The content in this preview is based on the last saved version of your email - any changes made to your email that have not been saved will not be shown in this preview.

Please click "Display Images / This email " to view the images and links in this e-mail. To view all future communications from us with images and links intact, please click "Show Images/Always from this Sender" to permanently add autismresearchinstitute@gmail.com e-mail to your "Contacts" address book.
June 2014  

Logo   

In This Issue
Host a "Trauma Warriors" screening
Register for free Webinars: Visit the Online Learning Hub
Support ARI with a Puzzle Piece Campaign
Director's Note
Upcoming Free Webinars
Complete a research survey for a chance to win an IPad
New Videos: OCD & Anxiety, Neuroinflammation, Housing for Adults & More
Join Our Mailing List
Charity Navigator
Give now to support our work in 2014

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism.    

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

 

Ready to give? Donate Now 

Host a screening of AGI's film: "Trauma Warriors"

On June 6th, AGI premiered the feature film, "Trauma Warriors," at the CU School of Medicine, Denver, in collaboration with JFK Partners.

 

We received a large number of inquiries and regrets from those unable to travel to Colorado to attend.  In response, AGI is now opening up a film-hosting program. The film will not be offered online via YouTube or webinar, but we are happy to offer you and your community hosting options. Learn More.

 

Questions? 

Email:  agi@autism.com 

 

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS

 In Remembrance: Dr. Jaquelyn McCandless

 
 

Our very dear friend, Jaquelyn McCandless, M.D. passed away earlier this year. She was a colleague and mentor to many people within the Autism Research Institute network, as well as a beacon of light to many families worldwide. She participated in our think tanks and was a frequent lecturer at our conferences and clinician seminars. Dr. McCandless' book, Children with Starving Brains, first published in 2002, still provides advice to many. We will all miss her greatly. 

 

ARI has established a memorial research fund in honor of Dr. McCandless. One-hundred percent of the contributions to the fund will be earmarked for research studying interventions that were pioneered and/or supported by Dr. McCandless. You can make a donation on ARI's secure website by selecting "I want my donation credited to the Jaquelyn McCandless Autism Research Project (JMARP)" (located near the bottom of the webpage).  

 

Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.   


Special thanks to these supporters of ARI:

Theresa Ellerbe is a mom who works in a bank in Columbia, LA.  With the help of the bank she has faithfully supported the Puzzle Campaign since 2012 and raised $1030!
 
Joanna Stevens is a mom in a small  New York community.  She does not have a computer but heard about the Puzzle Project through a newsletter written for a local autism group.  Joanna has been a supporter since 2007 and has single handedly raised $1305.98!
 
Dear ARI Subscriber,

Edelson With school out for the summer for most children and teenagers in the US, I hope parents and caregivers are prepared for sunny days, less structure, and possibly an adventurous vacation.  

 

This year marks the 50th anniversary of Dr. Bernard Rimland's seminal book, Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior. The book, published in 1964, literally changed the course of autism from a parent-blaming, psychodynamic model to a science-based, physiological one. You can read a recent editorial of mine on Dr. Rimland's book here: Editorial.

 

Another tribute to Dr. Rimland's ground-breaking book will be the reprinting of his book, which will be published by Jessica Kingsley Publications later this year. Besides containing Dr. Rimland's original text, many experts in the field have provided research updates on many of the issues raised by Dr. Rimland, including Drs. James Adams, Sidney Baker, Richard Frye, Matthew Goodwin, Lucy J. Miller, Jon Pangborn, and many more. Drs. Temple Grandin and Margaret Bauman have written forewords to the book. We will let our subscribers know when the book is available.

 

We have been publishing "Did you know?" tidbits every weekday for a couple of years. These include brief descriptions of interesting research findings, as well as some autism trivia. Our estimate is that they are distributed to over 10,000 people daily through our Twitter ( and Facebook (/Autism-Research-Institute) accounts;  they are also posted on ARI's main website, www.autism.com.

  

Best Regards,

 

Steve Edelson, Ph.D.
Director, Autism Research Institute 
 
Participants in ARI's 2014 Think Tank in Toronto
"ARI think tanks are one of our best programs. Several times each year, ARI convenes highly respected researchers and clinicians to discuss current research and work toward answering critical questions about autism."

ARI: Always Growing, Always Changing 

Earlier this month the Autism Research Institute sponsored a think tank in Toronto with AutismCanada and NeuroDevNet, two Canada-based autism groups. The two-day meeting was focused on a multi-systems approach to autism and the environment. Some of the participants included (shown above): Drs. Sid Finegold, Manuel Casanova, Stephen Scherer, Harumi Jyonouchi, Judy Van de Water, Richard Frye, among others. I would like to give a big special thanks to Laurie Mawlam and Dr. Dan Goldowitz for organizing the think tank with ARI.

Receive a Certificate of Participation after attending our free, online webinars
You can now receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Next Webinar - includes live Q&A:
Tuesday, July 1st
Positive Reinforcement: It's That Important*
Presented by Regan Fitzgerald, MED, BCBA

Appropriate use of positive reinforcement is one of the most important facets of a quality behavioral and education program for people with ASD and other developmental disorders. Learn more about the correct (and incorrect) way to apply this principle. REGISTER 

  

*Presented in partnership with the Johnson Center for Child Health and Development 

  

Regan serves as a consultant to the Behavioral Services Department at The Johnson Center. She is a Board Certified Behavior Analyst (BCBA) with over twelve years experience; she has had the opportunity to work with children on the autism spectrum from ages 18 months through adolescence. She has served as a moderator for a social skills group for teenagers with Asperger's Syndrome, worked as an in-home ABA therapist and consultant in Texas and California, and was a case manager at an inclusive private preschool. In addition, she has served as the only Behavior Analyst in one of the largest school districts in Texas, where she oversaw the district's first implementation of Applied Behavior Analysis.

 
Parents & Caregivers Urged to Complete Online Research Surveys 

Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey will automatically be entered for a chance to win an Apple iPad.   

 

Adult Medical Survey  

Complete this survey by midnight PDT today to qualify for the next contest   

If you have a son or daughter age 18 years or older, or if you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director,  and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.

 

What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.

 

Purpose: The purpose of this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.


Compensation: Participants will be entered in a contest to win an Apple iPad. The next drawing will be held on July 1, 2014. Note: one entry per individual with ASD.

 

Where: International - this study is open to participants worldwide.  

 

When: Data collection is ongoing. 

 

TAKE ADULT MEDICAL SURVEY

 
Updated ARI E-2 Survey to Identify Autism Subtypes 
  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.  

  

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com.  

  

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.
In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD.

Once the data has been collected and analyzed, we will send a summary report to all of the participants. If we do replicate our previous findings, we will also inform each participant to which subgroup their son or daughter belongs.

 

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing, and the next iPad drawing will take place on July 31st, 2014. The winner of the drawing will not be announced publicly.

 

TAKE THE SUBTYPE SURVEY   

 

Missed a Presentation? It's Not Too Late: Recent Webinar Recordings Now Online  

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer presentations throughout the year. Upcoming webinars   


TITLE
PRESENTER
WATCH NOW
Addressing Anxiety and OCD in ASD
Suruchi Chandra, MD

Neuroinflammation in ASD
Andrew Zimmerman, MD

Housing and Programs for Adults with ASD*
Claire Schutte, Psy-D, BCBA

Ask the Clinician - Q&A
Nancy O'Hara, MD

Naturalistic Teaching Strategies*


Regan Roth Fitzgerald M.Ed., BCBA
Comorbid Conditions & ASD*
Dane Mosher, DO

Inflammation and Novel Therapeutics
Eric Hollander, MD

Crosstalk between the Gut and Brain in ASD
Alessio Fasano, MD

* Presented in Partnership with The Johnson Center for Child Health & Development