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May 2010

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In This Issue
New Siblings Book Available
NJ Senator Introduces Safe Chemicals Act
Million Dollar Puzzle Piece Campaign
Events in the Community

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Fall 2010 Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent, & Science Sessions
Long Beach, CA
Oct. 7-10, 2010
 
Details & Online registration will be available in July
 
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Spring 2011 Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent & Science Sessions

Atlanta, GA
April 28-May 1, 2011
 
Vote Now to Make 1-800-3AUTISM Available 24/7
 
The Autism Society has joined the Pepsi Refresh Project to raise $250,000 to establish a 24/7 support line for families and people with autism. You can learn more about ASA's project online. Voting ends May 31st.  
Learn More  
Make a Monthly Pledge to Support
Research
ARI's secure online donation form is a convenient way to support our research - and now you can pledge any amount and make payments in installments for as long as you wish.
 
For example: you could pledge $120 for the year, and pay just $10 a month. 
 
Pledge to pay monthly with your credit card (or by automatic withdrawal from your bank account if preferred), and we'll take care of it for you through our secure online merchant account. 
 
ARI ofrece linea de apoyo en Español
(ARI offers toll-free Spanish-speaking support line)
 
Con frecuencia escuchamos: "He oído algunas cosas sobre la dieta y tratamientos biomédicos pero no sabia a donde llamar. Desearía haberla encontrado antes y haber ayudado a mi hijo".
 
ARI ofrece ahora una línea telefónica gratuita bajo la dirección de Kerri Rivera, madre de Patrick - ASD de 8 años, y directora de la clinica/hospital Autism02.
Llaman reciben información, contactos y acceso a los recursos disponibles a través del Instituto de Investigación de Autismo (ARI).
 
Los padres y los cuidadores son animados a llamar para obtener más información de ARI y más allá. Todo con el objetivo de ayudar a los padres ¡Derrota al Autismo Ahora! (DAN!)
Centro de llamadas de Autismo ARI: 877-644-1184 ext. 5
 
 
Treatment Ratings
Our Partners
Autism Society of America 
 
Medigenesis: A New Beginning in Medicine
 
mindd
 
NAA
 
safeminds
 
Schaefer Autism Report
 
TACA
 
Treating Autism
 
Unlocking Autism
 
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The Autism Research Institute collaborates with autism groups abroad:

Defeat Autism Now! - Europe
(headquartered in Bologna, Italy)
 
Canada
 
France
France
 
 
Mexico
Mexico
 
About the ARI E-Newsletter:
This newsletter is compiled, written, and edited by ARI parents, and we welcome your input. If you have questions you would like answered, a story you would like to submit, or an idea for something you would like to see discussed or explained, please contact us.
 
Contributing Editors:
Jane Johnson
Dave Gillerman
Stephen Edelson, Ph.D. 
 
Technical Support:
Denise Fulton
 
Additional Assistance:
ARI maintains a toll-free line with information, contacts, and access to resources available through the Autism Research Institute.
English: 866.366.3361
Español: 877-644-1184,
ext 5
Join Our Mailing List
From the Director:
dr. edelson
 
Spring is here, and I hope winter's gloomy weather has faded in your area of the world.
 
Last month we had another successful ARI/Defeat Autism Now! Conference. More than 900 people attended the conference, including 150 practitioners at our Level I & II Clinician Seminars, and 54 health-care practitioners in our Nutrition Seminar.  This was our first conference in Baltimore, and one that we will never forget! Special thanks to ARI's staff and volunteers for their hard work and energy. [Note: We plan to upload the video presentations to our website (www.autism.com) within a month (or two).]
 
As described in a recent editorial of mine, ARI has been instrumental in first recognizing GI problems in autism and has had a pivotal role in studying these problems. Now, an abstract, reported by Autism Speaks' Autism Treatment Network, examined GI problems in 1,185 children on the autism spectrum, between ages 2 to 18 years, at 15 treatment and research centers throughout the US and Canada. They found that nearly half of these children had GI problems, such as abdominal pain, constipation, and diarrhea. This study provides additional documentation that GI problems are quite prevalent in autism, much more so than in the non-autistic population.

We recently uploaded a questionnaire to learn more about the relationship between self-injurious behavior, medical problems, and pain. Examples of self-injury include head-banging, hand-biting, and excessive scratching and rubbing. If your son/daughter or client has engaged in some form of self-injury in the past week, we would appreciate your completing the questionnaire located at: www.Self-InjurySurvey.com
 
We have also uploaded two important papers to our autism.com website: 'Autism and GI Problems: A Major Milestone,' and 'Integrating Biomedical and Behavioral Science.' Click on the 'What's New' bar on the right side of the screen, and select the new papers from the drop-down menu.
 
As many of you know, the Autism Research Institute sponsors the Edgeware Gallery; Dr. Bernard Rimland's son Mark is the resident artist. One hundred percent of the net profits from art sales go to fund autism research. Our next art show is titled 'Art Inspired by Jazz,' opening the evening of May 8, from 5pm to 9pm. As part of the Jazz event, the following Saturday, May 15, Matt Savage, a musical prodigy on the autism spectrum, will perform at a church located 1½ blocks from the gallery.  The concert begins at 3pm, and there is no charge to attend. You can learn more about the art show and jazz concert at: www.EdgewareGallery.com
 
Hope all is well.
 
Steve Edelson, Ph.D.
Director, Autism Research Institute
Just Released: New Book for Siblings of Individuals with Autism
 
siblingsToo often, siblings of special-needs children feel overlooked, so in the August 2009 edition of the e-news, we asked them to submit their stories.  Nineteen people--of all ages--responded, and Siblings; The Autism Spectrum Through Our Eyes was born. T
he brothers and sisters who wrote this book think it helps to know there are people who understand--really understand--what it's like to live with a sibling with autism, and so they talk about how they feel.

Their stories honestly recount the good, the bad, and the downright annoying. They explain how being 'the normal one' can be tiring, frustrating, and lonely, but equally rewarding; every story is imbued with the wisdom they've gained by growing up quickly, and learning to love their siblings for who they are.
 
The book costs $9.32 on Amazon.com--all proceeds benefit ARI. Buy Now
Better Late Than Never: Proposed 'Safe Chemicals Act' Aims to Improve Evaluation 
It is generally agreed that the alarming increase in the rate of autism cannot be attributed solely to better awareness or a genetic epidemic - some form or forms of environmental insults are very likely to be involved. One of the many likely causes is the preponderance of toxic chemicals in our environment.

On April 15, 2010 Frank Lautenberg, a senator from New Jersey, introduced the Safe Chemicals Act, which would significantly alter the evaluation process for new chemicals. Under the proposed new law, chemicals would be essentially "guilty until proven innocent": the burden of proof-of-safety would rest on the manufacturers. This is in contrast to the present situation, in which the beleaguered EPA must demonstrate that a chemical is dangerous to humans or to the environment, before it can even be regulated - something that rarely happens.  

As Lautenberg states in a press release on his website,  "America's system for regulating industrial chemicals is broken. Parents are afraid because hundreds of untested chemicals are found in their children's bodies. My 'Safe Chemicals Act' will breathe new life into a long-dead statute by empowering EPA to get tough on toxic chemicals."

Nevertheless, Safer Chemicals Healthy Families, a coalition representing over 11 million parents and professionals, and a supporter of the new Safe Chemicals Act, is continuing to fight to make the proposed bill even stronger. While the changes as proposed in the Safe Chemicals Act are a vast improvement, Safer Chemicals Healthy Families is concerned about loopholes that would still allow some new chemicals to come to market immediately, and be tested later. As they state on their website, "The Safer Chemicals, Healthy Families coalition supports the goals of the bill. However, we plan to work closely with Congress to fine-tune the legislation to make sure it reflects the concerns of the health care providers, scientists, advocates for the learning and developmentally disabled, and all the millions of individuals we represent."

To learn more about the Safe Chemicals Act of 2010, see:
Discussion draft of legislation to revise TSCA   
Strengths and weaknesses of the proposed bill 
 
Sell Puzzle Pieces for ARI
Join our Million Dollar Puzzle Campaign 
 
puzzle pieces
The Million Dollar Puzzle Piece Campaign is a year-round project -there is no time limit on distributing them and every penny of every dollar raised goes to the Autism Research Institute to fund the research we all want. Since we began this grassroots effort we have distributed 212,950 puzzle pieces. We are in 48 states plus Puerto Rico, Oslo, Norway, Singapore, Hagatna, Guam, Barcelona, Spain & 6 locations in Canada - Westmount QC, Brandon MB, Prince Albert SK, Saskatoon SK, Westmount QC, and Calgary, Alberta  (548 cities). We have forwarded $91,361 to ARI. If everyone who cares about an individual with autism gives a dollar, we will easily and quickly reach our goal of a Million Dollars for Autism Research!
 
Won't you join us?
Together we can fund the research our government deems unworthy of funding. Remember this is an all-volunteer effort and every penny of every dollar raised goes directly to ARI, specifically for research.
- Lynda Huggins
mother of Jon, age 34
 
Puzzle Piece Success Story:
Dear ARI,
I am the 2009 Minnesota Dream Girls USA Slayton Hometown Queen and the newly crowned 2010 Minnesota Dream Girls USA Hi-Point Champion, and I chose your organization as the charity I supported during my reign in 2009. I am proud to support your research efforts relating to autism, as my twin brother is affected. Mom says he is high-functioning, but he has a lot of trouble making friends and relating to people. He has been helped a lot with vitamins and is doing a lot better now.
I did some online research and made a display board with information about autism including symptoms, who it affects, the number of children with autism, and what others can do to help. I sold the puzzle pieces received from the Million Dollar Puzzle for Autism Research I had gotten awhile back. I sold them at our local grocery store from 9 a.m. to 4 p.m. Easter weekend, so there were a lot of people coming and going which helped a lot. I am sending two checks for a total of $176 collected that day.
I look forward to continuing to support your organization.
 
Sincerely,
Amelia Soetebier, Minnesota 
Events in the Community ...
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Fall 2010 ARI/Defeat Autism Now! Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar,
Parent & Science Sessions
Long Beach, CA | Oct. 7-10, 2010
Online Registration starts in July 
 
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Complimentary Breakfast Fundraiser to Benefit Autism Research May 12th at the Phoenix Convention Center  
 
DATE: Wednesday, May 12th
TIME: 7:30-9 a.m.
LOCATION: Phoenix Convention Center - 100 N. 3rd Street 
 
To inform the community about exciting research, treatment, and services for children and adults with autism, Asperger's, and related disorders, and to raise money to support the activities of those groups.
 
Though the cost of the event is complimentary, please consider registering as a Table Captain, and invite family, friends and co-workers to join you at your personal table(s).
 
TO REGISTER:
Email us or call (480) 831-2047
 
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AutismOne & Generation Rescue Present: Autism Redefined
Daily, Monday, May 24 - Sunday, May 30

Where:
Autism OneWestin O'Hare Hotel
6100 North River Road, Rosemont, IL 60018
 
Highlights include:
  • More than 150 speakers; 7 days of presentations, seminars, think tanks, and professional training
  • 6 tracks offering specific answers to help children and families immediately
  • Jenny McCarthy Keynote
  • Elizabeth Birt Center for Autism Law & Advocacy Legal Training
  • American Human Rights Rally
  • Student Scholars for Autism Program
Lecture Schedule
Register Online 

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