Spring 2011 Conference
Level 1 & 2 Practitioner Seminars, Parent & Science Sessions
April 28-May 1, 2011
Information & Registration online starting in January
Save the date!
Fall 2011 Conference
Las Vegas, NV
Want to see what happens at the Conference?
View free lectures from past conferences online - including the latest lectures from our Spring 2010 Conference in Baltimore
Oct. 14-17, 2011
Puzzle Pieces to Support Research
Update from Puzzle Piece Campaign Coordinator Lynda Huggins:
We have now distributed 4,384 packets, and we are in 571 cities. (We often have several folks distributing in the same city.) So far we have forwarded $112,308.55 to the Autism Research Institute!
Together we WILL fund the research we all know is so badly needed to help our kids. Below are some notes I have received from folks helping us increase autism awareness by distributing the puzzle pieces in their community.
I am so happy with what you have done and hope I can help to support the cause for my little boy Parker and all the other children out there with Autism. Keep up the wonderful work. With help and love, we can all make a difference.
- John S
I just wanted to give back to the Autism Research Institute for saving my daughter. She was diagnosed with Autism at 2 years old. After reading the book Recovering Autistic Children, we decided to look into Biomedical treatments for her. Now, a year and a half later, she is almost fully recovered! I will never be able to thank ARI enough for their efforts in treating and recovering our children. ARI will always be the recipient of this family's autism fundraising for years to come. Thank you ARI, and thank you Dr. Rimland, our guardian angel above. - Kim
I've requested Puzzle Pieces honoring My Cousins Brad of Milton, GA and William of Carleton, Ii whom I love very much. My mother Denise and I are on a mission to help inform as many people as we can and bring "AWARENESS" of autism to our community. I will let you know how it goes and if we require more puzzle pieces. Keep the faith and We are with all of you that are touched by someone that you love that has "Autism".
Until recently, I was not aware of Autism and the facts, statistics or anything relating to Autism. I started tending to 2 children with autism. A 7-yr-old boy and 4-yr-old girl...I love them both as they were my own. Since caring for them, they have taught me so much, they are the sweetest and loving children, even though they have their moods and times the Autism really comes out. I still love them the same. Now, because of them I am aware of Autism and trying to make others aware of Autism. Autism is becoming an epidemic and I want to do my part to speak out about Autism and how to help. I thank God every day for bringing these 2 children into my life. I hope I can do my part in raising Autism Awareness, not only by saying it or by telling people but doing everything I possibly can to help fund the research for Autism and help the loved ones and the victims of this disease have hope, and hopefully one day have a cure. RAISE AUTISM AWARENESS
- Chasity (Alabama)
|Our Partners |
The Autism Research Institute collaborates with autism groups abroad:
Defeat Autism Now! - Europe
|From the Director:
|The Autism Research Institute (ARI) kicked off the holiday season with a colorful Halloween event at Edgeware Gallery. There were lots of kids and lots of fun. With more holidays on the horizon, a big challenge is how best to stick to a gluten- and casein-free diet. Suggestions appear below.
Last month ARI sponsored the Fall Defeat Autism Now! conference in Long Beach, California. As usual, it was a terrific conference. As one of the attendees told me, "Your conferences keep getting better." Similar to past conferences, the presentations will be uploaded to our website within a few months.
ARI will be premiering a quarterly e-newsletter on November 15th titled the Adults with ASD E-Bulletin. People who subscribe to the ARI's monthly e-newsletter will also receive this quarterly e-newsletter. The Bulletin is one of several ARI initiatives regarding adults. See article below.
ARI sponsors the Edgeware Gallery; one hundred percent of the net profits from all sales of artwork and gift items go to autism research. We recently developed a smart-phone app for the gallery; it can be downloaded free from Apple's app store and from the Droid app market.
Much cheer for the holidays!
Steve Edelson, Ph.D.
Director, Autism Research Institute
|Global Autism Collaboration: Bringing Together Autism Organizations Worldwide
Last month we premiered the Global Autism Collaboration. The collaboration is a network of not-for-profit autism organizations, with the primary purpose to share information with one another. You can learn more about the collaboration at: www.GlobalAutismCollaboration.com and by watching my YouTube video.
Our initial goal was to recruit 50 group members by the end of this year, and reach 200 members by the end of 2011. To our surprise, more than 50 applications have already been submitted, and we expect many more in the coming months.
Note that for those groups planning to apply to the Global Autism Collaboration, it might take up to 12 weeks to review and approve the application.
|Special Diets and the Holidays: Tips for Successful Celebrations
The winter holiday season is almost here, with its whirlwind of fun and food. In the next 8 weeks, Thanksgiving, Hanukah, Christmas, and New Year's celebrations will largely dominate our lives and our choices. Many families wonder if it is even possible to achieve a successful celebration while also following an elimination diet. Our answer to that question is always this: Absolutely, with proper planning and communication. The greatest issues that families face are establishing boundaries for successful celebrations, communicating them to family members and guests, and then creating a plan for implementation. More and more families choose gluten- and other allergen-elimination diet plans, and options abound for menu plans.
For Thanksgiving, remember that many staples can easily be prepared without common concerns such as gluten, casein, and soy. natural or free range turkey options are best, as these have not been injected with any seasoning that might be questionable. Side dishes can include freshly prepared green vegetables, safe mashed potatoes and/or sweet potatoes, gluten-free dressing, salads, and elimination diet-friendly breads.
For dessert, traditional options abound with a few tweaks: consider pumpkin pudding or pie, pecan pie, and fresh fruit as a starting point. Elizabeth Gordon just published her yummy-sounding recipe for Gluten, Dairy, Soy, Nut and Egg-Free Cranberry Orange Cookies at Huffington Post.
For Hanukah, traditional menu items can be altered to fit a gluten-, casein-, and soy-free healthy lifestyle as well. Two years ago, Elana Amsterdam of the Amazing Elana's Pantry blog published a wonderful Hanukah menu that is still available online.
Living Without, a magazine for those following allergy elimination diets, has recently published a great latke recipe in the Dec/Jan edition in print and online.
For Christmas, most traditional menus include some presentation of protein - turkey, goose, roast beef, ham, and lamb are all great options, and most are naturally gluten-, casein-, and soy-free. Vegan menus that are also gluten-free can be found both on the web and in the new Terry Walters' publication, Clean Start. Side dishes can include roasted root vegetables, salads, and fresh fruit.
Desserts can be an assortment of traditional holiday favorites, including fudge, cookies, pies, and puddings with a few changes.
See www.thoughtfulhouse.org for more comprehensive information as well as menus and meal plans with elimination diets prepared by Kelly Barnhill, the ARI nutrition coordinator.
Finally, the moms at TACA have several publications available on their website to assist in preparing for a successful holiday season. See: TACA's diet page for more helpful information.
|Announcing: Adults with ASD ARI E-Bulletin
For about a year and a half, ARI has been hosting a monthly conference call on adult living situations. Participants hail from many parts of the country and have included individuals on the spectrum and family members, as well as professionals in the residential, day-program, employment and community integration fields. Besides discussing many relevant topics, professionals and parents who have established successful residential facilities are providing much-needed advice to a new generation who plans to establish more housing options for people with autism.
More recently, ARI has begun work on several more projects related to adult concerns and autism. This month a group of adults with ASD will participate in a four-day retreat in Utah. A portion of their time will include facilitated discussions on how ARI can best support adults on the spectrum. A written report will be published on our website following the event.
ARI will also launch a quarterly e-newsletter called the "Adults with ASD ARI E-Bulletin" on November 15, which coincides with Dr. Bernard Rimland's 82nd birthday.
The other big news we'd like to share is ARI's plan to host an "Adults with Autism" track at our twice annual conferences. This will include a full one-day track at our Spring ARI Conference on Sunday, May 1, 2011 in Atlanta, Georgia. A two-day track is slated for our Fall conference on October 15 and 16, 2011 in Las Vegas, Nevada.
Call for Submissions: Who Will Care for My Child When I am Gone?
|"Who will care for my child when I'm gone?" |
This is, perhaps, the greatest concern for parents of children on the spectrum. Have you solved this important issue in your family or for families you support professionally? Have you found or developed strategies and information that can help ease the way for others who are still grappling with these questions? If so, please submit a chapter for a new book that ARI will publish. Please email to Valerie Paradiz, PhD and Jane Johnson before January 1, 2011. (All proceeds will benefit ARI.)
All I Can Handle: I'm No Mother Teresa
Age of Autism Managing Editor Kim Stagliano's new book tells the tale of her family's journey raising three daughters with autism
"Dr. Spock? Check. Penelope Leach (Remember her?)? Check. What to Expect When You're Expecting? Check. I had a seven-hundred-dollar Bellini crib for God's sake!"
So begins Kim Stagliano's electrifying, hilarious tale of her family's journey raising three daughters with autism. With her funny, startling, and illuminating first book, Stagliano joins the ranks of bestselling memoirists like David Sedaris and Augusten Burroughs. With her willingness to lay everything on the table-family, friends, and enemies-from basement floods to birthdays to (possible) heroin addictions-she eviscerates and celebrates the absurd.
Always outspoken, often touching, and sometimes heartbreaking, Kim Stagliano is a powerful new voice in comedic writing. Her "Kimoir" (as she calls it) will be a must-read for everyone within the autism community. More than that, it's the debut of a new voice that will entertain everyone who reads it.
Whether she's going commando to rescue a daughter from a potentially embarrassing situation or accidentally stealing electric fans, she and her family are seemingly always on the edge of a Stagtastrophe. From her love of Howard Stern to her increasing activism in the autism community and exhaustive search for treatments that will help her daughters, she explores her life with vigor and humor.
Spring 2011 ARI Conference
Events in the Community ...
(formerly known as Defeat Autism Now!)
Level 1 & 2 Practitioner Seminars, Parent, Diet, Adult, & Science Sessions
Atlanta, GA | April 28-May 1, 2011
Online registration starts in early January, 2011
National Autism Association's National Autism Conference
DATES: November 11-14
LOCATION: Trade Winds Resort, St. Pete Beach, FL
Speakers include: Dan Olmsted, Holly Robinson Peete, Dr. Andy Wakefield, Dr. Dan Rossignol, Dr. Doreen Granpeesheh, Dr. David Berger, Dr. Julie Buckley, Dr. Anju Usman, and more.
Treating Children with Complex Feeding Difficulties
DATES: December 3 & 4, 2010
LOCATION: San Antonio, TX
Continuing Education Programs of America, in collaboration with the Autism Research Institute, is sponsoring a course titled Food Chaining II: It Takes a Team - Dealing with Digestive Tract Disorders.
This treatment-focused presentation will cover multidisciplinary therapy strategies to develop Pre- and Food Chaining Programs for treatment of children with complex feeding difficulties, including children with autism. A special focus will be spent on the impact of digestive tract disorders on feeding.
- Mark Fishbein, MD (pediatric gastroenterologist)
- Cheri Fraker, CCC/SLP, CLC
- Laura Walbert, CCC/SLP, CLC
For more information:
See www.CEPAUniversity.com or call 309-263-0310.
Law Enforcement / First Responder Training
|Bill Cannata and Dennis Debbaudt|
DATE: 9 a.m. to 1 p.m., March 4, 2011
LOCATION: Police and Fire Training Academy at 1770 Shopton Road, Charlotte, N.C. 28217
This free training is sponsored by the Autism Research Institute, the Autism Society of North Carolina and the North Carolina Office of the State Fire Marshall.
Trainers will include Dennis Debbaudt of Autism Risk Management, Captain Bill Cannata of ALEC in Massachusetts, and Judge Kimberly Taylor from North Carolina.This training is open to all interested.
For additional information contact Kimberly S. Taylor at Kimbyrd@msn.com, or Dennis Debbaudt at email@example.com.
Watch the Law Enforcement/First Responder Training video