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May 2011

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In This Issue
Sell Puzzle Pieces for Research
New Apps for the SAR
Families Come Forward About Vaccine-linked ASD
Parent Connection: Find Support in Atlanta
New Book to Benefit Autism Organizations
Events in the Community

ARI Shield Logo

Save the Dates!

Fall 2011 Conference   

Level 1 & 2 Practitioner Seminars, General, Nutrition & Science Sessions
Las Vegas Hilton 

October 13-16 
Registration opens
in early July
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Spring 2012 Conference 

Level 1 & 2 Practitioner Seminars, General, Nutrition & Science Sessions
New York/New Jersey 

April 26-29
Registration opens
in early January
 
 
Want to see what happens at the Conference?
View free lectures from past conferences online - including the latest lectures from our Fall 2010 Conference in Long Beach
 
 
 
Find us on Facebook
Follow us on Twitter

puzzle pieces
Sell Puzzle Pieces to Support Research that Makes a Difference

 

In preparation for National Autism Awareness Month 2011, we distributed 15,800 additional puzzle pieces.  In the past couple of weeks, we have forwarded an additional $4,388 to the Autism Research Institute.  Total donations forwarded to ARI for the Autism Puzzle Pieces is now at $124,014.55!

 

We live with autism every day of every year.  I wish to remind folks that the Puzzle Pieces Project is a year round project.  It's never too late to join the effort to fund badly needed autism research.  It is up to those of us who care about someone with autism to see that large scale independent research studies are funded.  There are important questions to be answered!

 

There are so many ways to distribute the puzzle pieces; everyone can find a way to participate.  If you have participated before, join us again!  The small quick stop where I buy a coke each day has loyally distributed the puzzle pieces since 2008!

 

We have an updated Professional booklet that can be taken to any business to solicit their involvement.  I'm working on three local businesses (large and small) just now.  I REALLY wish that we could get a national chain or national celebrity to support our cause.  If anyone has a connection to a national business or a well known celeb, please let me send you information to present to them.   

 

Remember this is an ALL-VOLUNTEER effort and every penny of every dollar raised goes directly to the Autism Research Institute.

 

Lynda Huggins,

Parent & Chairman

Million Dollar Puzzle for Autism Research

  

Schafer Autism Report - New App on iPhone, iPad

 

From iTunes:  The Schafer Autism Report (SAR) app provides a digest of the latest relevant news and developments about autism in an e-newsletter format.  SAR has been a main resource for families and professionals in the autism community since 1998.

 

Some of the topics covered in the SAR e-newsletter include: the latest research on underlying causes, including genetics and environmental toxins, behavioral and biomedical interventions, public health policy, insurance coverage, education and news of the individuals (children and adults) and families affected by autism, and other relevant subjects.

 

The SAR e-newsletter is independent, non-profit, without advertising and is published two to three times a year.

 

Editors note: you can also subscribe to the SAR report on your computer by visiting www.sarnet.org 

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Director's Note
edelson

April's Autism Awareness month brought much media attention to the challenges associated with autism.  Talk is nice, but in fact what is needed is action on all fronts: effective treatments, solutions to the adult crisis, and of course, the underlying causes of autism.  Every day more professionals, parents, and young people and adults on the autism spectrum are stepping up to the plate to deal with these issues head on.  This is truly a team effort, and everyone can make a difference.  Remember, we're all in it together!

 

Several people at the conference approached staff and me to clarify the recent changes at the Autism Research Institute.  We recently posted online an editorial of mine about ARI's transition to better meet the needs of the autism community. Visit ARI's homepage and click on the link titled 'Following Dr. Bernard Rimland's Vision.


ARI's conference earlier this month in Atlanta was exciting; we expanded the topics to now include education, sensory, adults, and insurance coverage, as well as behavioral, medical, and nutrition.  One of the attendees wrote: "This is a great conference with amazing speakers. The research, the clinical experience, the personal viewpoints on the adult track, the nutrition information....it's a great all-encompassing conference. The amount of material covered was fabulous."  The presentations will be posted on our website within a couple of months.  

 

Take care,

Steve Edelson, PhD 

Executive Director,

Autism Research Institute

 

Families come forward about compensation awarded for brain injury caused by vaccines

paceA two-year investigation of the records of the Vaccine Injury Compensation Program published this week in Pace University's Environmental Law Review suggests that the US federal government has compensated cases of vaccine injury in which autism was one of the outcomes. 

 

The study authors presented their findings at a press conference in Washington D.C. Tuesday and urged congress to investigate why the federally-funded Vaccine Injury Compensation Program (VICP) has been awarding damages for vaccine injury to children with brain damage, seizures and autism while publicly denying a vaccine-autism link. According to the article, autism was diagnosed in 62 of the 150 cases in which families came forward about their settlements.

 

Read the entire article: Unanswered Questions from the Vaccine Injury Compensation Program: A Review of Compensated Cases of Vaccine-Induced Brain Injury, by Mary Holland, Louis Conte, Robert Krakow, and Lisa Colin 

  

Reflections: Wrapping up the Spring Conference
atlanta
Photos courtesy of Bradley Puddephatt
It was nice to be able to ask knowledgeable professionals questions as we get started on our treatment journey! Their encouragement was a big help. Thanks!
- Tonya Garrick

I find my reflections on the conference difficult to put into words other than "amazing", the presentations and the level of scientific expertise was far above my expectations as compared to other medical conferences and seminars I have attended.

- Safiya Fox, N.D.

The Spring 2011 ARI Conference (my first), was a remarkable experience. This conference is a must-do for every parent, caregiver, and physician whether you are new to autism or well on your way. I not only obtained great, practical information and made new friends in the autism community but now, as a mother, I know that I really am doing everything I can for my child. That piece of mind is priceless!
- Reece's Mom
 

 

Videos and audio files from the conference will be available on the autism.com web site in the weeks to come - we will send an announcement when they are available for viewing

New Book to Benefit Autism Organizations 

Steve Edelson and Bill Long recently published a poetry book, along with commentary, titled Movement in Confined Spaces.  The book is available for Kindle and iPad users. Note: iPad users need to download the Kindle app.  The book contains 125 reflections about life itself.  A portion of the proceeds will be donated to ACT! Today, the Autistic Global Initiative, the Global Autism Alliance, the Global Autism Collaboration, and TACA. 

Read an excerpt and learn more online

Events in the Community ...
  

ARI Shield Logo

Fall 2011 ARI Conference 

DATES: Oct. 13-16

 

LOCATION: Las Vegas Hilton


Follow the latest science on evidence-based medical treatments for ASD. Level 1 & 2 Practitioner Seminars,
Parent, Diet, Adult, & Science Sessions

 

Registration opens in early July

    

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UCSD Event in Collaboration with IMFAR May 11 

On Wednesday, May 11, the University of California, San Diego is hosting a one-day community conference in collaboration with the International Meeting for Autism Research (IMFAR). 
Learn more

 

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Greater Phoenix Autism/Asperger's Conference   

DATES: May 13-14

LOCATION: Scottsdale Bible Church

 

Featured speakers include: 

  • Diana Henry, MS, OTR/L, FAOTA, Friday Keynote

    Systems change occurs when everyone on the team, including family, school and community providers "owns" a piece of the sensory puzzle. Putting the pieces together requires collective team empowerment. Diana will share how she encourages every person in the child's life to join in.  

  • Sean C. Barron, Saturday Keynote

    Sean is Co-Author with Temple Grandin of the

    Unwritten Rules Of Social Relationships: Decoding Social Mysteries Through the Unique Perspectives of Autism. Hear his share personal stories to explain the 10 unwritten rules and patterns of social relationships and why they're important.

Learn more about the 2011 Greater Phoenix Autism/Asperger's Conference 

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Autism OneAutismOne & Generation Rescue Present: Autism Redefined - Recovery on a Budget


DATES:
May 25-29

LOCATION: Westin Lombard Yorktown Center,

70 Yorktown Ctr., Lombard, IL

 

Registration & Information  

 

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Charity concert June 4th in San Diego

Jazz prodigy, Matt Savage, returns to San Diego for a special charity concert on Sunday, June 4, 2011, from 2p to 4p at the Birch North Park Theatre. Visit www.compassfamilycenter.org to learn more about this very special concert.

 

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Your Healing Retreat  

healingPractical Solutions for Families and Primary Care Providers Dealing with Autism Spectrum Disorders, Learning and Attention Problems

DATES: June 3-5
LOCATION: Kanuga Retreat Center in Hendersonville, NC

An integrative approach for families and primary care providers dealing with autism, learning and attention disorders.
More information

 

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UK Autism/Asperger's Workshop focuses on Medical, Nutritional & Dietary Challenges and Treatments

 aca

Two great locations for parents, professionals and people on the spectrum: 

  • London 16, July 2011
  • Sunderland 23, July 2011

Price: 75.00, 60.00 2nd person

 

Join us for research this one-day workshop offering updates on causation, seizures, and effective medical and nutritional support from Prof. James Adams, director of Arizona State University's Autism/Asperger's Research Program.

 

Conference Schedule 

Download the Printable Brochure  

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