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November 2008

Logo July 2008

In This Issue
More than 5,000 Attend Phoenix Zoowalk
Tribute: Science Director Jon Pangborn and His Wife Chris Retire
Events in the Community

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Spring 2009 Defeat Autism Now! Conference
April 16-19
Atlanta, GA
 
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SAVE THE DATE:
Defeat Autism Now! Mini-conference
June 13 - 14, 2009
Oklahoma City, OK
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Phoenix Zoowalk A Great Success  
 
zoowalk - phoenix
 
Many thanks to the over 5,000 people who attended the 4th annual Zoowalk for Autism on Oct 18, 2008 in Phoenix, Arizona, raising over $150,000 for autism research at ARI and Arizona State University.  Also, many thanks to the 100+ volunteers who helped make the Zoowalk a great success!   
Proceeds from the Phoenix Zoowalk are used to fund Autism/ Asperger's treatment research at Arizona State University, and at the Autism Research Institute (ARI).
  
See you next year! 
Defeat Autism Now! Webcasts
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Videos from past Defeat Autism Now! Conferences are available every day, year round online. This convenient video streaming service allows anyone to view conference presentations for free.
 
We rely on the generosity of our donors to make this possible, and if you enjoy the presentations, we hope you'll help support this service.

Go to Webcasts
 
Caregivers Urged to Register Loved Ones
Tissue Bank for Developmental Disorders and ARI Provide Ongoing Registration to Advance ASD Research  
 
To register: call 1-800-847-1539 (or 1-410-706-1755 from outside the continental U.S.) to request a packet or discuss any questions or concerns relating to tissue donation.
 
How to help spread the word: Contact the NICHD Tissue Bank:
University of Maryland
Department of Pediatrics
655 West Baltimore St., 13-013 BRD
Baltimore, MD. 21201-1559
Toll free 800-847-1539
Ph. 410-706-1755
Fx. 410-706-0038

E-mail NICHD
NICHD website
ARI proudly co-sponsors Age of Autism
 
"We'll follow the truth wherever it leads, and we hope you'll come along with us and, if you can manage it, donate to The Age of Autism and help us pursue this story. Fasten your seat belts - it's going to be a bumpy ride."
- Dan Olmsted, Editor, Age of Autism
 
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Age of Autism welcomes relevant submissions that are appropriate for its readers.
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Autism Society of America 
 
Generation Rescue
 
Medigenesis: A New Beginning in Medicine

 
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Unlocking Autism
About the ARI E-Newsletter:
This newsletter is compiled, written, and edited by ARI parents, and we welcome your input. If you have questions you would like answered, a story you would like to submit, or an idea for something you would like to see discussed or explained, please contact us.
 
Contributing Editor:
Jane Johnson
 
Technical Support:
Denise Fulton
 
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ARI maintains a toll-free line with information, contacts, and access to resources available through the Autism Research Institute. Call: 866.366.3361  
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From the Director:
 
edelson Much has happened since the publication of our last e-newsletter. The Autism Research Institute (ARI) sponsored its Fall 2008 Defeat Autism Now! conference in San Diego with nearly 1,300 people in attendance. I would like to thank Lyn Redwood, our new conference coordinator, for doing such a wonderful job. And, of course, a big 'thank you' to ARI's staff and volunteers.
 
We plan to post videos of all of the presentations to our website (www.autism.com) by early next month. We also sold out on our clinician seminar. In 2008, more than 700 clinicians have attended Defeat Autism Now! seminars.
 
Last weekend we had the grand opening of the Edgeware Gallery near ARI's headquarters in San Diego. More than 100 people attended this gala event; Gregory Page, recording musician and local resident, performed a concert in honor of the new gallery. See featured article below.
 
This weekend, I am abroad with Bryan Jepson, Aristo Vojdani and Lee Grossman for the Nov. 9th Defeat Autism Now! Seminar in Sicily.
 
As we head toward the holidays, ARI's staff sends its best wishes for a joyful season.
 
Regards,
Steve Edelson, Ph.D.
Director, Autism Research Institute
A Rhyme for Jon and Chris Pangborn
By Sidney MacDonald Baker 
 
pangbornsWho joins you recorded for the record and for celebration
Of Jon and Chris who've given us our education
In skills and talents we need to solve the mystery
In the biochemistry and its developmental history
And some fundamental balance that isn't right
In our children's rhythms of their day and night,
The way their D D4 receptors oscillate,
And how all the music of their bodies integrates
So that words and thoughts and the currency of all the senses
Fly in to find a metabolic landscape full of fences,
Where enzymatic fingers fail to make the changes
That we need to handle, process and to rearrange
The stuff that enters so that it can then get out
And allow our kids to express themselves and shout,
"I am in here! See me so I can see my self reflected in your eyes
And so become myself in action and win the prize
Of creativity, and loving, being loved and making well formed stools
And useful bile, and urine, and song and go to normal schools."
 
As I was growing to become the doctor I've become
Thirty years ago I was feeling pretty dumb
When it came to scoping out the chemistry of kids in whom I longed
To know not just their problems' names but what was really wrong.
 
On a blizzard weekend periodic meeting of just a few
Colleagues at a snowbound little inn up on Route 22
Jon flew in and opened up the doors he'd learned to swing
To understand the chemistry of his son Bob and bring
Creative mind to grasping options suggested by the tests
That name not just some genetic group but the step that's best
For this one kid as judged by his individual indications
Of what we now know were problems in oxidation,
Getting rid of toxic stuff, and inflammation
That affects the handling of information
At every level of the organism's being
Where tasting, touching, hearing, seeing
Feeling, thinking, talking, and rhythmic integration
Needed something more than just a medication.
 
So began a friendship that has shaped my life
With this funny guy and Christine, his wife
Who helped him move from overhead projection
To Powerpoint and toward perfection
As the embodiment of a discriminating mind
That has kept us all on the path to find
Options for our kids where science and imagination mix
To help us consider among all the many picks
Which may give hope the wings to bring hope home
And to deal effectively with complex issues
In the gut, metabolism, brain and other tissues.
 
Be you a parent, practitioner or both for whom
Your education gives you to assume
That threshing grains and chaff from data should conform
To nomenclature's branches, boxes and nosologic norms
In which the narrow assignment of a name
Is the game that allows us to fix the blame
And so to know what exactly what we can or cannot do?
 
Chris and Jon have given maps by which to move us through
That landscape - to a way of thinking and decision
That gives us the tools, the leeway, and precision
To treat each child as a unique creation.
 
So all of you out there please join in thankful celebration
Of the gifts that Chris and Jon have given DAN!
And the larger world that was always part of Bernie's Rimland's plan.
 
With love, Sidney MacDonald Baker, MD
October 2008 
 
 
Jon PangbornAbout Dr. Pangborn: 
As we announced earlier this year, Dr. Jon Pangborn (pictured, at the Fall 2008 Defeat Autism Now! conference held last month in San Diego) retired as the Defeat Autism Now! Science Director after the fall conference.
 
As father of a son with autism, he has studied the biochemistry of autism for more than a quarter of a century.  A Fellow of the American Institute of Chemists, he was a founder of Defeat Autism Now!, co-authored Autism: Effective Biomedical Treatments, is a consultant for Kirkman Laboratories, a certified clinical nutritionist, and adjunct professor of nutritional biochemistry at The Union Institute as well. He plans to continue as a consultant to ARI, a relationship that began in the early 1980s.
We are pleased that Dr. Pangborn has agreed to join Drs. Baker and McCandless in Emeritus status on the Defeat Autism Now! Executive Committee.  
San Diego Gallery's Grand Opening Celebration Features Resident Artist Mark Rimland 
 
edgewareThe weekend of November 1 marked the successful debut of Edgeware Gallery, an art gallery run by ARI.  The event was well-attended on both Saturday and Sunday by a mix of art aficionados, ARI supporters, friends and fans of featured artist Mark Rimland, and curious passersby. Several of Mark's original paintings were sold, in addition to dozens of prints and books, with the proceeds going to fund biomedical research.

Gregory Page entertained the crowd on Saturday with an acoustic performance in the courtyard adjoining the gallery, and Mark entertained his delighted fans as he explained the story and personal significance behind many of his paintings.
 
pageMark will be the resident Edgeware artist, but future exhibitions will also include up-and-coming artists from the San Diego art community. In addition, by the time of the next exhibition (tentatively slated for January 2009), Edgeware hopes to have the artwork also available for sale on its website, so art admirers will be able to support ARI from around the country.  
ARI's Million-Dollar Puzzle Update 
 
Autism Puzzle Pieces Distributed:
2,176 packets = 108,800 puzzle pieces 
 
puzzle piece quiltLocations: 43 states, Singapore, and two locations in Canada (294 cities).
We are not yet in Hawaii, Montana, Nevada, New Mexico, North Dakota, Utah, or Wyoming.
 
At last month's Defeat Autism Now! Conference, the Puzzle Piece Fundraising Team sold hundreds of puzzle pieces for research and added a raffle for a handmade Autism Puzzle Quilt. We are delighted to report the raffle raised $1,257 for the Autism Research Institute!
 
From Chairperson Lynda Huggins: Cathy Lempa, my college roommate at LSU from many years ago, kindly donated her time to make the beautiful Autism Puzzle Quilt for us. It was a labor of love. She has been such a blessing in my life - she has no personal connection to autism, but has supported my efforts in many ways over the years.  She is truly an Angel for Autism! Cathy is very proud that the money raised by the raffle at the conference is a record for her in the amount raised by one of her quilts!

underwoodQuilt Winner - Lori Underwood of Renton, WA:
I would have loved to attend the conference but it just wasn't in our budget. I've tried to help as much as possible with the Million Dollar Puzzle Challenge. I ordered and distributed puzzle packets to several local businesses, including my chiropractor's office, my coffee shop, and my brother's jewelry shop. I believe we did a great job in getting donations. When I received the email about the quilt raffle I thought it was beautiful. But knowing I've never won anything so nice, I sent my check off just to help raise more money. When I got your email this morning I had to have my husband read it because I just couldn't believe my luck. I know my beautiful 10-year-old son (pictured here, with Lori) is going to love this symbol of all the people who are trying to help cure his autism.
 
Thanks to you - and the woman who made this quilt. 
Lori Underwood
 
 
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Want to Start Your Own Puzzle Piece Campaign?
Request puzzle pieces online and the Puzzle Piece Project committee will send you packets of 50 and give you the return information as well as a poster to display with the puzzle pieces, and a letter to present to business owners. Lynda's goal: "Let's put these puzzle pieces across the entire US and support the research we all want and need."   
 
Events in the Community ... 
   
National Autism Association Conference in Fort Lauderdale, Nov. 13-16
 
nacThe National Autism Association (NAA) is pleased to present its National Autism Conference November 13-16, 2008 at the beautiful Hyatt Bonaventure Resort in Fort Lauderdale, Florida.  
 
Speakers include Congressman Dr. Dave Weldon, Dr. Jon Poling, Dr. Andrew Wakefield, Dr. Doreen Granpeesheh, Dr. Anju Usman, Dr. Boyd Haley, Dr. Jeff Bradstreet, Dr. Dan Rossignol, Dr. James Partington, and many more!  
 
Featuring a first-of-its-kind "Just For Dads" Workshop: "It's Dad Time: A Seminar on Parenting, Playing, and Coping for Fathers of Children on the Spectrum" with Dr. Jonathan Tarbox.  Parenting is the toughest job anyone can have. The hopes, fears, anxiety, exhaustion, frustration, and happiness that parenting brings are unmatched by any other human activity. In this seminar especially for fathers of children on the autism spectrum, we will discuss strategies for successful day-to-day parenting, ways to have more fun with your kids, and strategies for coping with the challenges you face. Let's face it, moms often do much of the parenting and often get the most recognition for it, but dads have a unique experience that's also challenging and stressful. This seminar is designed to address some of the things that make a dad's experience different from a mother's.
 
Dr. Jonathan Tarbox is currently the Director of Research and Development at the Center for Autism and Related Disorders. For information and registration, please visit: www.nationalautismconference.org     
 
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Treating Autism Sets 2nd International Biomedical Conference for March 12-14 in Bournemouth, UK 
 
Treating AutismThe 2009 conference will be the biggest autism-specific biomedical conference the UK has ever seen. With a host of expert speakers from across the globe -- as well as from here in the UK -- the Treating Autism team is thrilled to announce its first six confirmed speakers - Bryan Jepson MD, Dr. Natasha Campbell McBride, Professor Boyd Haley, Dr. T Michael Culp, and Karen DeFelice. Latest news is that Dr. Andy Wakefield will be Guest of Honour, and speaking at the Treating Ourselves event on the 13th March.

The Treating Autism Team is also proud to confirm Sandy and Tim Collins as speakers. This UK family has now officially recovered their son Eddie from autism, and they will be telling delegates how they did it.
 
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