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June 2015   

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In This Issue
ATEC Translations: Now in Dutch
Autism.Jobs provides employment resources
Register for free Webinars
ARI's Val Paradiz featured on NPR
New Online Employability Course accessible, Fast and Effective Training
ASA Keynote to Honor Bernard Rimland
Content Collaboration with Cleveland Clinic
Watch Medical Support Social Story, Videos
Join Our Mailing List
Print and Share: Support Videos for Medical Procedures
  
Receive a Certificate of Participation after attending a free online webinar
You can receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Upcoming Free Webinars:

Register and tune in for this webinar Wednesday, July 29 with Elizabeth Mumper, M.D., FAAP 
See more upcoming talks  


ARI has published a quarterly newsletter, the Autism Research Review International (ARRI), since 1987. The ARRI has received worldwide praise for its thoroughness and objectivity in reporting the current developments in biomedical and educational research. 

The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week.  A one-year subscription is $20 (U.S. funds; $24 outside the U.S. - includes shipping). Each issue is sent via first class mail.

 

Keep up with the latest research updates - subscribe now through ARI's Autism Store on Amazon.com

 

Visit the ARRI archives to peruse a clickable, alphabetical article index of Autism Research Review International issues 1987 to 2006, Volumes 1 to 20.

 

Visit the online archives & subscribe  

 
   
ARI's Autism Treatment Evaluation Checklist (ATEC); free assessment tool now available in 17 languages:

A major obstacle in autism research has been the lack of a valid means of measuring the effectiveness of various treatments. The Autism Treatment Evaluation Checklist (ATEC) was developed by Bernard Rimland and Stephen M. Edelson of the Autism Research Institute, to fill this need.  

ARI is grateful to the volunteers who have worked to translate the ATEC into these languages.  Do you speak a language that is missing?  Email Melanie@autism.com if you are able to contribute a new language translation to this ongoing project.

Our thanks to friends for assistance translating the ATEC to Hebrew and Persian earlier this month.

50th Anniversary Updated Edition of Bernard Rimland's Infantile Autism
 
With updates from some of the best-known names in the autism field, Bernard Rimland's seminal work on autism theory is now available for a new generation of readers in this anniversary edition of Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Development.

'Dr. Rimland is to be commended for presenting the first evidence that autism was a biological condition. When his book was published, he was a lone visionary.'
- from the foreword by Temple Grandin, Ph.D.

Bonus: ARI will be giving away one copy of this new book every month to an enews subscriber.  

  


AutismJobs for Job Seekers, Families and Caregivers, Job Coaches and Employers 

 

Discover the advantages of hiring individuals with autism. Access practical information that helps candidates become "job ready" and helps employers create autism-friendly workplaces. This database is a searchable collection of autism employment resources with a wealth of practical advice. It includes links to a variety of resources including articles, videos, books and more. Guides highlight key steps in the employment process.  We hope you'll find this database helpful in matching job seekers and employers in ways that reward both. Learn more and visit Autism Jobs 


Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
Clinical Research in ASD
In collaboration with the
Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Charity Navigator
Give now to support our work in 2015

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism. Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.  Ready to give?  

Donate Now 

Raise Awareness & Support Research That Makes a Difference - Order Your Free Kit Now

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   

Quick Links
Join Our Mailing List
Dear ARI Subscriber,  

 

This last month has been quite eventful for ARI.  We held our annual three-day think tank, which provides an opportunity for researchers to discuss medical/biomedical issues with physicians. I also had a poster presentation at IMFAR, and co-chaired a three-day conference in Moscow, which continues to grow with over 500 people in attendance-the majority of whom are professionals.  Paul Shattock, a long-time ARI supporter and close friend of Dr. Rimland, helped kick off the conference by presenting a "big picture" view of autism as well as describing the efforts of the World Autism Organization. He later lectured about adult residential settings.  Many of the lectures from the previous two conferences, which will be translated into Russian, will be uploaded to the Internet this summer.

 

The Autism Society's conference next month in Denver, Colorado, July 8 to 11, will be celebrating its 50th anniversary. Mark Rimland and I will introduce Friday morning's keynote talk, which will honor the Autism Society's founder, Dr. Bernard Rimland.  Drs. Margaret Bauman and Lucy Jane Miller will co-present a lecture on Neurophysiology and Sensation in Autism

 

Dr. William Parker, an associated professor at Duke University Medical Center, recently wrote a guest editorial for our quarterly science newsletter, the Autism Research Review International.  Dr. Parker discusses the role of helminths with respect to gastrointestinal health and warned about the use of Miracle Mineral Solution (MMS). We have also uploaded his article to  www.helminths.info.

 

Wishing you a peaceful summer.

 

Steve Edelson, Ph.D.
Director, Autism Research Institute 

ARI's Val Paradiz "Caring for Adults with Autism" on National Public Radio  

Listen to the recording: ARI's Valarie Paradiz, Ph.D. (far left) spoke on NPR's Diane Rehm Show earlier this month.

ARI's Valerie Paradiz, PhD (pictured, far left), Director of ARI's Autistic Global Initiative, was a guest on

The Diane Rehm Show on National Public Radio earlier this month. She joined Dr. Paul Shattuck, A.J. Drexel, and Dr. Ilene Lainer.

More than 50,000 individuals with autism enter adulthood every year. Yet relatively little has been done to support them or their families. Val participated in a conversation about caring for adults with autism. Listen to the replay of "Caring for Adults with Autism" on
The Diane Rehm Show.
Listen Now

 

"58% of young adults on the autism spectrum worked for pay outside the home between high school and their early 20s-a rate far lower than young adults with other types of disabilities."

Key Findings National Autism Indicators Report: Transition Into Young Adulthood,
Drexel University, April 2015

The Autistic Global Initiative of the Autism Research Institute has partnered with uptimize, an online education company, to create Learn The Steps, Get Employed. The self-paced, online course is an important resource for young adults with autism who face serious systemic challenges when it comes to becoming employed.

 

Format: 17 micro tutorials  

 

What you'll learn: 

  • Building on your strengths
  • Developing a network
  • Finding opportunities
  • Resume & cover letter tips
  • Researching organizations
  • Practicing for interviews
  • How to disclose a disability
  • Presentation & body language
  • How to impress employers
  • Knowing when to follow up...& more

One-time Fee:

  • $75 for unlimited individual access  
Annual partnership licensing is available for organizations and educational institutions.

Includes: 

  • iPhone, iPad and Android accessibility
  • Unlimited viewing and reviewing of videos and course materials

Register 

Participants Needed: Research Studies Now Enrolling in Minnesota and New Jersey 

 

Prism Lens Study, Yonas Visual Perception Lab at University of Minnesota

New research shows us that children with ASD tend to have a very narrow range of visual focus when compared to typically developing children. Dr. Melvin Kaplan is a behavioral optometrist who has developed special glasses that address this problem. These glasses are a type of prism that increases children's attention to many more parts of a scene. This research study will measure how children focus differently with and without Dr. Kaplan's glasses. The one-time session takes about 20 minutes and participants are offered a $10 Target Gift Card as compensation.

The lab is at the University of Minnesota, Twin Cities, on the East Bank campus.  For questions and scheduling, email Yonas Lab .

Subtype Study at St. Peter's University Hospital, New Brunswick

Children and young adults with autism in New Jersey, ages 1-30, and typically developing, healthy individuals ages 1-30 are needed for a research study to characterize an inflammatory subtype of autism to improve treatment options. Participation entails one visit (for controls) or two-three visits (for individuals with ASD) approximately 1-2 hours each, physical/immunological exam with the possibility of a developmental assessment (for subjects with ASD) and a blood draw. There is no compensation for this study.  

Learn More 

ASA Celebrates 50 Years of Advocacy at July Conference - Keynote to Honor Dr. Rimland

 

Mark Rimland, pictured here with his father Dr. Bernard Rimland, will introduce the keynote speakers at this summer's ASA Conference in Denver, CO Friday, July 10th.

This year marks the 50th anniversary of the Autism Society, and their founder, Dr. Bernard Rimland, will be honored in a keynote talk titled Neurophysiology and Sensation in Autism.  The talk, scheduled for Friday morning, July 10, will be presented by Drs. Margaret Bauman and Lucy Jane Miller. 

 

As you may know, in 1964 Dr. Rimland argued that autism was due to a neurological condition rather than parental neglect.

 

Dr. Rimland's son, Mark, and ARI Executive Director, Dr. Steve Edelson, will be on hand to introduce the keynote talk.

 

The Autism Society conference will held on July 8-11 in Denver, Colorado.  

 

Conference registration 

Schedule 

Accommodations   


 

View the Autism Spectrum Disorders: Research and Medical Treatment Implications webcast series. Learn how behavioral improvement can be achieved when underlying comorbid medical and neurological issues associated with autism spectrum disorders are addressed.     

 

Many individuals with autism experience chronic physical discomfort, yet lack the ability to describe their medical problems - particularly in clinical settings. Clinicians who have the ability to identify symptoms and communicate with patients on the autism spectrum can dramatically improve patient care. Participate in the webcast series today!    

 

Print and share the series flyer 


These activities have been approved for AMA PRA Category 1 Credit™.

Medical visits can be stressful for anyone. Individuals with autism often face extra challenges during procedures like physical examinations and blood draws due to difficulty communicating about the symptoms they are experiencing and sensory issues that can occur in the clinical setting. Print and share the video series flyer.   

 

The fear and anxiety felt during medical procedures by those with autism can also be stressful for caregivers and medical professionals administering treatment. This video series was developed by treatment professionals at the Johnson Center for Child Health and Development.  

 

Watch and share these brief helpful videos to prepare for medical visits. 

 

Social Story: Today I Am Having a Blood Draw
Social Story: Today I Am Having a Blood Draw

 

Caregiver Strategies: Positioning for Comfort
Caregiver Strategies: Positioning for Comfort
 
Easing Anxiety: Medical Play
Easing Anxiety: Medical Play

Did You Know ARI Records and Uploads Webinars?  Watch and Share These Informative Talks by Top Experts 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars, Past Webinars


TITLE
PRESENTER
WATCH NOW
Assessing and Treating Challenging Behavior in Children with ASD

A Parent's Guide to Navigating Insurance Coverage*
Wendy Richardson, Johnson Center for Child Health and Development

Sulforaphane, Broccoli & ASD - the DNA Whisperer

Microbiome Research in Autism Spectrum Disorders
William Parker, Ph.D.
Optimistic Parenting: Hope and Help for Individuals with Challenging Behavior
V. Mark Durand, Ph.D.
Ask the Nutritionist - Live Q&A
Vicki Kobliner, MS, RD


* Presented in partnership with The Johnson Center for Child Health and Development
ARI's Scientific Advisory Board
ARI's Scientific Advisory Board (SAB) provides informed support and direction for our research initiatives. Dr. Stephen M. Edelson leads the group, assembling thought leaders in the medical and scientific community in order to further ARI's ongoing commitment to research that makes a difference. Learn more about the research we fund.

2015 ARI SAB members include:


Jim Adams, Ph.D.
Arizona State University

Harumi Jyonouchi, M.D. 

St. Peter's University Hospital

New Brunswick, NJ 

Paul Ashwood, Ph.D. 

University of California, Davis

 

Rafail Kushak, Sc.D., Ph.D. 

Massachusetts General Hospital

 

Kelly Barnhill, MBA, CN, CCN

Johnson Center for Child Health & Development
Lucy Jane Miller, Ph.D., OTR
Clinical Director, STAR Center

Margaret Bauman, M.D.

Boston University Medical Center
Marvin Natowicz, M.D., Ph.D.
Cleveland Clinic

Manuel Casanova, M.D.   

University of Louisville

 

Robert Naviaux, M.D.
University of California, San Diego
Sydney M. Finegold, MD
University of California, Los Angeles
Andrey Rhetsky, Ph.D.
University of Chicago

V. Mark Durand, Ph.D.   

University of South Florida, St. Petersburg 

 

Judy Van de Water Ph.D.
University of California, Davis
Richard Frye, M.D., Ph.D.
Arkansas Children's Hospital
Harland Winter, M.D.
Massachusetts General Hospital for Children
Paul Hardy, M.D.  
Hardy Healthcare, ARI Board President
Jill Young, Ph.D., BCBA
Therapeutic Pathways
Robert Hendren, D.O. 
UCSF Benioff Children's Hospital
Andy Zimmerman, M.D.
Kennedy Krieger Institute
S. Jill James, Ph.D. 
Arkansas Children's Hospital