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October 2010

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In This Issue
Sell Puzzle Pieces for Reserach
Parent Connection: Support & Fun on the Fall Conference Agenda
Groupon Savings to Benefit Autism Research
Age of Autism now on shelves
Events in the Community

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Online rates end Oct. 5th
Fall 2010 Conference

Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent & Science Sessions
Long Beach, CA
Oct. 7-10, 2010

 Register

Save the date!
Spring 2011 Conference

Atlanta, GA
April 28-May 1, 2011



Want to see what happens at the Conference?
View free lectures from past conferences online - including the latest lectures from our Spring 2010 Conference in Baltimore

 
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Puzzle Pieces to Support Research

puzzle pieces

Campaign Update:
Let me share more stories of how we have raised over $112,000 for autism research so far.  A mom in Washington state distributed puzzle pieces in several local businesses - her chiropractor's office, her coffee shop, and her brother's jewelry shop, raising over $200.  And she was the lucky winner of a beautiful Puzzle Quilt that we raffled off at the 2008 Fall ARI/DAN Conference!  The quilt was made and donated by my sweet LSU roommate of many years ago, and the raffle added $1,257 to the Million Dollar Puzzle.

A mom in Overland Park, Kansas shared information about the Puzzle Pieces Project with others at her son's school of 550, where there were eight children on the spectrum and four staff members who had children with autism.  They all came together for a school-wide project.  A 4th grade class raised almost $1500; all together the school raised $2,077.95!  Hundreds of puzzle pieces decorated the halls of the school. Great press coverage by the local paper further increased local autism awareness.

Through our local community college I was contacted by the Louisiana Association of Student Financial Aid Administrators in 2009.  This organization had selected Autism as their Community Service Project at their 2009 state-wide conference; they collected $620 in donations for the puzzle pieces.  NOTE: Many professional, civic, and social organizations select a new philanthropy project each year.  If you have a connection to one such group, ask them to support Autism Research this year or next.

Jim and I attended the Fall 2009 ARI/Defeat Autism Now Conference (our first) and set up a Puzzle Pieces booth.  We handed out 41 packets (of 50 puzzle pieces) and collected $203.  It would be great to have someone do this at every conference!

Remember, this is a year-round, worldwide effort, and we will continue until we reach our goal.  What we really need is a nationwide chain to come on board.  Anyone with a connection to a nationwide or even a statewide business that we might recruit is encouraged to contact me for a professional packet to present. 
We have had offices designate their "casual day" funds to us.  Kids have gone door-to-door in their neighborhoods.  Donations were collected at churches, in front of grocery stores and outside Wal-Mart.  Many puzzle pieces were distributed at Autism Awareness events. There are so many ways to seek donations and the public is now very aware of the autism epidemic. 

I'm happy to report that puzzle pieces are now in 48 states plus Puerto Rico, Oslo Norway, Singapore, Hagatna Guam, Barcelona Spain & 6 locations in Canada - Westmount QC, Brandon MB, Prince Albert SK, Saskatoon SK, Westmount QC, Calgary, Alberta  (565 cities).  We have forwarded $112,308.55 to the Autism Research Institute. My sincere thanks to everyone who has participated. We still have a LONG way to go. Come join us!  Together we WILL reach our goal.

Hugs,
Lynda - Mom to Jon, age 35
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From the Director:
dr. edelson
Well, summer came and went faster than one can spell 'Autism Is Treatable.'  We're quite busy these days at ARI preparing for our upcoming Defeat Autism Now! Conference (Oct. 7 to 10) and working on some new initiatives and projects.
 
In last month's ARI e-newsletter, I mentioned that we have translated a summary of the gastrointestinal consensus report into several languages, including Chinese, French, German, Japanese, Russian, and Spanish. This last month we uploaded a translation in Italian, and we hope to upload a translation into Portuguese in the near future. Links to all of these translations can be found on ARI's homepage.
 
Starting in early November, ARI will also publish a quarterly e-newsletter on adult issues. Dr. Valerie Paradiz will be the editor. The e-newsletter will focus on up-to-date, cutting-edge information about topics related to adults on the autism spectrum.  
 
We are also very excited about a new network called the Global Autism Collaboration, or GAC. The goal is to create a network of autism groups throughout the world in order to improve communication, share information, and support advocacy issues. See my article below.
 
Many people have called or emailed us about Matt Kabler's condition. Matt is ARI's Director of Operations, and one of my closest assistants.  As we reported last month, Matt suffered an aneurysm. I am very happy to report that he is doing fine, and was recently discharged from the rehabilitation center.  Thanks for all of the kind wishes and prayers. They really meant a lot to Matt, his family, and to us at ARI.
 
Stay tuned!
Steve Edelson, Ph.D.
Director, Autism Research Institute
Parent Connection: Support & Fun on the Long Beach Agenda This Weekend
Online registration ends at midnight Tuesday Oct. 5th
Onsite Registration begins Thursday

Free Evening Workshops
Join us this Thursday and Friday (October 7-8th) for our Evening Workshops - options include lectures for parents, caregivers, and clinicians. Workshops both evenings are free - please feel free to bring a friend, colleague or fellow parent to learn about the latest research and effective treatments. If you aren't registered but live in the Long Beach area, we hope you'll join us. Already registered and want to add a workshop? Use the link in your registration confirmation to add these free events.

Saturday Night Auction at the Renaissance
The Saturday Dinner is always a favorite, providing everyone time to come together in a relaxed setting for an opportunity to connect with other parents, medical professionals, and specialists from around the world. 
 
The evening includes a silent auction with opportunities to bid on wonderful donated items - all proceeds benefit the Autism Research Institute.
 
Try Your Hand at the Biomedical Approach in our "Demo Room"
Taking a page from Biology 101, ARI offers its on-site "lab," teaching practical skills for taking the biomedical approach home. The "Demonstration Room" will be offered during breaks and lunchtime on Friday, Saturday, and Sunday at the Fall Conference in Long Beach. The ARI/Defeat Autism Now! Conference offers parents effective strategies for helping their children, serving as a meeting ground for clinicians using a biomedical approach and the parents who seek their aid. Still, for many of us, returning to what is in effect a biology/chemistry class presents a challenging learning curve. While lectures are essential to our understanding, the information is only as effective as the hands that are charged with putting these treatments into effect. Don't miss this chance to stop by for free one-to-one tutorials by experienced healthcare professionals and experienced parents. Topics include administering B-12 injections, scheduling supplements, tracking treatment success, teaching pill-swallowing, and more. The "Demo Room" is free with your paid registration.
 
tacaNew to the biomedical approach? Meet a parent mentor
For many families new to the autism diagnosis or starting the biomedical approach, finding a parent mentor can help ease the frustration, help to navigate the confusing "system," and help jump-start the family with ACTION for their child affected by autism. Our friends at Talk About Curing Autism have a key focus on building the autism community and helping families affected by autism. They have generously offered to connect parents, with a chance to meet a TACA Parent Mentor at the conference.
Want to meet a mentor? Stop by the TACA booth at the conference.
 
REGISTER NOW 
Groupon Savings to benefit Autism Research

grouponFor those parents among our readership who are already among the 17 million Groupon subscribers, good news:  For all future purchases, you can simply bookmark and use the ARI Groupon link and 10% of your first purchase and 5% of all subsequent purchases will help fund autism research.

For those of you not familiar with Groupon yet, it was recently profiled in Forbes as "the fastest-growing business ever."   Basically, they offer goods and services at substantial discounts  (50 to 75% off ).   ARI's own Denise Fulton said that she stocks up every time her son's favorite allergen-free bakery in Seattle has a Groupon half-price offer.  

Joining is a painless three-minute procedure, but you don't even have to join to view their discounts - you simply browse, and it's up to you whether or not you choose to make a purchase.  There's no obligation to buy anything, ever.

Groupon is presently in 88 cities and if you're traveling, you can also access Groupon offers in cities outside your local area.  

Please feel free to post the ARI Groupon link on your Facebook, or email it to your friends, family, co-workers and colleagues, so they too can help support ARI by simply making the same purchase they were going to make anyway.  

So save money and help support autism research at the same time!

Questions about Groupon or using the ARI Groupon link?  Feel free to write dave@autism.com  

Age of Autism: New book links mercury to puzzling disorders throughout history
Meet Age of Autism co-author Dan Olmsted this weekend at Safeminds' booth at the Fall Conference in Long Beach

olmsted blaxillWhen humankind began to mine mercury, the second deadliest element on earth after plutonium, the metal began to accumulate-in our food, air and water.  Today, worldwide environmental mercury exposures are skyrocketing, and our personal levels are rising higher than ever before. Recent studies have detected mercury in the blood of 30% of U.S. women, a figure that is 1500 percent higher than ten years ago.  Now, in The Age of Autism, Dan Olmsted and Mark Blaxill reveal startling new discoveries about the link between mercury and autism, as well as other devastating illnesses and disorders.
 
One of the book's most stunning revelations links mercury compounds--found in lumber treatments, seed disinfectants and vaccine preservatives--to the first cases of autism discovered in the 1930s. The authors were able to identify--for the first time--the names and families of psychiatrist Leo Kanner's original case studies and discovered a common thread of mercury exposure, particularly ethyl mercury, in the occupational and medical backgrounds of the early cases. 
 
The authors do believe mercury was present at the creation of autism and continues to be a major player as autism rates increase.

The Age of Autism is certain to generate much discussion.

About the Authors:
DAN OLMSTED is an award-winning journalist and MARK BLAXILL is the author of several scientific papers challenging mainstream research on autism.

ARI Sponsors Control Specimen Bank

We are pleased to announce that the Autism Research Institute will be working in collaboration with The Health Research Center/Pfeiffer Treatment Center to sponsor a blood serum/plasma, blood cell, and urine bank of non-autistic healthy control specimens. A.J. Russo, Ph.D., the Research Director, will supervise the specimen bank. The aim is to establish a center for control samples accessible to ARI collaborators at minimal cost. The center will collect, transport, and store plasma/serum, red blood cells, buffy coat, and urine from age-appropriate non-autistic/neurotypical children.

We need general practitioners, pediatricians, and researchers to help solicit samples from healthy 3-12 year old children. We will provide them a release/permission form and arrange for transport to a facility at the Pfeiffer Treatment Center.

If you are willing to help or have questions, please contact Dr. Russo at:


A.J. Russo, Ph.D.
Research Director
Health Research Institute/Pfeiffer Treatment Center
4575 Weaver Parkway
Warrenville, IL  60555
Phone: 630-505-0300 X207
Fax: 630-836-0667

Events in the Community ...
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Fall 2010 ARI/Defeat Autism Now! Conference
Level 1 & 2 Clinician Seminars,
Level 1 & Level 2 Nutrition Seminars,
Parent & Science Sessions
Long Beach, CA | Oct. 7-10, 2010
 
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Third Annual New York City Autism/Asperger's Conference set for October
acaDATES: October 23-24

Featured Keynote Speakers:

  • Temple Grandin, Ph.D., is a highly successful adult with autism, and one of the leading lecturers on how to help individuals with autism/Asperger's. She has authored six books on her life experiences in dealing with autism, and is a leading advocate for people with autism. She is an Associate Professor at Colorado State University.

  • Eustacia Cutler is the mother of Temple Grandin and author of "A Thorn in My Pocket," which describes the challenges of raising a child with autism. She has written school lessons for major TV networks, researched and scripted the TV documentary THE DISQUIETED (on autism), researched and contributed to the script for THE INNOCENTS, a documentary-prize-winning first on retardation. She has three other children and five grandsons.

  • Stephen Shore, Ed.D. will share his story from his non-verbal days through adolescence to finally becoming a college professor. As he discusses his journey, he will share insights into what it is like to live with autism and Asperger's, and discuss strategies that have helped him and many of his peers.

NEW YORK AUTISM/ASPERGER'S CONFERENCE INFORMATION

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National Autism Association's National Autism Conference
nacDATE: November 11-14
LOCATION: Trade Winds Resort, St. Pete Beach, FL

Speakers include: Dan Olmsted, Holly Robinson Peete, Dr. Andy Wakefield, Dr. Dan Rossignol, Dr. Doreen Granpeesheh, Dr. David Berger, Dr. Julie Buckley, Dr. Anju Usman, and more.

Full Conference Schedule
Register Now

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