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January 2014  

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In This Issue
Biomarker Study Seeks Participants
Tell Us What Topics You Hope To See in Upcoming Webinars
Gear Up for Your Autism Awareness Month Campaign
NEW DATE: AGI Course Start in February
New iPad Drawing Announced: Complete Subtype Survey by Jan. 31st
New Videos: Educator's Role in Medical Intervention and Family-Centered Planning
Join Our Mailing List


NIH Autism Spectrum Disorder Research:
Imaging & Biomarker Study Seeks Participants Ages 18-45  

Do we see immune differences in the autistic brain? Research seeks to detect and measure an immune target in the brain. Researchers will compare the brain scans of 18- to 45-year-olds with Autism to those without Autism.

There is no cost to participate. Compensation is provided for participation. Transportation may be provided.

blackAbout Dr. Black: David Black, Ph.D. is a pediatric neuropsychologist and scientist who is a nationally recognized expert on autism spectrum and related disorders. He is also the founder and director of the Center for Autism Assessment and Treatment (CAATonline.com). Dr. Black has spent the last 10 years working clinically with children, adolescents, and adults with autism spectrum disorders. He has focused on the neurocognitive and psychological underpinnings for effective navigation of the social world and the unique challenges inherent in the transition to adulthood.  

 

For information: 

Call: 301-435-8982 (TTY: 1-866-411-1010),

Email:  AutismBrain@mail.nih.gov  

Website: Learn More 

 

Please refer to protocol # 11-M-0118

National Institute of Mental Health, National Institutes of Health, Department of Health & Human Services


We've reached tens of thousands of viewers with our online education events and webinars in 2013 and look forward to expanding our offerings in the year to come. We'd like your input as we continue to add speakers and topics.

'Wider World' video featuring runner with ASD now online
 
In last month's enewsletter we mentioned PBS would be running a story on Scott Howse, a cross-country runner at Schoolcraft Community College in Livonia, MI who was named the team's most valuable runner and is diagnosed with ASD. Here's the clip in case you missed it. Watch Now
puzzle pieces
Order a Free Kit Now to Support Research That Makes a Difference 

Perfect fundraiser for the new year.  Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI.  Or order ahead to get ready for Autism Awareness Month coming in April. It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events. Learn More 

research
Keep up with the latest research in print & online 
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week.  A one-year subscription is $20 (U.S. funds; $24 outside the U.S.). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute  publishes a free quarterly e-newsletter titled 'Clinical Research in Autism.' It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI. READER REVIEWS
From the Director

edelson
First, the staff at the Autism Research Institute would like to wish everyone a happy and joyous new year.  We also want to thank those who sent us a donation to support our projects and initiatives. If you have not yet read our two-page document titled The Expanding Mission of ARI, please do so. I think you will be impressed at how much we contribute to the autism community. Learn More

 

As mentioned in previous emails, we are excited about our new survey to determine whether there are subgroups of autism. If we can replicate our previous findings, which were based on over 40,000 cases, these results will help provide needed insight into the underlying causes and most effective treatments for those on the autism spectrum. Your participation is greatly appreciated. You can learn more about the survey below.

 

Again, I hope 2014 will be a good one for all of us!

 

Stephen Edelson, Ph.D.

Executive Director, Autism Research Institute 

ARI Webinars: Hear Top Experts Online for Free 

At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can't join us live for the lecture and Q&A on the day a talk occurs, you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz. Check the 2014 webinar schedule  

  

Webinars coming up this month: 

Medical Updates: The ABC's of Healing 
Join us for Maya Shetreat-Klein, M.D.'s  overview on treating individuals with ASD from a functional medicine approach, stage by stage, with many specific examples of therapies as well as the science behind their effectiveness. Dr. Klein will also address the interaction between treatments with genetics, and how specific therapies can actually modulate genetic expression to improve clinical symptoms. REGISTER
Note: This March, Dr. Shetreat-Klein will be offering a follow-up to this talk, focusing on PANS/PANDAS check out the ARI Education Hub for information

What Comes Next? Post-Secondary Transition Planning
Sign up to join Dr. David Black
on Jan. 22 for a presentation on post-secondary transition. Young adults with autism spectrum disorders often have difficulty navigating the practical aspects of day-to-day living and the transition to college. These challenges often include trouble in the areas of executive functioning, social cognition, and adaptive functioning. We will focus on what underlies these challenges and discuss a number of practical solutions.
REGISTER
Note: an earlier email lacked updated information about Dr. Black's work and affiliations - we apologize for any confusion - an updated description is included in the NIH article in the left-hand column of this enewsletter.
 
A Whole Body Approach to Brain Health 
Tune in for this webinar with Dr. Martha Herbert as she  discusses autism as the result of a cascade of events, many seemingly minor: perhaps a genetic mutation, some toxic exposures, a stressful birth, a vitamin deficiency, and a series of infections. She'll address  physical symptoms - including diarrhea, anxiety, sensory overload, sleeplessness, immune challenges, and seizures- as vital clues to what the underlying problems are, and how to help. REGISTER  
NEW DATE: Register now for next session of online AGI Residential/Daily Living Course - CEU available

kira "Having well-trained direct-support providers is frankly the key to having a successful life for me and others like me. Two new direct-support providers who joined my team had the opportunity to take the online AGI Residential/Daily Living Support course. They learned more about autism then I could kindly teach them." - - Jeremy Sicile-Kira  READ MORE

 

Starting Sunday, February 16, ARI's Autistic Global Initiative and the Houlton Institute will launch the next session of an online course emphasizing foundational knowledge and competencies needed to support adults with autism in daily living settings. Participants will learn to develop an individualized portfolio of evidence-based supports and strategies for people with autism or related disabilities. The course is designed for families, support providers, and anyone in a support role.

 

agi Our AGI Residential/Daily Living Courses occur exclusively online. The curriculum, replete with tools you can implement immediately, was developed by the Autistic Global Initiative (AGI), a division of the Autism Research Institute that builds new solutions for the growing number of adults with autism. Funded by a grant from Autism Speaks, the course is designed for parents and direct support providers; it allows them to work at their own pace, yet participate with fellow learners in an environment that is led by a professor.

 

Houlton faculty includes recipients of distinguished awards from the National Science Foundation, Ford Foundation, Robert Wood Johnson Foundation, New York Academy of Science, and National Academies of Sciences, among others. The program faculty are highly experienced practitioners and scholars who have garnered prestigious book awards and research fellowships.
View faculty list
 

 

Cost of the program: $300 (12 modules)

There are also a limited number of scholarships available for those who qualify. Need CEUs? Continuing education units through Oregon State University are available covering the entire course for a $45 fee - we charge only what we must to cover our costs.

 

Have questions? Email

or call 1855HOULTON to learn about enrollment.   



surveyComplete the Subtype Survey By Jan. 31 and you'll be entered for a chance to win an iPad   

 

Last fall's subtype survey drawing received such a positive response that we decided participants - and those who needed more time during the busy holiday season - deserve another opportunity. 

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.

 

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com 

 

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.

ipad

Enter to Win: Survey iPad Giveaway January 31st:
 
All participants who have completed the survey between Nov. 1, 2013, and 11:59 p.m. PST Jan. 30, 2014, will be entered for a chance to win an iPad.


Where:
International - this study is open to participants worldwide.

When: Data collection is ongoing, but the iPad drawing will take place on January 31, 2014. The winner of the drawing will not be announced publicly.

 

Take the Subtype Survey 

 
New presentations and Webinars from late 2013 online - watch them now for free 

TITLE
PRESENTER
WATCH NOW
How to Respond When Asked about Diets for ASD*


Kelly Barnhill, MBA, CCN, CN
K Barnhill, CCN, CN - How to Respond When Asked about Diets for ASD
Overview of CAM for ASD and how the Educational Team Can be Involved*
A Carine, MD - Medical Issues and the Educator's Role
Panel Discussion: Collaboration between Parents, Clinicians, and Educators for Care of a Child with Special Needs*
Kelly Barnhill
Ali Carine
Christine Muczyk
Q&A: Parents, Clinicians & Educators as Collaborators
Family-Centered Transition Planning 
David Hagner, Ph.D. & Alan Kurtz M.Ed.
* Recorded November, 2013, at Ohio Center for Autism and Low Incidence

Give now to support our work in 2014

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism.    

 

Advancing the research agenda while providing the latest science-based information for people of all ages on the autism spectrum is our focus at the Autism Research Institute. We do so through our annual think tank, in-person and online educational events and courses, free webinars, and by funding the studies that hold the most promise for making a difference in the lives of people with autism.        

 

Charity NavigatorOur urgent goal is to democratize access to the latest information for parents and professionals around the world through our efforts, made possible thanks to supporters like you.   

 

Ready to give? Donate Now