The content in this preview is based on the last saved version of your email - any changes made to your email that have not been saved will not be shown in this preview.

Please click "Display Images / This email " to view the images and links in this e-mail. To view all future communications from us with images and links intact, please click "Show Images/Always from this Sender" to permanently add autismresearchinstitute@gmail.com e-mail to your "Contacts" address book.
April 2014  

Logo   

In This Issue
Biomarker Study Seeks Participants
Upcoming Free Webinars
Complete a research survey for a chance to win an IPad
Gear Up for Your Autism Awareness Month Campaign
Join Our Mailing List
Charity Navigator
Give now to support our work in 2014

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism.    

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

 

Ready to give? Donate Now 

NIH Autism Spectrum Disorder Research:
Imaging & Biomarker Study Seeks Participants Ages 18-45  

Do we see immune differences in the autistic brain? Research seeks to detect and measure an immune target in the brain. Researchers will compare the brain scans of 18- to 45-year-olds with autism to those without autism.

There is no cost to participate. Compensation is provided for participation. Transportation may be provided. 

 

For information: 

Call: 301-435-8982 z

(TTY: 1-866-411-1010),

Email:  AutismBrain@mail.nih.gov

 

Please refer to protocol # 11-M-0118

National Institute of Mental Health, National Institutes of Health, Department of Health & Human Services

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
 
Missed a Presentation? It's Not Too Late:
Webinar Recordings Now Online  

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

We are grateful to our friends at the Johnson Center for Child Health & Development for working in partnership to offer monthly presentations throughout the year. Upcoming webinars   

Dear ARI Subscriber,

Executive Director Steve Edelson holding up a sign for ARI's Kensington Gallery in Moscow earlier this month.

Dr. Steve Edelson, Executive Director of the Autism Research Institute (ARI), along with four autism experts from around the United States, presented talks at a major autism conference in Moscow earlier this month (April 10 to 12). 

 

Dr. Edelson also traveled to the Ukraine to discuss autism issues with professionals and parents. (ARI's plan to co-sponsor the conference in Russia and visit the Ukraine were scheduled prior to the recent crisis in the Ukraine and the political tension between the United States and Russia. For safety reasons, ARI chose to send out this press release after the U.S. speakers left Russia and Dr. Edelson flew out of the Ukraine.)  

 

MOSCOW, RUSSIA
Last month, the Department of Foreign Ministry in Moscow issued humanitarian visas to the U.S. speakers accompanying Dr. Edelson to the Russian conference. Approximately 400 people attended the three-day conference. The speakers included Drs. James Adams (Arizona), David Black (Washington, DC), Richard Frye (Arkansas), and John McEachin (California). They covered a wide range of autism-related topics, including co-morbid medical problems, communication, diet and nutrition, seizures, social responsiveness, and transitioning to adulthood. Dr. Edelson also presented a talk on understanding and treating severe behavior challenges.

The U.S. speakers also met with several scientists in Moscow to discuss current and future autism research.  

Dr. Edelson addressing an audience in Ukraine earlier this month.

 

ODESSA, UKRAINE

The day after the Moscow conference ended, Dr. Edelson traveled to Odessa, Ukraine for one week. Odessa is situated on the Black Sea and is located less than 200 miles west of Simferopol, the capitol of Crimea. He met with numerous parents and professionals, gave a talk on cutting-edge research, and consulted with professionals at an autism treatment center.

Now in London, Dr. Edelson reflected on his trip to eastern Europe. In an email to Denise Fulton, ARI's Administrative Director for Communications, he wrote: "The window of opportunity for the west to share much-needed information with families in Russia and the Ukraine may be closing in the near future. Parents, especially in the Ukraine, are worried that the current civil and political conflicts will likely increase, and they are quite concerned about their child's future. Families in the Ukraine receive minimal support from the government, and a severe disturbance to the country's infrastructure will likely lead to greater difficulty obtaining appropriate intervention for their children."

Dr. Edelson returns to the United States later this month.  

 

News outlets covered Dr. Edelson's visit:

Coverage of Dr. Edelson in Аргументы и Факты 

Coverage of Dr. Edelson in Таймер

Receive a Certificate of Participation after attending our free, online webinars
You can now receive a free Certificate of Attendance for select webinars. After the webinar, you simply click a link in your webinar confirmation email and complete a short, online knowledge-verification quiz. A printable certificate will be available immediately upon passing the test.
 
Next Webinar - includes live Q&A:
Wednesday, April 23
Cross Talk Between Gut & Brain in ASD: Do they understand each other? 
Gastrointestinal disorders and associated symptoms are commonly reported in individuals with ASDs, however, it can be difficult to recognize and characterize gastrointestinal dysfunction due to the communication difficulties experienced by many affected individuals. Emerging research is aimed at developing recommendations for diagnostic evaluation and management of gastrointestinal problems for individuals on the spectrum. REGISTER 

  

Dr. Fasano completed his medical training at the University of Naples in Italy, and in 1993 he founded the University of Maryland School of Medicine's Division of Pediatric Gastroenterology and Nutrition. Ten years later, Dr. Fasano published the groundbreaking study in the Annals of Medicine that established the prevalence rate of celiac disease at one in 133 people in the U.S.

 
Parents & Caregivers Urged to Complete Online Research Surveys

Autism Awareness month is the perfect time to take part in ARI's Research surveys. Participants who complete the new Adult Medical Survey and/or the updated ARI E-2 Survey will automatically be entered for a chance to win an Apple iPad. 

 

Adult Medical Survey 

If you have a son or daughter age 18 years or older, or you are on the autism spectrum and are age 18 or older, we would appreciate it if you could complete this survey.

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director,  and Valerie Paradiz, Ph.D., Autistic Global Initiative, Autism Research Institute.

 

What: Comprehensive, consent-based online survey. The survey may take up to one hour to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AdultASDSurvey.com.

 

Purpose: The purpose this survey is to document medical problems commonly associated with adults (18 years and older) on the autism spectrum.


Compensation: Participants will be entered in a contest to win an Apple iPad. The first drawing will be held on May 1, 2014. Note: one entry per individual with ASD.

 

Where: International - this study is open to participants worldwide.  

 

When: Data collection is ongoing. 

 

TAKE ADULT MEDICAL SURVEY

 
Updated ARI E-2 Survey to Identify Autism Subtypes 
  

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.  

  

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com.  

  

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.
In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD.

Once the data has been collected and analyzed, we will send a summary report to all of the participants. If we do replicate our previous findings, we will also inform each participant to which subgroup their son or daughter belongs to.

 

Where: International - this study is open to participants worldwide.  

  

When: Data collection is ongoing, and the next iPad drawing will take place on May 31, 2014. The winner of the drawing will not be announced publicly.

 

TAKE THE SUBTYPE SURVEY   

 

Order a Free Kit Now to Support Research That Makes a Difference 

puzzle pieces 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI this April.  

 

It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.