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March 2010

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In This Issue
Julie Buckley: Healing Our Autistic Children
Million Dollar Puzzle Piece Campaign
Early Bird Conference Discounts Available Through March 19th
Events in the Community

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UPCOMING EVENTS 

Spring 2010 Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent, & Science Sessions
Baltimore, MD
April 8-11, 2010
Register Now
 
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Fall 2010 Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent, & Science Sessions
Long Beach, CA
Oct. 7-10, 2010
Healing Our Autistic Children
Julie Buckley's new book takes aim at demystifying the 'whole-body phenomenon' of autism
buckley

                

Julie Buckley has a pretty full plate: she is a pediatrician; mother of a daughter overcoming autism; breast cancer survivor; and now, author. 

 

She has written the just-released Healing Our Autistic Children: A Medical Plan for Restoring Your Child's Health, which brings home the point that autism is a whole-body phenomenon - not a disorder confined to the brain. Dr. Buckley breaks down the science behind methylation, immune dysregulation, and a host of complicated chemical and physiological processes into easy-to-understand concepts. After finishing the book--a surprisingly easy read considering all the science involved--it would be hard for the reader not to accept the whole-body model. 

 

"I wrote the book as an invitation for people who aren't sure whether or not the world is round to come look through the telescope," says Dr. Buckley. She  employs the kind of metaphors that make the book unintimidating for the new parent. 

 

The book is also aimed at educating the uninformed physician; to assuage any fears of 'pseudoscience,' the appendix contains almost 100 references, and 17 abstracts of critical studies.   

 

Dr. Buckley readily admits that before her daughter was affected at age 4, she was not a particularly well-informed pediatrician with regard to ASD, knowing only what she had been taught in med school.   When asked how she dealt with parents who  related stories of their child's regression, she pauses before saying quietly, "I told them they were crazy." 

 

And on the other side of the fence, Julie the Mom, like many autism Moms, remembers being in denial.But after accepting the diagnosis,she quickly got up to speed. She helped her own daughter improve remarkably via biomedical interventions, but she  wanted to also help spread the word.She speaks at conferences, trains other physicians, and now has written a book.

 

"It's all about building communication bridges," says Dr. Buckley. 


Learn More about Dr. Buckley's book
puzzle pieces
April is Autism Awareness Month: Sell Puzzle Pieces for ARI
Join our Million Dollar Puzzle Campaign
 
Now's the perfect time to order your free Puzzle Piece kits and prepare to launch a campaign in your community during Autism Awareness Month this April. 
 
Update from the campaign chair:
We had a great response to the February article. I received some 38 requests for information, 13 of which did order puzzle pieces.  We sent out 2400 more puzzle pieces this month!
Current stats:
We have distributed 4,054 packets = 202,700 puzzle pieces.
We are in 48 states, plus  Puerto Rico, Oslo, Norway, Singapore, Hagatna, Guam, Barcelona, Spain, & 6 locations in Canada - Westmount, QC, Brandon, MB, Prince Albert, SK, Saskatoon, SK, and Calgary, Alberta (540 cities).

So far, we have collected $89,962 for the Autism Research Institute.
We would love for anyone planning autism awareness activities during April, National Autism Awareness month, to consider helping us raise funds for badly needed autism research by distributing our puzzle pieces at their events.
Together we can fund the research our government deems unworthy of funding. Remember this is an all-volunteer effort and every penny of every dollar raised goes directly to ARI, specifically for research.
- Lynda Huggins
mother of Jon, age 34


ARI ofrece linea de apoyo en Español
(ARI offers toll-free Spanish-speaking support line)
 
Con frecuencia escuchamos: "He oído algunas cosas sobre la dieta y tratamientos biomédicos pero no sabia a donde llamar. Desearía haberla encontrado antes y haber ayudado a mi hijo".
 
ARI ofrece ahora una línea telefónica gratuita bajo la dirección de Kerri Rivera, madre de Patrick - ASD de 8 años, y directora de la clinica/hospital Autism02.
Llaman reciben información, contactos y acceso a los recursos disponibles a través del Instituto de Investigación de Autismo (ARI).
 
Los padres y los cuidadores son animados a llamar para obtener más información de ARI y más allá. Todo con el objetivo de ayudar a los padres ¡Derrota al Autismo Ahora! (DAN!)
Centro de llamadas de Autismo ARI: 877-644-1184 ext. 5
 
 
Autism Seizure-Treatment Survey Continues: Parents Urged to Provide Data
Survey aims to assess treatment efficacy and possible side effects

You can help advance research by filling out a survey form designed by Prof. James Adams, Co-Chair of ARI's Scientific Advisory Panel, and Dr. Richard Frye. This very detailed form will provide a deeper understanding of the efficacy and the possible side effects of seizure treatments. 
 
Complete the Seizure Treatment Survey Online
Treatment Ratings
Our Partners
Autism Society of America 
 
Medigenesis: A New Beginning in Medicine
 
mindd
 
NAA
 
safeminds
 
Schaefer Autism Report
 
TACA
 
Treating Autism
 
Unlocking Autism
 
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The Autism Research Institute collaborates with autism groups abroad:

Defeat Autism Now! - Europe
(headquartered in Bologna, Italy)
 
Canada
 
France
France
 
 
Mexico
Mexico
 
About the ARI E-Newsletter:
This newsletter is compiled, written, and edited by ARI parents, and we welcome your input. If you have questions you would like answered, a story you would like to submit, or an idea for something you would like to see discussed or explained, please contact us.
 
Contributing Editors:
Jane Johnson
Dave Gillerman
Stephen Edelson, Ph.D. 
 
Technical Support:
Denise Fulton
 
Additional Assistance:
ARI maintains a toll-free line with information, contacts, and access to resources available through the Autism Research Institute.
English: 866.366.3361
Español: 877-644-1184,
ext 5
Join Our Mailing List
From the Director:
dr. edelsonThere is one month left of winter, and I know that many of you, especially those living on the east coast, are more than ready for a warm spring. As usual, we are busy at ARI, answering phones, letters and emails, as well as working on a large number of projects.
 
I would like to thank all of the families who emailed photos of their children to us. We have been uploading them to a digital photo frame located in our office. As mentioned last month, these photos are true inspirations to us. If you'd like, you can send one to our office at: OurPhotos@autism.com.  The size of the photo file should not exceed 2 megabytes, and it needs to be either a .jpg or a .gif file. Please note that the photo frame does not read text.
 
Dr. Valerie Paradiz, Mark Rimland, and I met with several families at a café in San Diego last weekend, and we all had a very good time--so much so that we want to do it again. The three of us will be sipping coffee at Lestat's Coffee House on Sunday, March 21, from 10:00 - 11:30 am. The address is 3343 Adams Avenue, San Diego, CA. If you live in the area, please join us for a Sunday morning chat!
 
Stay warm and dry.
 
Steve Edelson, Ph.D.
Director, Autism Research Institute
Spring Conference Discounts End Soon - Register Now for Great Rates
Demo Room, Saturday Night gala, parent mentors offer additional opportunities for information and support
 
As the ARI/Defeat Autism Now! conference in Baltimore fast approaches, we're pleased to announce our plans for a memorable event.

Special Rates are available:
Additional offers for parents and professionals:
  • Parents: Angel Funds and a few volunteer slots are still available on a first-come/first-served basis (no questions asked) - select an option when you register online. Learn More
  • Licensed Medical Professionals: volunteer in our Demo Room for free admission to Friday Nutrition, General and Science Sessions (CME included for Friday Nutrition and Sat. & Sun. Science Sessions) - slots are limited -Email Us.
Saturday Night Auction Gala at the Marriott
baltimoreThe Saturday Gala is always a favorite, providing everyone time to come together in a relaxed setting for an opportunity to connect with other parents, medical professionals, and specialists from around the world.
 
Following a sit-down dinner, we'll kick off our benefit auction with plenty of opportunities to bid on wonderful donated items - all proceeds benefit the Autism Research Institute.

Come surround yourself with people who share your experience in a light, enjoyable atmosphere. Seating is limited, so make sure to sign up early - you can reserve your seat when you register online.  
REGISTER NOW
 
Try Your Hand at the Biomedical Approach in our "Demo Room"
Taking a page from Biology 101, ARI offers its on-site "lab," teaching practical skills for taking the biomedical approach home. The "Demonstration Room" will be offered during breaks and lunchtime on Friday, Saturday, and Sunday at the Spring Conference in Baltimore. The ARI/Defeat Autism Now! Conference offers parents effective strategies for helping their children, serving as a meeting ground for clinicians using a biomedical approach and the parents who seek their aid. Still, for many of us, returning to what is in effect a biology/chemistry class presents a challenging learning curve. While lectures are essential to our understanding, the information is only as effective as the hands that are charged with putting these treatments into effect.
 
Don't miss this chance to stop by for free one-to-one tutorials by experienced healthcare professionals and experienced parents. Topics include administering B-12 injections, scheduling supplements, tracking treatment success, teaching pill swallowing, and more. The "Demo Room" is free with your paid registration. Questions? Or are you a medical professional who wants to volunteer in exchange for free admission? Email Us
 
tacaNew to the biomedical approach? Meet a parent mentor
For many families new to the autism diagnosis or starting the biomedical approach, finding a parent mentor can help ease the frustration, help to navigate the confusing "system," and help jump-start the family with ACTION for their child affected by autism. Our friends at Talk About Curing Autism have a key focus on building the autism community and helping families affected by autism. They have generously offered to connect parents, with a chance to meet a TACA Parent Mentor at the conference.

Want to meet a mentor? Sign up when you register online. REGISTER NOW

Want to see what the Conference is like?
View free lectures from past conferences online.

General Session Speakers Provide Insights, Guidance for Parents

General Sessions are for attendees who are new to the biomedical approach or who have some background knowledge; not intended for those with pertinent professional training.


Kenneth A. Bock, M.D., FAAFP, FACN, CNS
bockIntroduction to Biomedical Intervention for Autism Spectrum Disorders

Kenneth A. Bock, M.D., FAAFP, FACN, CNS, received his M.D. with Honor from the University of Rochester School of Medicine in 1979. A pioneer and leader in the field of integrative medicine for over two decades, Dr. Bock's expertise lies in bringing a comprehensive integrative medicine approach to complex medical problems, including the 4-A disorders - autism, ADHD, asthma and allergies. His healing program for the 4-A disorders is detailed in his latest book, Healing the New Childhood Epidemics: Autism, ADHD, Asthma and Allergies, which has received international acclaim.

Hear Dr. Bock: Friday General Session

Jeffrey James Bradstreet, M.D., M.D.(H)
bradstreetThe Brain Concerns in ASD Involve More than the Gut-Brain Connection: Neurotransmitters and Neuroimmune Issues in Autism Spectrum Disorders

Dr. Bradstreet graduated from the University of South Florida College of Medicine and received his residency training from Wilford Hall USAF Medical Center. He is a fellow of the American Academy of Family Physicians, a member of the American College of Toxicology, and a Professor at Southwest College of Naturopathic Medicine. He is the co-author of several original research articles on autism, including the landmark original study on mercury body burden.
Hear Dr. Bradstreet: Saturday General Session 


Kelly Dorfman, MS, LDN
dorfman
Special Diets and the Picky Eater

Kelly Dorfman is a licensed nutritionist and health program planner with over 28 years of clinical experience. She is a nationally known speaker and workshop leader who specializes in children with physical, behavioral, cognitive and developmental problems. Her book on how to think about children's health issues from a nutritional perspective will be published next year by Workman Press.

Hear Kelly Dorfman: Friday General Session



Alessio Fasano, M.D.
fasano
Gluten, Leaky Gut, and Autism: A Serendipitous Association or a Planned Design?

Dr. Fasano is Professor of Pediatrics, Medicine, and Physiology at the University of Maryland School of Medicine, and is the Director of the Mucosal Biology Research center at that institution. In recent years, Dr. Fasano's research has focused on the role of intestinal permeability in health and disease. Awarded several prizes, including the 2005 Innovator of the Year Award, the 2006 Best Academic/Industry Collaboration Award, the 2006 Entrepreneur of the Year Award, and the 2007 America's Top Doctors Award, he has published more than 170 peer-reviewed papers, and is inventor of 150 patents.
Hear Dr. Fasano: Sunday General Session


Doreen Granpeesheh, Ph.D.
doreen
The Child as a Whole: Why Biomedical and Behavioral Interventions are Both Critical to Growth and Recovery & Saturday Working Lunch Option: Pill-Swallowing Clinic 

Dr. Doreen Granpeesheh is a licensed psychologist and board certified behavior analyst, providing treatment to children with autism since 1979. In 1990, she founded The Center for Autism and Related Disorders (CARD) and through its 17 offices worldwide, she has provided diagnosis, assessment, and behavioral treatment for over 5,000 children with autism and related disorders. Dr. Granpeesheh is First Vice-Chair of the Autism Society of America's National Board of Directors, and President of the Board of Autism Care and Treatment, a charity dedicated to providing support and funding to individuals with autism.

Hear Dr. Granpeesheh: Friday & Saturday General Sessions


Bryan Jepson, M.D.
jepson
Gut Biology, Pathology, and Treatment Strategies in Patients with ASD

Dr. Jepson graduated from the University of Utah School of Medicine in 1995, and is board-certified in Emergency Medicine. After his son was diagnosed with autism in 2001, he founded the Children's Biomedical Center of Utah where he treated children with autism. In January 2006, he left his emergency medicine practice and joined the staff of Thoughtful House Center for Children in Austin, Texas. He is the author of Changing the Course of Autism: A Scientific Approach for Parents and Physicians.

Hear Dr. Jepson: Saturday General Session


Arthur Krigsman, M.D.
Krigsman
Autistic GI Disease: Important Unanswered Questions

Dr. Krigsman is a pediatrician and board-certified pediatric gastroenterologist, and an assistant professor of Pediatrics at New York University School of Medicine. His time is divided between clinical care and clinical research exploring the nature of this gastrointestinal pathology in autistic children. (A New York-based satellite practice, located in Far Rockaway, services affected children living in the Northeast.) He has evaluated and treated over 1200 children suffering from both autism and a variety of gastrointestinal problems, and has presented his findings in peer-reviewed journals, at scientific meetings, and at a Congressional hearing.
Hear Dr. Krigsman: Sunday General Session


Andrew Levinson, M.D.
levinson
The Road to Recovery: Walking with Patience, Peace, and Perseverance

Andrew Levinson, M.D. is an orthomolecular psychiatrist, functional physician, and yogi (trained "old school" by a living master, Yogi Bhajan). His approach has been featured on the Discovery Health Channel and his work in autism has been the subject of several documentaries.  Dr. Levinson received his Bachelor of Science in Psychobiology and his Medical Doctorate from the University of Miami, where he also completed his psychiatric residency.  His practice, Vitality Health and Wellness, is in Miami, FL.
Hear Dr. Levinson: Sunday General Session


Elizabeth Mumper, M.D.
Mumper
Clinical Pearls about Immune Disorders in Children with Autism

Dr. Mumper received her medical degree from the Medical College of Virginia and is board-certified in pediatrics. Prior to joining ARI she held a clinical faculty appointment at the University of Virginia for sixteen years. In 2007 Dr. Mumper founded The Rimland Center in Virginia, where she mentors clinicians, treats children with autism spectrum disorders, practices general pediatrics, and conducts clinical research.
Hear Dr. Mumper: Saturday General Session


Nancy O'Hara, M.D.
oharaBiomedical Interventions from A to Zinc

Nancy O'Hara is a board-certified pediatrician. Prior to her medical career she taught children with autism. Dr. O'Hara graduated from the University of Pennsylvania School of Medicine and earned a Master's degree in Public Health from the University of Pittsburgh. She entered general private practice in 1993, and in 1998 began her consultative, integrative practice solely for children with special needs. She is a leader in the training of clinicians, both in the US and abroad.

Hear Dr. O'Hara: Saturday General Session


Jon Pangborn, CCN, PhD
jpNutritional Therapy for Autistic Spectrum Disorder

Dr. Jon Pangborn, father of a son with autism, has been studying the biochemistry of autism for over 25 years. He is a Fellow of the American Institute of Chemists, a co-founder of Defeat Autism Now!®, and co-author of Autism: Effective Biomedical Treatments. He is the co-chair of ARI's Scientific Advisory Panel, and a consultant for Kirkman Laboratories. Dr. Pangborn is adjunct professor of nutritional biochemistry at The Union Institute, and is a Certified Clinical Nutritionist.
Hear Dr. Pangborn: Friday General Session


Dan Rossignol, M.D., FAAFP
rossignolHow to Assess and Prioritize Treatments: Using Evidence-Based Medicine to Choose Effective Treatments for Autism and ADHD

Dr. Rossignol received his Doctorate of Medicine at the Medical College of Virginia and completed his residency in family medicine at the University of Virginia. He is a physician at the International Child Development Resource Center (ICDRC) in Melbourne, FL. The father of two children with autism, ages eight and six, he has written several papers, including four on the use of hyperbaric treatment in autism, one on the use of urinary porphyrins data in autism, one on mitochondrial dysfunction in autism, and a review article on evidence-based treatments for autism.

Hear Dr. Rossignol: Sunday General Session


Lucas Ramirez, FNP
ramirezWorking Lunch Option: Pill-Swallowing Clinic & an introduction to Methyl B-12 injections & suppository administration

Lucas Ramirez, FNP-C received his Bachelor of Science in Nursing from the University of Utah, and his Masters of Science from California State University, Fresno; he is a certified Family Nurse Practitioner. He began his career in nursing in 1998, has been a registered nurse for over ten years, and joined the staff at Thoughtful House in 2007 when his youngest of four children was diagnosed with autism.
Hear Lucas Ramirez: Saturday General Session


Anju Usman, M.D.
usmanGut Biology, Pathology, and Treatment Strategies in Patients with ASD

Dr. Usman is director of True Health Medical Centre in Naperville, Illinois. Dr. Usman received her medical degree from Indiana University; she completed a residency in Family Practice at Cook County Hospital Chicago, Illinois and is board certified in Family Practice. Dr. Usman specializes in the treatment of biochemical imbalances in children with ADD and autism. She has been involved in research involving copper/zinc imbalances, metallothionein dysfunction, and metallothionein-promotion therapy.
Hear Dr. Usman: Saturday General Session
Events in the Community ...
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Spring 2010 ARI/Defeat Autism Now! Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar,
Parent & Science Sessions
Baltimore, MD | April 8-11, 2010
Fall 2010 ARI/Defeat Autism Now! Conference
Level 1 & 2 Clinician Seminars, Nutrition Seminar,
Parent & Science Sessions
Long Beach, CA | Oct. 7-10, 2010
 
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11th Annual Greater Phoenix Autism/Asperger's Conference
 
When:  
Friday & Saturday March 26-27
 
Where:
Phoenix Convention Center 
 
Keynotes:
Friday - Jed Baker, Ph.D. No More Meltdowns: Handling Challenging Behaviors and Teaching Social Skills

Saturday - Eustacia Cutler - Raising Temple Grandin: Personal and Historical Reflections

Learn more & Register Online:
Register
 
Organized by: Autism Society of Phoenix
In Collaboration With: ASU Autism/Aspergers Research Program, ARI, and many more

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TACA's Real Help Now Conference - Madison, WI
9 a.m. - 5 p.m. Saturday, Feb. 27
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Where:
Candlewood Suites
5421 Caddis Bend, Madison, WI 53711
 
Featuring:
Lauren Underwood, Ph.D.
Kyle Van Dyke, M.D.
Anju Usman, M.D.
Dan Rossignol, M.D.

Information
Register Online

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AutismOne & Generation Rescue Present: Autism Redefined
Daily, Monday, May 24 - Sunday, May 30

Where:
Autism OneWestin O'Hare Hotel
6100 North River Road, Rosemont, IL 60018
 
Highlights include:
  • More than 150 speakers; 7 days of presentations, seminars, think tanks, and professional training
  • 6 tracks offering specific answers to help children and families immediately
  • Jenny McCarthy Keynote
  • Elizabeth Birt Center for Autism Law & Advocacy Legal Training
  • American Human Rights Rally
  • Student Scholars for Autism Program
Lecture Schedule
Register Online


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