisely to accomplish our mission to improve the health and well-being of people on the autism spectrum through research and the education of professionals, those who are affected, and their families," said Autism Research Institute's Executive Director, Stephen M. Edelson, Ph.D. "Our 4-star Charity Navigator rating demonstrates to our supporters that we take our fiduciary and governance responsibilities very seriously."
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| Complimentary Continuing Education |
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CME Webcasts: Anxiety, Immunological Issues in ASD
The health of children and adults with autism can be improved by clinicians knowledgeable about the medical etiologies associated with this complex disorder. |
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Opportunities to Participate in Research
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The UCSD Newborn Screening Autism Risk Study
Researchers at the University of California, San Diego are seeking participants born in California, currently aged 3-6 with and without autism.
"Can newborn screening (NBS) results be used to predict the future risk of ASD before the first symptoms appear?" This is the question we will try to answer in this study. Your participation will allow us to go back in time, to analyze the results of your child's California State NBS tests that were performed at birth. No new samples are required.
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Siblings needed for research study : Why are boys more likely to have an autism spectrum disorder?
Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are investigating whether the reason why boys are more affected than girls is related to differences in intestinal bacteria.
We are seeking families to participate in this study who have boy and girl siblings with autism. These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken.
For additional information, please contact Harland Winter, MD at [email protected] or call 617-724-2004.
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Resiliency Program for Parents of Children with ASD
Massachusetts General Hospital's Parental Stress Study is offering a video-conferencing program to teach resiliency to parents who have children with Autism Spectrum Disorders. The program will be 8 weeks long, and meet once a week for 1.5 hours. Please contact the Study investigators if you have any questions.
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Experiences of Children and Teens with ASD
This is a study that will compare how children ages 11-18 with and without autism experience the world around them.
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Parent-Training Program Study
Dr. Lauren Moskowitz, a frequent ARI webinar presenter on challenging behaviors and anxiety, is seeking participants in a research study on the effectiveness of a group parent-training program for parents of children with autism spectrum disorder (ASD) and other developmental disabilities (DD). Parents in the New York City or Long Island area are invited to participate.
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Inflammatory Subtype: Biomarkers
Dr. Harumi Jyonouchi is conducting research to characterize a previously unidentified inflammatory subtype of autism to improve autism treatment options. Individuals aged 1-30 years with autism and also typically developing individuals are invited to participate
Contact the Study Investigators
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Adults: Survey takers needed
If you or a person you care for is on the autism spectrum and is 50 years of age or older, we would appreciate it if you could complete the online form.
Learn More and take the survey
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Treatment-Effectiveness Survey
Researchers at Arizona State University are conducting a survey to evaluate the effectiveness of treatments for autism, including medications, diets, therapies, and education. The investigators hope to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.). Survey results will be posted online for families and clinicians, and published in a scientific journal.
Share your experience - take the survey
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Making a Difference in 2018
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When you support us you send a message that you care about ARI's independent legacy and value objective research conducted free of influence
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