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November 2013 

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In This Issue
Missed a Webinar? Not too late - watch replays now
Archives: Munchausen Syndrome Debunked
Join Our Mailing List
Free webinar Nov. 6th  
'Ask the Nutritionist' - with Liz Lipski, PhD


Have questions you'd like to ask a nutritionist? Struggling to navigate diets and GI symptoms for yourself or your loved one on the autism spectrum? Join us next Wednesday for your chance to pose questions for free in real time.
LEARN MORE & REGISTER
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI.
READER REVIEWS
elearn
Visit ARI's Online Learning Hub
Last summer we launched an exciting new educational gateway - our webinar hub - offering free live and archived learning events. The interface includes continuing education options for professionals, and represents our first steps toward our commitment to help more families and serve our community better by focusing on providing online education. 
See Archives & Full Webinar Schedule

We are grateful to our friends at the Johnson Center for Child Health & Development for their partnership on many of these presentations.
research
Keep up with the latest research in print & online 
A cornerstone of our mission at ARI is to stay abreast of the latest scientific research. Keep up-to-date with these two publications: 

Autism Research Review International
The latest findings are gleaned from a computer search of the 25,000 scientific and medical articles published every week.  A one-year subscription is $20 (U.S. funds; $24 outside the U.S.). Each issue is sent via first class mail.
View Archives & Subscribe

Clinical Research in ASD
In collaboration with the Schafer Autism Report, the Autism Research Institute  publishes a free quarterly e-newsletter titled 'Clinical Research in Autism.' It provides online links to up-to-date clinical research related to patient care, and is for pediatricians, nurses and obstetricians.
Read Past Issues & Sign Up
puzzle pieces
Order a Free Kit Now to Support Research That Makes a Difference 

Launch your Puzzle Piece campaign today to promote autism awareness in your community & support ARI.  It's so easy: we send you a free kit with everything you need - you simply pass it around the office, take it to local stores, or sell pieces at meetings and events.
Learn More 

From the Director

Edelson
This is a particularly busy time of the year for ARI, as we are uploading various language translations of the Autism Treatment Evaluation Checklist (ATEC) to www.autism.com. We've also been continuing our
webinars, planning a think tank in Boston next month, organizing a new website on employment, finishing up the next issue of our hardcopy science newsletter, and much more.   

Finally, we proudly announce the launch of an exciting new survey investigating autism subtypes. We need as much data as possible and encourage you to participate. Participants who complete the entire online survey form during the month of November will automatically be entered in a contest to win an Apple iPad.

To learn more and assist with this very important investigation to help  research that makes a difference, see the article below. 


Stephen Edelson, Ph.D.

Executive Director, Autism Research Institute 



Parents & Caregivers Urged to Complete Updated ARI E-2 Survey to Identify Autism Subtypes   

 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.

 

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com 

 

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype. 


Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.

ipad In addition, participants will be entered in a contest to win an Apple iPad. Note: one entry per individual with ASD. Drawing is Dec. 1, 2013.


Where:
International - this study is open to participants worldwide.

When: Starts November 1, 2013 - data collection is ongoing, but the iPad raffle will take place on December 1st, 2013. The winner of the drawing will not be announced publicly.

 

Take the Subtype Survey 

 
Missed a Recent Webinar?  
Watch the Playback - It's Free

At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can't join us live for the lecture and Q&A on the day a talk occurs, you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz.

Register now for an upcoming webinar

TITLE
PRESENTER
WATCH NOW
 
 

 

"Ask the Physician" - Live Q&A
Nancy O'Hara, MD
Ask The Physician - N O'Hara, MD

Food as Information: Food that Heals, Food that Hurts


Liz Lipski, Ph.D, CCN, CHN
L. Lipski, PhD - Nutrition, Epigenetics & GI Biome

Time Management and Organization for the Special Needs Family* 

Anissa Ryland
Webinar: Time Management and Organization for the Special Needs Family, Oct 15th 2013

* = Presented in partnership with The Johnson Center for Child Health and Development.
From our Archives:
Former Law Professor Debunks Munchausen Syndrome By Proxy

In recent years, several mothers in the autism community have been accused of Munchausen Syndrome By Proxy (MSBP), in which the mother is thought to be imagining the medical problems in her son/daughter. Former law professor Dr. Bill Long wrote a review paper for lawyers and judges on MSBP. Dr. Long's Executive Summary is below.

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MUNCHAUSEN SYNDROME BY PROXY ("MSBP")/FACTITIOUS DISORDER BY PROXY ("FDBP") 
A Guide for Judges, Lawyers, and Parents
Dr. Bill Long;
drbilllong@gmail.com 
Executive Summary

For more than 30 years prosecutors, social workers, and many mental health professionals have used a diagnosis of MSBP/FDBP as a means of taking children from their caregivers and then, often, bringing charges against the caregiver for abusing the children. At the heart of MSBP/FDBP is the allegation that the caregiver (usually the mother) is either lying about the medical symptoms experienced by the child or has induced real symptoms through poisoning or other injurious actions against the child. Why would the mother/caregiver do such a thing? Those who "believe in" the diagnosis argue that she does so in order to get attention from the medical community, often for unmet needs in her own life. Thus, the heart of a MSBP/FDBP allegation is that the mother or caregiver is secretly "working the system" and trying to deceive multiple levels of medical staff as she goes about her nefarious design of injuring and perhaps even killing her child. Because the allegation of MSBP/FDBP relates to child endangerment, it has been a "hot button" sub-issue in the larger world of child abuse that has been at the fore of American social services and law in the past generation...

Read the Summary on autism.com 
donate

Support Research That Makes a Difference  

 

We know you'll be hearing from many worthy charities launching year-end giving campaigns in the weeks to come, and we hope you'll include ARI on your list.  As part of our commitment to following the science wherever it leads, ARI does not seek or accept sponsorships or donations from special-interest groups, insurance companies, pharmaceutical companies or the government.

Charity Navigator In 2013, ARI has once again received the  "Four-Star Award" by Charity Navigator for sound fiscal management, accountability, and transparency.   

   

Ready to give? Donate Now
 
    
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