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December 2010

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In This Issue
GAC continues to grow worldwide
ARI names Dr. Jill James to Advisory Panel
CAARC working for 2011 U.S. autism legislation
Sell Puzzle Pieces for Research
Events in the Community

ARI Shield Logo

Spring 2011 Conference
Level 1 & 2 Practitioner Seminars, Parent & Science Sessions
Atlanta, GA

April 28-May 1, 2011

Information & Registration online starting in January 
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Save the date!
Fall 2011 Conference

Las Vegas, NV
Oct. 14-17

Want to see what happens at the Conference?
View free lectures from past conferences online - including the latest lectures from our Spring 2010 Conference in Baltimore


 
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Follow us on Twitter
gac
GAC Bringing Together Autism Organizations
Last October, we launched the Global Autism Collaboration. The collaboration is a network of not-for-profit autism organizations, with the primary purpose to share information with one another.  You can learn more about the collaboration at: www.GlobalAutismCollaboration.com and by watching Dr. Edelson's YouTube video.


Our initial goal was to recruit 50 group members by the end of this year, and reach 200 members by the end of 2011.  To our surprise, more than 50 applications have already been submitted, and we expect many more in the coming months.


Note that for those groups planning to apply to the Global Autism Collaboration, application review might take up to 12 weeks.


encyclopedia

Lewis & Seroussi's dietary intervention overview available for free download

Authors Lisa Lewis PhD and Karyn Seroussi have made the entire first section of their book, The Encyclopedia of Dietary Interventions, available for free.

 

Visit the book's page in the Amazon Kindle store and click 'Send Sample Now' to deliver it to your Kindle.

 

Don't have a Kindle?
Download to your PC using Amazon's Kindle for PC app (free download ).

page
Musician Gregory Page donating portion of  Smart Phone proceeds to ARI

A smart phone app on Gregory Page, one of San Diego's most popular singer-songwriters, premiered earlier this month and is available on iPhones/ iTouches/ iPads and on Android phones for no charge.  The app contains album information, lyrics, videos, photos, and more.  Gregory's most recent album, Once & For All was recorded by famous singer and songwriter, Jason Mraz.


Gregory has been a supporter of ARI for many years.  Mark Rimland, the son of ARI's founder, is close friends with Gregory.  In fact, two of Mark Rimland's paintings adorn Gregory's album covers.  In addition, Gregory wrote a song about Mark titled All Make Believe. Click on the link to listen to the song.  A portion of the proceeds from the sales of Gregory's albums are donated to ARI.

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Autism Society of America 

Autism One

Medigenesis: A New Beginning in Medicine

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NAA

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Schaefer Autism Report

TACA

Treating Autism

Unlocking Autism

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The Autism Research Institute collaborates with autism groups abroad:

Defeat Autism Now! - Europe
(Bologna, Italy)

Canada

France
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Join Our Mailing List
From the Director:
dr. edelson

We're in the midst of the holiday season, and I hope everything is going well.  One of ARI's core staff members, Matt Kabler, is returning to work this week after an illness.  Welcome back Matt!

 

In other holiday-related news, Carnie Wilson, celebrity performer, just launched an online shopping mall, and she is supporting our research efforts by donating a portion of the sales to ARI.  If you plan to shop for holiday gifts on the Internet, please consider shopping at Carnie Wilson's Online Mall.

 

If you live in or near San Diego, please stop by the Edgeware Gallery to view our current show, Christmas in New York.  We sell a variety of art-related gifts including jewelry, note cards, apparel, memorabilia, and more. One hundred percent of the net proceeds benefit the Autism Research Institute. You can learn more about the gallery and its hours of operation at www.EdgewareGallery.com.

 

The end of the year is just around the corner, and I hope you will consider contributing to ARI.  We have accomplished a great deal in 2010.  You can read a summary of our accomplishments on ARI's website. In addition, for the sixth straight year we have been awarded Charity Navigator's highest four-star rating for fiscal management. You can make a donation online or by mailing a donation to: Autism Research Institute, 4182 Adams Ave, San Diego, CA  92116.  Thank you in advance for your consideration.

 

Wishing you the happiest of holidays.

Steve Edelson, Ph.D.
Director, Autism Research Institute
 


Welcome Back: ARI Operations Director Matt Kabler
matt
The ARI team is so glad to have Matt's smiling face back in the office this month. He sends a brief message of thanks to everyone for their caring thoughts and support these past few months:
 
It is great to be back at ARI!  I would like to thank all of my many, many well wishers -- I truly felt your support and know it played a major role in my recovery.


Thank you,

Matt

ARI Names Researcher Dr. Jill James to its Scientific Advisory Panel


james

Dr. Jill James has agreed to co-chair the Autism Research Institute's Scientific Advisory Panel (SAP).  The SAP chooses presentations for the ARI think tank and for the science track of our conferences, and guides science-related decisions at ARI.  Professor Jim Adams, co-chair of the SAP, commented, "Jill James has done extraordinary work in establishing methylation, glutathione, and oxidative stress problems in children with autism, and in demonstrating that folinic acid and methyl-B12 supplementation is largely able to correct those problems. This is some of the most important work done in both finding metabolic problems in children with autism and in determining how to treat them." 

Dr. James is a Professor in the Department of Pediatrics, Section of Developmental Disabilities, and the Director of the Metabolic Genomics Laboratory at the Arkansas Children's Hospital Research Institute.  She received her B.S. degree in Biology from Mills College, and her Ph.D. degree in Nutritional Biochemistry from UCLA.  Her research career has been devoted to defining gene-nutrient interactions that increase susceptibility to cancer, Down syndrome, birth defects, and most recently, autism.  She has published over 130 peer-reviewed papers and recently received the American Society for Nutritional Sciences award for innovative research contributing to the understanding of human nutrition.  She is currently funded by a five-year NIH grant entitled "Metabolic biomarkers of autism: predictive potential and genetic susceptibility," a grant for the Department of Defense entitled "Autism as a vulnerability phenotype," and a grant from Autism Speaks for the "Arkansas Autism Treatment Network"; she is also conducting a double-blind placebo-controlled study of broad spectrum vitamin and mineral supplementation in children with autism. 

Dr. James said, "I am excited to have this opportunity to work with the dedicated physicians and scientists on the SAP to keep raising the bar for science at ARI."

CAARC advocates for autism legislation aimed at immediate relief and future prevention


Four years ago, Congress passed S 483, "The Combating Autism Act of 2006," authorizing more than $700 million dollars through 2011. On September 30, 2011 the sun will officially set on S483 and any new Federal autism spending must be authorized under new legislation. 

 

The Combating Autism Act Reauthorization Coalition (CAARC) represents thousands of families from all walks of life, whose children range from toddlers to adults, and who have diverse needs, but share the common goal of improving the lives of their loved ones with autism.

 

Together, we can design and reauthorize the best possible federal legislation that provides critically needed direct services along with usable research that can address both the immediate needs of individual with autism and their families, and help prevent new families from facing the costs, health burdens and lost opportunities that come with an autism diagnosis.  We invite you to join us in this opportunity to meet the needs of Americans with autism. We are advocating for legislation that will:

  • Recognize that our country faces a national public health emergency.
  • Direct increased resources for a lifespan of autism services through established services infrastructure at the state level.
  • Dedicate federal research to strategic research that can halt the autism epidemic in its tracks.
  • Conduct autism surveillance with the scope, timeliness and rigor appropriate to the need.
  • Focus strategic new research in areas that can yield meaningful near term results. 
  • Keep individuals with autism safe from accidental death and injury.
  • Prevent harmful restraint and seclusion of autistic individuals.
  • Address critical gaps in vaccine safety research and policy governance.
  • End health insurance discrimination against individuals with autism. 
  • Develop autism policy with an open, transparent approach. 

Contact information, an updated list of organizational members, and relevant documents can be found at CAACoalition.org.

Puzzle Pieces to Support Research 
Year-end Update from Puzzle Piece Campaign Coordinator Lynda Huggins:  
puzzle piecesAs 2010 draws to an end, the need to fund the research that we all want and need to help our children grows ever more pressing.  The number of families enduring the pain of an autism diagnosis continues to rise. We want to know which environmental toxins are affecting the children.  Are vaccines involved?  We want to know how to determine which biomedical treatments can benefit each child.  Why do some children recover, some benefit slightly, and some not respond to the various treatments and interventions?  Our kids are like snow flakes, no two exactly alike.  So how do we screen them for appropriate treatments?  These are only a few of the answers we are seeking through research funded by the Autism Puzzle Pieces project.  Each and every one of us can help fund that research.  Below are a few more stories of how folks have been involved.  Won't you join us in 2011 and help us find more answers to the autism puzzle? Order puzzle pieces today and help research that makes a difference.
 
Wishing all a blessed holiday season,
Lynda Huggins,
Mom to Jon age 35

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Puzzle Piece Success Stories:

The Dayton Autism Society, Dayton, OH, will have the puzzle pieces for sale alongside our autism awareness merchandise at our inaugural 5K Walk for Autism and Information. Our goal is to fund an educational conference in the fall for parents of children affected by autism so they will understand their educational options, therapies, ESY, and how to advocate for their child.  We will be pasting the purchased puzzle pieces all along the walk route and the festival. People can purchase them and put "in honor of" on the puzzle piece. This will add an even deeper meaning to why we walk and why we're there. During my senior year in high school I was an intern at Cedar Chapel Special School. I was placed in a class with five children. One of the children was autistic. This child was 10 years old and had never expressed himself in written language. I began working with him and he wrote 'duck.' I learned that if you said 'draw a house' he would write house. It turned out that he could write several words. I decided to help sell puzzle pieces because autism is my passion and I would do anything to help children. I am going to sell them myself at school and ask people I know.
Amy - Salisbury, MD
 
I am involved in selling the puzzle pieces because I have a 5-year-old nephew, James, with autism.  It is a worthwhile project, and it's a pleasure to be involved in this critical crusade to help raise $1million dollars for research. I have pieces displayed at several locations, including a convenience store that gets a lot of highway traffic and a local drug store (the owner's daughter is affected by autism).   
Carol - Ryan, OK

I decided to participate in the Million Dollar Puzzle project to help spread awareness and educate others about autism.  I am the mother of a child who has autism, so it is important to me to do whatever I can for the autism community.  I am distributing the puzzle pieces through e-mail. 
Mary Anne - Wake Forest, NC  
 
I'm the mother of a nine-year-old son with Autism.  I joined
the million dollar puzzle project to help raise awareness and money for autism research.  I'm selling puzzle pieces at my son's school, where I also work as a nurse.  I'm displaying the pieces in a local business, my husband's office and my mother's workplace.  This is a very small town but I plan to reach as many people as possible. Thanks for letting me be a part of this wonderful project.
Alisha - Greensburg, KY

I just wanted to let you know that last year I made over $230 in donations from my college organization's autism bowling event, and sent the money directly to the Autism Research Institute.
Melissa - Whitewater, WI

Events in the Community ...
  
ARI Shield LogoSpring 2011 ARI Conference
(formerly known as Defeat Autism Now!)
Level 1 & 2 Practitioner Seminars,
Parent, Diet, Adult, & Science Sessions
Atlanta, GA | April 28-May 1, 2011

 

Online registration starts in early January, 2011


 
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Law Enforcement / First Responder Training 
 
1st responder
Bill Cannata and Dennis Debbaudt

DATE: 9 a.m. to 1 p.m., March 4, 2011 

LOCATION: Police and Fire Training Academy at 1770 Shopton Road, Charlotte, N.C. 28217

 

This free training is sponsored by the Autism Research Institute, the Autism Society of North Carolina and the North Carolina Office of the State Fire Marshall.  

 

Trainers will include Dennis Debbaudt of Autism Risk Management, Captain Bill Cannata of ALEC in Massachusetts, and Judge Kimberly Taylor from North Carolina. This training is open to all interested. 

 

For additional information contact Kimberly S. Taylor at Kimbyrd@msn.com, or Dennis Debbaudt at ddpi@flash.net.


Watch the Law Enforcement/First Responder Training promo


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