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February 2014  

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In This Issue
Biomarker Study Seeks Participants
Gear Up for Your Autism Awareness Month Campaign
Scholarships Available for Adult Support Course
New Videos: Medical Support & Transition Tips
Subtype Survey: Translations Added, Next iPad Drawing March 31
Join Our Mailing List


NIH Autism Spectrum Disorder Research:
Imaging & Biomarker Study Seeks Participants Ages 18-45  

Do we see immune differences in the autistic brain? Research seeks to detect and measure an immune target in the brain. Researchers will compare the brain scans of 18- to 45-year-olds with autism to those without autism.

There is no cost to participate. Compensation is provided for participation. Transportation may be provided.

blackAbout Dr. Black: David Black, Ph.D. is a pediatric neuropsychologist and scientist who is a nationally recognized expert on autism spectrum and related disorders. He is also the founder and director of the Center for Autism Assessment and Treatment (CAATonline.com). Dr. Black has spent the last 10 years working clinically with children, adolescents, and adults with autism spectrum disorders. He has focused on the neurocognitive and psychological underpinnings for effective navigation of the social world and the unique challenges inherent in the transition to adulthood.  

 

For information: 

Call: 301-435-8982 (TTY: 1-866-411-1010),

Email:  [email protected]  

Website: Learn More 

 

Please refer to protocol # 11-M-0118

National Institute of Mental Health, National Institutes of Health, Department of Health & Human Services

puzzle pieces
Order a Free Kit Now to Support Research That Makes a Difference 

Perfect fundraiser for the new year-launch your Puzzle-Piece campaign today to promote autism awareness in your community & support ARI. Or order ahead to get ready for Autism Awareness Month coming in April. It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events. Learn More 

research
Keep up with the latest research
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week. A one-year subscription is $20 (US funds; $24 outside the US). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute publishes a free quarterly e-newsletter titled "Clinical Research in Autism." It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
Charity Navigator
Give now to support our work in 2014

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism.    

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

Our urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

 

Ready to give? Donate Now 
From the Director

edelson
Dear ARI Subscriber,

The staff at the Autism Research Institute (ARI) has begun working on many new projects for 2014, as well as maintaining our current ones. Families and people on the spectrum continue to complete our subtype survey, and we are halfway to our goal of 3,000 completed surveys. If you have not yet registered for the survey, we would appreciate it if you could set aside time to help us.  In addition, please let other families know about this survey.  The subtype survey is located at: www.AutismResearchSurvey.com.

I am happy to announce that Spanish, French, and Italian versions of the subtype survey are now available. Most browsers will auto-detect the user's language and automatically present the correct translation. Alternately, users can select a translation by clicking a link at the top of the survey homepage. For more information see the article below.

The winter Olympics are on the minds of many people these days, and Moscow is currently on the minds of ARI's staff.  We are in the middle of planning our second annual co-sponsored conference in Russia.  The conference is scheduled for April 10-12, 2014.  I will share more information about the conference in our March e-newsletter.

And finally, within a few weeks we plan to launch a new survey to study medical problems common in adults on the autism spectrum.  If you are an adult on the spectrum and/or are a parent of an adult on the spectrum, we would appreciate your completing the upcoming survey. We will notify our subscribers when the survey is available online.

Wishing you and your family good days ahead.

 

Stephen Edelson, Ph.D.

Executive Director, Autism Research Institute 

ARI Webinars: Sign Up to Hear Top Experts Online for Free - Ask Your Questions in Real Time

At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can't join us live for the lecture and Q&A on the day a talk occurs, you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz. Check the 2014 webinar schedule  

  

Webinars coming up this month: 

Quick Start Tips for Special Diets 
Join us for Dana Godbout Laake, RDH, MS, LDN 's talk offering helpful strategies for appropriate nutritional support. Dana Godbout Laake is a Licensed Nutritionist providing preventive and therapeutic medical nutrition services. Her practice, Dana Laake Nutrition, is located in Kensington, Maryland. A health professional for more than 38 years with 25 years in medical nutrition, she is an honors graduate from Temple University with a Master's degree in nutrition from the University of Maryland. In addition to media presentations, writing, radio talk show host and providing professional continuing education courses, Dana Laake has been a Maryland Legislative Assistant on health issues and has served three Gubernatorial appointments on health care regulatory boards. Currently she serves by Governor's appointment on the Maryland State Board of Dietetic Practice. Her practice includes the nutritional evaluation and treatment of the full spectrum of health issues affecting children and adults.

Biomedical/Epigenetic approach to targeting treatments for autism and neurodevelopmental disorders
Sign up to join Dr. Robert Hendren
Feb. 26 for a presentation on epigenetics and autism. Robert L. Hendren, D.O., is Professor of Psychiatry and Behavioral Science; Director of Child and Adolescent Psychiatry; Director of the Autism and Neurodevelopment Program, Co-Director of the Dyslexia Center and Vice Chair of the Department of Psychiatry at the University of California, San Francisco. His current areas of research and publication interests are translational clinical pharmacology and nutritional trials using biomarkers (MRI, measures of inflammation, oxidative stress, immune function and pharmacogenomics) in neurodevelopmental disorders. REGISTER 

 

Influencing Language Development with Exercise
Research studies support exercise's role in improved language development. David will share information on his work and success he has had with exercise and enhanced speech. Information will be offered on how to implement a program, including the structure and individual supports needed to challenge your children to reach their potential. Presented by David S. Geslak, B.S., CSCS, Founder & Autism Fitness Specialist at Exercise Connection Corp. Presented in partnership with The Johnson Center for Child Health and Development. REGISTER    
It's not too late to register: New session of online AGI Residential/Daily Living Course Starts this Week

ADDITIONAL SCHOLARSHIPS ADDED:
Thanks to generous donor support additional scholarships have been added for AGI's Daily Living Support course. CEUs are available for support professionals.
Scholarship requests can only be requested and submitted via email to: [email protected].

 

   

Houlton faculty includes recipients of distinguished awards from the National Science Foundation, Ford Foundation, Robert Wood Johnson Foundation, New York Academy of Science, and National Academies of Sciences, among others. The program faculty includes highly experienced practitioners and scholars who have garnered prestigious book awards and research fellowships.
View faculty list
 

 

Cost of the program: $300 (12 modules)

Need CEUs? Continuing education units through Oregon State University are available covering the entire course for a $45 fee - we charge only what we must to cover our costs.

 

Have questions? Email

or call 1855HOULTON to learn about enrollment.   

Missed a Presentation? It's Not Too Late:
Webinar Recordings Now Online 

TITLE
PRESENTER
WATCH NOW
ABCs of Healing


Maya Shetreat-Klein, MD


Post-Secondary Transition 
David Black, PhD

ASD & Brain Health

Martha Herbert, MD, PhD

Symphony for Success*
Kelly Barnhill, MBA, CN, CCN
Summer Camps for Special Needs Families*
Nisey Webb
* Presented in Partnership with The Johnson Center for Child Health & Human Development
Help Research That Makes a Difference: Complete the Subtype Survey for a Chance to Win an iPad 

Translations Added: The survey is currently available in English, French, Spanish and Italian.  

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.

 

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com 

 

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation:
Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.


ipad Enter to Win: Survey iPad Giveaway March 31st:
All participants who have completed the survey between Nov. 1, 2013, and 11:59 p.m. Pacific Time March. 30, 2014, will be entered for a chance to win an iPad in our next drawing. Past winners are not eligible for additional prizes.


Where:
International - this study is open to participants worldwide.

When:Data collection is ongoing, and the next iPad drawing will take place on March 31, 2014. The winner of the drawing will not be announced publicly.    

 

Take the Subtype Survey