March 2009

Logo July 2008

In This Issue
Gear Up for Autism Awareness Month
Join our New ARI/Defeat Autism Now! Listserv
Join Us for an Introduction to the Defeat Autism Now! Approach April 17
An Open Letter to President Obama
Eco-Luxury Fashion Show Next Month Set to Benefit ARI

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2009 Defeat Autism Now! Conferences
Registration is Open!
 
Spring Defeat Autism Now! Conference
April 16-19
Atlanta, GA
 
Level I Clinician Seminar at Autism One
May 21 - 22, 2009
Chicago
 
Register 
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SAVE THE DATE:

Defeat Autism Now! Mini-conference
June 13 - 14, 2009
Oklahoma City, OK

Defeat Autism Now! Mini-conference
Sep. 12 - 13, 2009
St Paul, MN

Fall Defeat Autism Now! Conference
Oct 8 - 11, Dallas, TX
 
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FINANCIAL ASSISTANCE IS AVAILABLE
We want to see you at Defeat Autism Now! in Atlanta this April. To make this possible for as many parents as possible, the Defeat Autism Now! team offers a number of discounted registrations in exchange for your time at the conference. Instead of the daily rate of $130.00, volunteers will receive a reduced registration rate of $75 per day.

To register as a volunteer click the Volunteer Rate Discount Button on the Parent Registration Page. Your total will automatically calculate at the reduced rate.
Volunteer Registration
puzzle pieces

Gear Up for Autism Awareness Month 
Join our Million Dollar Puzzle Piece Campaign
 
Now's the perfect time to order your free Puzzle Piece kits and prepare to launch a campaign in your community this April. If we raise the funding necessary, ARI will see that important research is done, including the large-scale, independent study of vaccinated vs. unvaccinated children

Each colorful piece sells for just a dollar, and all proceeds go to ARI. 
 
Campaign Update:
We've sent 2,802 packets (equaling 140,100 puzzle pieces)!
48 states, Singapore & 5 locations in Canada (395 cities).
 
zoo quilt
 
Zoo Quilt Raffle Contest Winner!
Jackie Reaves from Parker, Arizona
 is the happy winner of this colorful, animal-themed handmade quilt, raffled off to support Arizona State University's Autism/Asperger's Research Program.

The raffle was launched last fall in conjunction with the annual Phoenix Zoowalk (a portion of the proceeds went to ARI). The winner was drawn at ARI's headquarters in mid-February.
 
Congratulations Jackie!
Treatment Ratings
Our Partners
Autism Society of America 
 
Generation Rescue
 
Medigenesis: A New Beginning in Medicine
 
mindd
 
NAA
 
safeminds
 
Schaefer Autism Report
 
TACA
 
Treating Autism
 
Unlocking Autism
 
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The Autism Research Institute is also collaborating with the following international autism groups:

Defeat Autism Now! - Europe
(headquartered in Bologna, Italy)
 
Canada
 
France
France
 
 
Mexico
Mexico
 
About the ARI E-Newsletter:
This newsletter is compiled, written, and edited by ARI parents, and we welcome your input. If you have questions you would like answered, a story you would like to submit, or an idea for something you would like to see discussed or explained, please contact us.
 
Contributing Editor:
Jane Johnson
 
Technical Support:
Denise Fulton
 
Additional Assistance:
ARI maintains a toll-free line with information, contacts, and access to resources available through the Autism Research Institute. Call: 866.366.3361  
Join Our Mailing List
Monthly Donation Option now Online
Giving to ARI has never been easier
 
ARI's safe, secure online donation form is a convenient way for you to support our research - and now you can pledge any amount and make payments in installments for as long as you please.
 
For example: you could pledge $120 for the year, and pay just $10 a month. 
 
Sign up to pay monthly with your credit card or by automatic withdrawal from your bank account, and we'll take care of it for you through our secure merchant account. 
 
 
SECURITY STATEMENT: Autism Research Institute uses industry-leading Secure Sockets Layer (SSL) technology to keep your personal information as secure as possible. We help to protect your information by working with partners that provide a secure and safe environment for credit card donations.
ARI respects and protects your privacy and will never sell, trade, or rent your personal information to other individuals or companies. The information that you provide is used only to complete your donation.
From the Director:
 
dr. edelsonSince 1967, the Autism Research Institute has been collecting parent ratings of the usefulness of the many interventions used to treat autism; each year we release updates of these reports about treatment effectiveness. Last month we sent out a request to caregivers to complete ARI's "Parent Ratings of Behavioral Effects of Biomedical Interventions." I am pleased to report the response was fantastic!
 
I want to thank all of you who were able to respond. I look forward to sharing the results in the weeks to come. And, if you were unable to complete the effectiveness survey for this release, don't hesitate to submit now for the next release of the 
treatment ratings: it's never too late to share this crucial information about effective treatments. 

On another note, the
Spring Defeat Autism Now! Conference is 'right around the corner.' If you're planning to attend the Atlanta event April 16-19, now's the time to make your hotel and airplane reservations. I look forward to seeing you there.
 
It's an exciting time in autism research - to keep up with emerging science in this field, please subscribe to our quarterly, hardcopy newsletter, the
Autism Research Review International (ARRI). It summarizes cutting-edge medical and educational research in language appropriate for both parents and professionals. To receive a complimentary copy, email your mailing address to: newsletter@autism.com or download a free copy (.pdf) online. All 2009 Defeat Autism Now! Conference volunteers will receive a free one-year ARRI subscription (in addition to the reduced conference rate of $75 per day).  

Spring is upon us - looking forward to new beginnings in the weeks to come.
 
Best Regards,
Steve Edelson, Ph.D.
Director, Autism Research Institute
New ARI/Defeat Autism Now! Listserv Online Now

Join the Discussion Online
 
ARI has started a parent-support listserv, intended as a forum where parents can compare notes, laugh, cry, or share recipes and resources--for anybody interested in or committed to the Defeat Autism Now! approach to treatment for autism spectrum disorders.  For more information, click here.
Some of the Best Things in Life are Free:
Check Out our Evening Workshops 
Top speakers offer insights at the Spring Conference April 16-17 
 
THURSDAY EVENING WORKSHOPS
 
buckleyIs Recovery Plausible?: The Science Behind Biomedical Treatment of Autism Spectrum Disorders (Workshop includes free CME credits for clinicians)
Julie Buckley, MD 
As first described by Leo Kanner in 1943, 'autism' included children who presented with significant behavioral problems but were also quite physically ill. We will explore the complex nature of this now epidemic illness as it manifests in today's children, and introduce the rationale behind initial management tools that can be successfully and safely implemented in a primary care setting. Comprehensive references from the medical literature will be provided. Dr. Buckley is a graduate of the University of Miami School of Medicine and the Jackson Memorial Hospital/University of Miami Pediatric Residency Training Program. She developed an interest in autism spectrum disorders when her daughter developed autism at age four. She sees patients two days each month in Atlanta, Georgia, and maintains a practice in Ponte Vedra Beach, FL, in which she and Dr. Jerry Kartzinel are partners (Pediatric Partners of Ponte Vedra). 

freedenfeldDefending Your Child From a Toxic World Stuart Freedenfeld, MD
One in six children today is diagnosed with a neurological disorder. Is there a relationship between the rising tide of ADD/ADHD, autism, anxiety, depression, eating disorders, neuro-psychiatric and developmental disorders, and the increasing levels of neurotoxic, endocrine-disrupting chemicals in our environment, our homes, and our food? The likely answer is so ominous that it cannot be ignored. As advisors, as healers, and as parents, we are required to follow the path of caution. This session will explore the field of environmental toxins and discuss how to recognize and avoid them.
Dr. Freedenfeld received his medical degree, with honors, from the College of Medicine and Dentistry of New Jersey in 1975. He completed a three-year residency in Family Practice at Hunterdon Medical Center in 1978, serving as chief resident there from 1977-1978. He became a diplomate of the Academy of Family Practice in 1978, and he is board-certified. Dr. Freedenfeld holds a position as clinical instructor with the Rutgers Medical School.
 
 
Lisa AckermanFamily-to-Family Advice at the Beginning of Your Autism Journey
Lisa Ackerman - Executive Director,
Talk About Curing Autism
As a parent, going to your first Defeat Autism Now! conference can be an overwhelming experience. Which treatments do you try first? How do you locate a doctor and a professional team to help? What are the best practices? TACA Parent Mentors have been providing advice to families for over eight years. Come to this beginners' roundtable to obtain some advice and set yourself in the right direction toward treatment and healing. In this session, Denise Fulton will join Lisa and they will review the top ten tips and tricks and take your questions. Ms. Ackerman is one of the founders of Talk About Curing Autism (TACA), a non-profit 501(c)3 organization. TACA started in 2000 with ten families in the Ackerman living room, and has now grown to almost 14,000 families across the US. TACA provides program and services at seventeen locations to families affected by autism. Lisa's passion is helping all parents provide their affected children with healthy nutrition options and medical treatments based on each child's needs. 
 
Stephen ShoreLife on, and Slightly to the Right of, the Autism Spectrum: An Inside View Towards Success for all with Autism Stephen Shore, EdD
Join Stephen in his autobiographical journey from his early nonverbal days as he relates his own life to the many challenges facing people on the autism spectrum. Approaches used by his parents and teachers, along with the ways biomedical intervention might have helped, will be discussed. Additionally, suggestions for meaningful education, as well as issues faced by adults such as relationships, self-advocacy, higher education, and employment will be explored. A short audience activity demonstrating what it feels like to struggle through challenges of communication and socialization presented by autism ends the session.  Nonverbal until four and recommended for institutionalization, Dr. Shore completed his doctoral work on matching best practice to needs of people on the autism spectrum, and is now on faculty at Adelphi University. Stephen is an internationally renowned consultant, speaker, and author on lifespan issues pertinent to education, relationships, employment, advocacy, and disclosure, as discussed in his numerous publications. Dr. Shore serves on the Interagency Autism Coordinating Committee, as well as the Board of Directors for Asperger's Association of New England, the Autism Society of America, and other autism-related organizations.
 
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FRIDAY EVENING WORKSHOPS
 
bergerThe Biological Plausibility of a Relationship Between Autism and Vaccines
David Berger, MD

Dr. Berger will present an alternative/flex vaccine schedule that better addresses the needs of families in America. His lecture is an updated version of the presentation he gave to the Florida Governor's Task Force on Autism Spectrum Disorders. As a result of this presentation, Dr. Berger was asked by the Task Force to help write legislation that - if passed - would completely change the vaccine laws of the state of Florida. Dr. David Berger is a Board-Certified Pediatrician who specializes in holistic pediatric primary care, nutritional and detoxification therapies for autism, ADHD, and related disorders, and immune dysregulation.  He graduated from The Medical College of Pennsylvania in 1994 and did his pediatric residency at the University of South Florida.  He started using holistic therapies at the Tampa General Hospital Pediatric Clinic during his residency.  In private practice since 1997, in 2005 he opened Wholistic Pediatrics in Tampa, Florida.

Clinician Roundtable: Defeat Autism Now!« Mentor Program
Julie Buckley, MD and Stu Freedenfeld, MD (pictured above)
Join other healthcare professionals, both experienced Defeat Autism Now!« doctors and first-time practitioners, in an informal roundtable discussion of current issues, practical solutions to common problems that occur within an autism/biomedical-based practice, and new ideas. Mentor programs will be discussed.  
 
Understanding, Diagnosing, and Treating Seizures and Abnormal EEGs in ASD
Dan Rossignol, MD and Jeff Bradstreet, MD
rossignolRecent events remind us all that seizure disorders are both common and serious challenges for many children with ASD. This workshop will explore the underlying mechanism, diagnostic evaluations and integrative medical management options for seizures. 
Dan Rossignol, MD, FAAFP received his Doctorate of Medicine at the Medical College of Virginia, completing his residency in family medicine at the University of Virginia.  He is a physician at the International Child Development Resource Center.  The father of two children with autism, ages seven and five, he has written several papers, including three on the use of HBOT in autism, one on the use of urinary porphyrins data in autism, and another on mitochondrial dysfunction in autism. 
bradstreetJeff Bradstreet, MD, MD(H) graduated from the University of South Florida College of Medicine and received his residency training from Wilford Hall USAF Medical Center.  He is a fellow of the American Academy of Family Physicians, a member of the American College of Toxicology, and a Professor at Southwest College of Naturopathic Medicine. He is the co-author of several original research articles on autism, including the landmark original study on mercury body-burden.

Cooking to Heal
Julie Matthews, CNC and Sueson Vess
Are you cooking for a special diet? Learn to make delicious GFCF and SCD-compliant meals, with options for accommodating the low oxalate diet and multiple food intolerances such as soy-free and egg-free. We will discuss nutrient-rich and readily digestible foods (including naturally fermented foods), and provide tips for encouraging new food introductions for picky eaters. Tasting samples will be provided.
matthews/vessJulie Matthewsis a Certified Nutrition Consultant specializing in autism spectrum disorders (as well as healthy pregnancy and babies). She has been a Defeat Autism Now!« practitioner for six years. Her work and her book, Nourishing Hope for Autism, are based on a scientific understanding of the biochemistry of ASDs and the role of nutrition to restore health in children. Julie has a private nutrition practice, teaches cooking classes, and hosts a weekly radio show in San Francisco.
Sueson Vess is a professional chef and food coach with 25 years of experience. She is the author of Special Eats: Simple, Delicious Solutions for Gluten-Free and Dairy-Free Cooking, and a contributing writer for "Living Without" magazine. She supports families adjusting to the demands of multiple food intolerances and children with special needs. Creatively adapting recipes--to suit varied dietary limitations while making GFCF meals nutritious and delicious--is her passion.
An Open Letter to President Obama

john greenMy dear President, thank you for renewing hope in our country and our people.

I write in particular about health care reform. I am an MD, in solo private practice for 34 years. My specialty is holistic/nutritional medicine, and I now devote my full attention to caring for children with autism, ADD, asthma, and related disorders. If we are to have a serious impact on health care costs and the health of our population, we must invest seriously in research to delineate the causes, prevention, and treatment of these severely increasing disorders of children. Autism alone has risen more than tenfold in the past generation; this epidemic is not due to genetics alone--it is related to epigenetic phenomena which we now understand in part, sufficient to markedly reduce the likelihood of autism in the incoming siblings of autistic children as well as future generations.
  
I focus on autism because it is a very expensive disorder, draining the funds of schools providing special education, emptying the pockets of parents paying for rehabilitative and medical therapies (mostly uncovered by health insurance), and presenting a new generation of adults who will be unable to care for themselves (more than l% of boys in Oregon are now receiving a diagnosis of autism). The majority of these children will never hold a job or pay taxes. Instead, they will require custodial care. In addition, their siblings and parents live with constant stress, leading to health problems and broken marriages in a large percentage of families.

The Autism Research Institute, of which I am an active member, has found a number of effective therapies that have brought recovery to thousands of these children previously thought to be untreatable. The recovery of one child can save millions of dollars in care costs, and return to our system all his/her creative energy, as well as tax contributions to a system in dire need. As you gather information on
restructuring the health care system, please talk to colleagues of mine such as Martha Herbert, MD and Tim Buie, MD, both at Harvard / Mass General (and perhaps more credible than I), who recognize the truth of what I am saying, and also the obstacles to changing our current system for treating autism.
 
Our most powerful tool in treating affected children is dietary modification, followed by nutritional supplementation. These interventions are not risky, nor are they expensive. But insurance companies are still unwilling to pay for any intervention related to diet and nutrition, and research into treatment is strongly biased toward drugs and genetic "predestination." If we are to adequately explore, and potentially adopt, the simple therapies so helpful in autism, we need to break this current bias and begin to look at what is already working in the offices of hundreds of doctors around the country. These doctors, like myself, are in primary care rather than in academic settings. We are facing huge numbers of affected children, and do not have funding or time to do research and attempt to get our work published in journals biased against natural therapies. 

My deepest gratitude for your commitment to do what is right; I am well aware of the almost overwhelming demands you face, and I trust that the information I provide may open new avenues for problem-solving in health care and education. 

Sincerely,
John A. Green III, MD
Events in the Community ...  
 
Treating Autism Sets 2nd International Biomedical Conference for March 12-14 in Bournemouth, UK 
 
Treating AutismThe 2009 conference will be the biggest autism-specific biomedical conference the UK has ever seen. With a host of expert speakers from across the globe -- as well as from the UK -- the Treating Autism team is pleased to announce its first six confirmed speakers - Bryan Jepson, MD, Dr. Natasha Campbell McBride, Professor Boyd Haley, Dr. T Michael Culp, and Karen DeFelice. Latest news is that Dr. Andy Wakefield will be Guest of Honour, speaking at the Treating Ourselves event on the 13th of March.

The Treating Autism Team is also proud to confirm Sandy and Tim Collins as speakers. This UK family has now officially recovered their son Eddie from autism, and they will be telling delegates how they did it.
 
 
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Shedding Light on Autism - Sidney MacDonald Baker, MD
May 15-17, 2009
Big Sur California
 
Spend a weekend at Esalen with Dr. Baker, former Director of the Gesell Institute of Human Development, co-founder of Defeat Autism Now! and co-author of Autism: Effective Biomedical Treatment.
 
Treating the Unique Child: Private Options, Public Policy and the Autism Spectrum will be an intelligent conversation leading to the ultimate question faced by parents, teachers, physicians, therapists: "Have we done everything we can for this child?"
 
This is a question Dr. Baker learned to ask in Nepal in 1959 when he apprenticed with Dr. Edgar Miller during a year off from his Yale undergraduate education. This question should concern those entrusted with public policy, where the one-size-fits-all approach is in direct conflict with the fundamental law of Nature: that each living organism is unique. Individuality has practical clinical implications, and demands a tailored approach for the individual, not a standard protocol. 
 
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Autism One 2009 - Change Has Come
Wednesday, May 20-Sunday, May 24 at the Westin O'Hare Hotel (Chicago area)


Autism OneActress Jenny McCarthy to deliver keynote address at 11:30 a.m. Saturday, May 23
 
A diagnosis of or suspicion that your child has autism is devastating. After months or years of denial it cannot be denied any longer. You are faced with the greatest question of your life - how to best help your child.

The difficult step toward finding answers is a courageous one that can be as frightening as the initial suspicion or confirming diagnosis. It means recognizing and rejecting that labyrinth of Jabberwocky, gobbledygook, circular reasoning, and non-answers parents most often hear.

It means educating yourself. It means trusting yourself. It means believing your child can get better.
 

shieldAutism One 2009 features the Defeat Autism Now! Clinician Seminar, Thursday-Friday May 21-22
Defeat Autism Now! is delighted to team up with Autism One to provide a two-day Level 1 Clinician Seminar, beginning during the Autism One pre-conference. Clinicians attending will each be provided two five-day complimentary passes (Wednesday, May 20 - Sunday, May 24) to the Autism One 2009 Conference.
The purpose of the Clinician Seminar is to teach practitioners the nuts and bolts of caring for the medical problems of children with autism.
 
Clinician Seminar at Autism One - Info and Registration
 
evo

'EvoCouture' - a celebrity-filled day featuring 'Eco-Bling,' organic decadence, champagne and philanthropy set for Denver this April - aims to support the good work of ARI. Lawrence Goldfarb, the father of a son diagnosed with autism, the CEO and Founder of LRG Capital Group, and Portfolio Manager of the LRG Capital and BayStar Capital Funds, is a major sponsor and an emcee for the show.
 
This special event in honor of Autism Awareness Month is organized by Mary Spicer, the mother of a 15-year-old with Asperger Syndrome:
 
"This event is a labor of love and my way of helping others to find solutions, answers and support. As the earth gets smaller and its resources dwindle we need to be conscious of our daily decisions and how they affect not only ourselves but also each other." 
 
Mark Your Calendars for this fabulous Eco-Chic Event set to benefit research that makes a difference!
 
DATE: Saturday, April 11
TIME: 11 a.m. to 9 p.m. - Plus after parties Saturday night
WHERE: The Peak Downtown - Denver, CO
 
Nationally and internationally acclaimed eco-conscious designers Bahar Shahpar of NY, Deborah Lindquist of LA, Linda Loudermilk of LA, Rene Geneva of TX, Gary Harvey from the UK, and more will share their couture lines in a stunning downtown setting showcasing premium and luxury products and exhibitors. Enjoy hour-long fashion shows and celebrity entertainment throughout the day with after parties immediately following.
 
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