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September/October 2013 

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In This Issue
Launch Your Puzzle Piece Campaign
Editorial: Parent Stress & ASD
New Recommendations for Seizures
Missed a Webinar? Not too late - watch replays now
Success Stories: Meet Noah & Hope
Join Our Mailing List
  
Free webinar Wed. Oct. 23
Ask the Clinician - with Nancy O'Hara, MD

Have questions you'd like to ask a physician? Struggling to navigate evidence-based treatment for yourself or your loved one on the autism spectrum? Join us next Wednesday for your chance to pose questions for free in real time.
LEARN MORE & REGISTER
See all upcoming webinars
Updated Translation Pages on Autism.com
We've spent the last few weeks updating tools and content on Autism.com, including our translations. 
Be sure to share with contacts abroad seeking information. Articles are linked from our homepage www.autism.com 
Available for shipment worldwide
Nutritional Supplement Use for Autistic Spectrum Disorder
Our Price: $25.00
Buy Now

About the author: Dr. Jon Pangborn, a biochemist and  certified clinical nutritionist (and a longtime friend of ARI), has written a book describing supplements that might be useful for people with ASD--and he has graciously donated proceeds from the book to ARI.
READER REVIEWS
elearn
Visit ARI's New Online Learning Hub
Earlier this summer we launched an exciting new educational gateway - our new webinar hub - offering free live and archived learning events. The click-and-go interface includes continuing education options for professionals, and represents our first steps toward our commitment to help more families and serve our community better by focusing on providing online education for parents and professionals alike.

NEW
: Since September, ARI webinar attendees have been able to receive a Certificate Of Attendance for selected sessions.  These certificates are provided free to attendees upon completion of a short post-webinar quiz.
 
See Archives & Full Webinar Schedule

We are grateful to our friends at the Johnson Center for Child Health & Development for their partnership on many of these presentations.
puzzle piece 
Support Research That Makes a Difference
ARI's work relies on charitable contributions from concerned individuals and organizations. We are proud to again receive the 'Four Star Award" from Charity Navigator for sound fiscal management. All donations are tax deductible; ARI is a 501(c)(3) organization, Fed ID No. 95-2548452.

 
Charity Navigator  
From the Director

Edelson

We congratulate Dr. Jim Adams and his dedicated staff for organizing another successful "Zoowalk for Autism Research," co-sponsored by the Arizona St. University Autism/Asperger's Research Program and the Autism Research Institute. As many of you know, this kind of event involves a great deal of hard work and dedication, and the Zoowalk was truly a labor of love.

 

Many of you have attended one of our webinars this year. The feedback has been very positive, and I would like to thank our speakers, ARI staff, and the staff at The Johnson Center for Child Health and Development for organizing them. You can view a list of the upcoming and past webinars at:  

www.ariconference.com.  

 

Stephen Edelson, Ph.D.

Executive Director, Autism Research Institute 

Excerpt From the Autism Research Review International
Recent stories in the media have brought attention to stress associated with the financial and physical demands on caregivers providing long-term care for loved ones. Families supporting individuals with autism are at risk for common caregiver stressors like isolation, traumatic stress, and exhaustion but supporting loved ones with this particular disease also presents its own set of unique challenges.The editorial below appeared in its entirety in the Fall 2013 Autism Research Review International (ARRI) - ARI's printed newsletter. Learn more and subscribe

Editorial: Parental Stress & Autism Spectrum Disorders

JJohnson 

By Jane Johnson,
Managing Director, Autism Research Institute 

 

The stresses involved in raising a child with autism are considerable. Inadequate support from family members, friends, and the community, and the difficulty of coping with aberrant behavior (e.g., aggression, self-injury) contribute to stress levels that are well documented in the research literature. Yet I feel that a significant issue has been overlooked: the sense of anguished powerlessness a parent feels as he or she bears witness to their child's pain and distress.

 

In spite of their communication challenges, it is clear that many children and adults with autism suffer emotionally from anxiety, sensory dysfunction, and/or depression, as well as physically, with seizure disorders, sleep disturbances, gastrointestinal disorders, metabolic dysfunction, hormonal imbalances, allergies, asthma, and/or eczema (Bauman 2010).

 

Two studies have shown that parents perceive their autistic child's health-related quality of life (HRQoL) as poorer than that reported by parents of children with any other chronic condition, such as asthma, diabetes, ADHD, ODD, anxiety disorders, PTSD, and depression (Bastiaansen 2004, Kuhlthau 2010). In addition, young adults with autism self-report lower HRQoL than any other group except those with schizophrenia (Kamp-Becker 2011). 


New Recommendations on Treatments for Seizures for ASD

Approximately one-third of those on the spectrum suffer from seizures.  The article titled "A review of traditional and novel treatments for seizures in autism spectrum disorder: Findings from a systematic review and expert panel" was recently published in Frontiers in Child Health and Human Development, available for no charge.  

Learn More

 

Did You Miss a September Webinar? It's Not Too Late - Watch the Replay Online

At the Autism Research Institute we have focused on providing information that is unbiased and broad-reaching, to assist families in making informed treatment decisions. If you can't join us live for the lecture and Q&A on the day a talk occurs you can catch the replay online. Free certificates of participation are available for select talks upon completion of a brief knowledge quiz.

Register now for an upcoming webinar

TITLE
PRESENTER
WATCH NOW

Inflammation,
Temperature &
Therapeutics

Eric Hollander,
MD
E Hollander, MD: Inflammation, Temperature and Therapeutics

Toilet Training:
The Good, The
Bad & The Ugly*

Regan Roth
Fitzgerald, MED, BCBA
Webinar: Toilet Training: The Good, The Bad, and The Ugly, Sept 17, 2013

Feeding Issues in
People With ASD*

Melissa Olive,
PhD, BCBA-D

Webinar: Feeding Issues in People with ASD, Oct 1 2013

Carmen Arroyo
Otero, MD

Transitions for
Adolescents and
Young Adults
with ASD, Part 1* 

Claire Schutte, 
Ph.D., BCBA-D
Webinar: Transitions for Adolescents and Young Adults with ASD, Part 1: Overview, Sept 3, 2013

* = Presented in partnership with The Johnson Center for Child Health and Development.
Puzzle Piece Success Story: Meet Noah and Hope
puzzle 
Siblings Noah and Hope Gillis on World Autism Awareness Day 2013. In honor of Noah, Hope proudly displays the Autism Research Institute donations she collected in lieu of gifts for her fifth birthday.

"(My daughter) Hope Gillis cheerfully agreed to collect charitable donations instead of gifts for her birthday this year. When asked where the donation should go, she said: 'people who have autism, like my brother, Noah.' We shared a variety of non-profits/missions with her - local to national. Without hesitation, Hope chose Autism Research Institute 'because they do science.' Our hearts soared!

Indeed, ARI was a first resource for our family after receiving Noah's autism diagnosis in November, 2008. Fast forward to now and you'll find an outstanding kid performing independently in his second grade regular education class. Autism is treatable!"

Jenna Gillis (Mom)
Summerville, SC

We are grateful to the Gillis family and all of our puzzle-piece campaigners. Thank you for your ongoing support for research that makes a difference!

Read more success stories
Order your free Puzzle Piece Campaign Kit 
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