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Your feedback and ideas mean a lot to us, as we endeavor to provide you with a balanced resource on the latest events, news and research that concern adults with autism spectrum conditions and those who

support them.

 


The ARI Adults with ASD E-Bulletin Editorial Staff 

Val profile
Valerie Paradiz, PhD

Editor-in-Chief

ARI Director of Special Projects

 

Erin Profile

Erin Kenney, PhD, MPH

Managing Editor

ARI Special Projects Support

 

Janine
Janine Collins, MTS, MSW

Contributing Editor

Research Associate, Center for Community Inclusion and Disability Studies, University of Maine

 


To reach our editor's desk, please email us at: AdultsEBulletin@autism.com

 

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In this issue...
The State of Nutrition in Group Homes
Autistic Global Initiative - AGI: A New ARI Program
Finding a Way for Vijay - Our Family's Search for Adult Services Nationwide
News You Can Use: ARI Conference in Atlanta features one-day track devoted to adults
Autism Recognition, Response & Risk Management Training Conference
Naturally Autistic ANCA Radio Show
Autism Works: A National Conference on Autism and Employment
Autism Speaks Publishes Transition Tool Kit
Vocational Rehabilitation Counselor Directory
Study Participants Needed for NIMH Study of Adults with ASD
 
For More Information:
Visit the Autism Research Institute's  (ARI) website:

www.autism.com


ARI maintains a toll-free line with information, contacts, and access to resources available through the Autism Research Institute.
English: 866.366.3361
Espanol: 877.644.1184 ext.5

 

Adults with ASD ARI E-Bulletin
February 15, 2011

 

From the Editor:

 

Dear Friends,


This issue of the ARI Adults with ASD E-Bulletin features an insightful article by nutritional consultant, Erika Laurion, about the state of health and diet in group homes that support adults with developmental disabilities, including autism. Ms. Laurion will be a featured panelist at ARI's upcoming spring conference, to be held in Atlanta April 28-May 1.

 

This leads me to another exciting news item I would like to share with you: this year in Atlanta, ARI will launch an all new conference track that features a full day of presentations devoted to adult services. The track is for professionals, families and agency providers who support adults on the spectrum, as well as for people with autism. Our line-up of speakers will include Dennis Debbaudt, Judy Endow, Sherry Moyer, Ruth Elaine Hane and many others. Topics will cover important issues, ranging from law enforcement to transition planning to our featured panel discussion on biomedical/medical support of adults with ASDs. For more information about the conference, visit http://www.ariconference.com/ . Members of another new program at ARI, the Autistic Global Initiative (AGI), designed the adult services conference track. You'll learn more about AGI, a self-run collaborative of adults on the spectrum who serve as in-house consultants and advisors to ARI, in the article below.

 

Finally, our third feature comes from Angela Bryson, a parent-advocate in the state of West Virginia who offers us critical insight and information, from the heart of a mom, on the difficulties of qualifying for and maintaining effective services for her adult son in her community. I hope you find this issue of the ARI Adults with ASD E-Bulletin useful in your life or work, whether you are a person with autism, a family member, or a professional who supports adults with ASD.


Valerie Paradiz, PhD
Editor-in-Chief
Director of Special Projects, ARI

The State of Nutrition in Group Homes 

 

 Erika Laurion, MS, CNS 

Erika Laurion


My daughter Mishka, who is 21 years old and has Williams Syndrome, just left home to live at Copake Village, a community in Upstate New York designed to accommodate adults with developmental disabilities. I had been planning this transition for Mishka for many years, first visiting the facility when she was only 14 years old. The emphasis of daily life at Copake is not on what service providers do and what service users receive, but simply on people living and learning together. The community is nearly self-sustaining; organic farms and gardens are tended by all who live there-disabled and nondisabled alike. In meal preparation, organic ingredients are used whenever possible, so that food is wholesome and nutritious. Everyone participates in growing and preparing the food, and everyone eats together. This is what I call real inclusion.


Unfortunately, there are not enough places like Copake Village for individuals with developmental disabilities. Copake is one of 100 Camphill communities located in over 20 countries in Europe, North America, southern Africa and India. The first Camphill community was founded in Scotland in 1939 by Dr. Karl Koenig, an Austrian pediatrician inspired by the work of philosopher and educator, Rudolf Steiner. Steiner's philosophy is also referred to as "anthroposophy." Camphill is dedicated to creating model communities that recognize the value of every individual's contribution.


I feel very fortunate that my daughter has a home in this farming community because when she was a child, I often worried that, without my supervision, she would one day have a poor diet, gain weight, become less active and eventually develop chronic diseases. She struggles enough to keep up with society, so the least I could do, I felt, was to keep her as healthy as possible with good nutrition.


My concern for her health also led me to complee a Masters degree in nutrition at Columbia

University where I focused on the links between nutrition and developmental disabilities. It is well known that obesity and inactivity are more common in people with developmental disabilities than in the general population.1,2,3 Of course, this health disparity may be due to individual and community factors, including physical challenges, cognitive limitations, use of antipsychotic medication, or inaccessibility to adaptive fitness facilities or developmentally appropriate community programs. But I believe that nutrition also plays an important role in supporting health, and it is often overlooked in the it role is plays in quality of life.


In 2004, the American Dietetic Association announced our need to improve management of the food supply for people with disabilities.4 Food systems in many group homes provide nutritionally inadequate diets.5-8 The health conditions that can result from such poor diets can lead to lower than average overall capability for self-determination and general independent functioning and performance in vocational, social, and personal life.1 Under such circumstances, the overall health cost ends up being much larger than the cost of eating healthy, wholesome food.


Currently, I work as a nutrition consultant to improve overall diet for adult residents in a number of group homes in Upstate New York and New York City. I assist these programs with an eye on recent trends in local collective farming, such as my daughter's program, and on organic models in the food market. The encouraging news is that the number of individuals with developmental disabilities living in group homes has increased dramatically in the past 20 years.9,10


However, to bring good nutrition into the non-farming settings where I consult, I first have to understand how the systems of food purchase, delivery, and preparation work. What I have observed in these group homes is that nutritional responsibility often falls to the direct-care staff, who may not have appropriate training or experience. Staff turnover at such facilities is also very high, probably because salaries are low and the work is emotionally demanding. Another challenge in these settings is the amount of paperwork required to comply with state regulations. Auditors want to see menus with calorie counts. They want proof that staff are monitoring portion control and the weight of individuals. These factors, coupled with poor shopping habits and difficulty hiring good cooks, can make preparing a wholesome meal tedious and seem unimportant. To top it all off, the food budget-around fifty dollars per adult resident per week-is by USDA standards less than the thriftiest family food budget.11 The result: service providers must do a lot with very little!


Bearing all of this in mind, my next step is to review the menus, as well as the pantries, at each facility. I have found that homes spend a lot of their allotted budget on three items: juice, snacks and meat. Juice is overrated, in my opinion, and can contain up to eight teaspoons of natural sugar in one serving. This is not added sugar, but natural fructose already in the juice. Fruits, however, are meant to be eaten whole, in their natural state, including the natural fiber and other ingredients that check sugar absorption and prevent sugar spikes. According to the American Academy of Pediatrics, drinking too much juice can contribute to obesity, the development of cavities, diarrhea, and other gastrointestinal problems.12


Between 1977 and 2002, the percentage of the American population eating three or more snacks per day increased from 11% to 42%.13 One of the newest concepts and among the best sellers, are 100-calorie packs of snacks. These are not necessarily good, even if the calorie count is low, and they are expensive. A handful of nuts, yogurt, a hard-boiled egg or a banana would be more nutritional and cheaper.


Although protein is an important part of a balanced diet, most diets in the USA include too much animal protein. Beans, legumes, seeds, nuts and whole grains all contain protein and can help supplement animal protein. Additionally, the most inexpensive foods are often plant-derived products. For example, the cheapest cuts of beef average about three to four dollars per pound, while lentils and dried beans are generally less than one dollar per pound and tofu less than two per pound.


Meals are an important time to socialize, and food itself can be very comforting. Unfortunately, individuals with disabilities often have very controlled portions, reducing the duration of meal times. Serving better quality foods allows for more bulk and fewer calories, making the social aspect of sharing meals more meaningful.


In my experience working in group homes, I have observed that staff need support and assistance in order to plan effectively and make healthy meals and snacks, while still keeping costs low. The adult services sector could benefit dramatically by implementing simple, effective, innovative models of purchase and preparation. In the future, I hope there will be more places like Copake Village, where my daughter lives, where health and wholesome food are priorities of daily life.


References:


1-Rimmer JH, Yamaki K. Obesity and intellectual disability. Ment Retard Dev Disabil Res Rev. 2006; 12: 22-7.


2- Hove O. Weight survey on adult persons with mental retardation living in the community. Res Dev Disabil. 2004; 25: 9-17.


3- De S, Small J, Baur LA. Overweight and obesity among children with developmental disabilities. J Intellect Dev Disabil. 2008;33:
43-47.


4- ADA Report: Position of the American Dietetic Association: providing nutrition services for infants, children, and adults with developmental disabilities and special health care needs. J Am Diet Assoc. 2004; 104: 97-107.


5- Bertoli S, Battezzati A, Merati G, et al. Nutritional status and dietary patterns in disabled people. Nutr Metab Cardiovasc Dis. 2006;16:100-112.


6- Bryan F, Allan T, Russell L. The move from a long-stay learning disabilities hospital to community homes: a comparison of clients' nutritional status. J Hum Nutr Diet. 2000;13:265-270.


7- Humphries K, Traci M, Seekins T. A preliminary assessment of the nutrition and food-system environment of adults with intellectual disabilities living in supported arrangements in the community. Ecol Food Nutr. 2004;43:517-532.


8- Robertson J, Emerson E, Gregory N, et al. Lifestyle related risk factors for poor health in  residential settings for people with intellectual disabilities. Res Dev Disabil. 2000;21:469-486.


9- Springer NS. From institution to foster care: impact on nutritional status. Am J Ment Defic. 1987;91:321-327.


10- Braddock, D. Aging and developmental disabilities: Demographic and policy issues  affecting American families. Mental Retardation. 1999; 37(2): 155.


11- WWW.ERS.USDA.GOV/AMBERWAVES


12- American Academy of Pediatrics. Policy Statement. The Use and Misuse of Fruit Juice in Pediatrics. Pediatrics. 2001;107(5):1210-1213.


13- Jahns L, Siega-Riz AM, Popkin BM. The increasing prevalence of snacking among US children from 1977 to 1996. Journal of Pediatrics. 2001;138(4):493-498.


 

Erika Laurion is a nutritionist for the WIC program in Columbia and Greene Counties of NY State as well as a nutritional consultant for group homes.  

 

Click for printable pdf 

The Autistic Global Initiative (AGI)

 

A New Program of ARI

 

Valerie Paradiz, PhD and Janine Collins, MSW

Photos by Ken Brewer

 

 

In November 2010, the Autism Research Institute (ARI) provided a grant to a group of adults with autism spectrum conditions so that they could attend a three-day retreat in Panguitch, Utah. Participants in the retreat came from all parts of the US and represented a broad life span of autistic experience, covering all decades in age from the 20s to the 60s. The professional experience of the participants represented many fields of work, such as education, social work, medicine, employment, fitness, and rehabilitation counseling.

 

 

 

 

 

  

AGI ScenicAt the retreat, facilitated workshops were devoted to topics involving ASD and adults, including the current state of services, research and awareness of autistic adults' experience and concerns. Time also was taken to enjoy nearby Bryce Canyon National Park. The workshops and hiking in the breath-taking canyons helped to form a cohesive group ready to work together on future initiatives.

 

 

 

 

 

 

As a result, a new initiative devoted to adults with ASD has been formed and will serve to expand awareness about adult concerns and build bridges of support between organizations, individuals and families within the ASD community. The individuals who participated in the retreat in Utah, along with others who were invited but could not attend, form the core of new group, called the Autistic Global Initiative (AGI). AGI will serve as an advisory group to ARI, and ARI will provide seed money to establish programs and initiatives that AGI will coordinate.   

 

 

As an in-house advisory group, AGI will provide advice and counsel to ARI on specific projects during 2011 and beyond. Some of the projects for 2011 include:

·        Establishment of a consulting and services group to serve ARI and other organizations with respect to services and employment for adults with ASD

·        Creation of topical information handouts for families of and professionals who serve adults with ASD

·        Collaboration to develop an adult services track for ARI conferences

·        Outreach and awareness raising of adult issues and concerns at ARI conference and events

·        Content and other support for the ARI Adults with ASD E-Bulletin

·        Advisory support for ARI's soon to be launched web site, autism.jobs

·        Monthly representation in the ARI Adult Services teleconference meetings

·        Co-authorship of a resource book that provides detailed surveys of living options for adults on the spectrum across the nation, from agricultural communities to group homes to assisted living and more.

 

 

Seed money funding from ARI, as well as funding from other outside sources, will enable AGI to launch additional initiatives such as:

·        Development and research on the Hane Face Window, a facial recognition system that is currently in development by AGI member, Ruth Elaine Hane

·        Strategic planning and support for an international fundraising campaign to cross country ski across the country of Greenland, led by AGI member and athlete Paul Nussbaum

·        Creation, implementation and research on a comprehensive adult services curriculum and professional development series.

 

Families, professionals and individuals with autism face significant challenges in the upcoming decade as there will be an exponential rise in the need for adult programs, living options, and employment across the spectrum. AGI members feel that solutions to some of these challenges can be found within the adult autistic community itself. That is why AGI is making its comprehensive adult services curriculum and professional development series a primary focus over the next three years, with an eye on supporting agencies, schools, universities, employers, group homes, day programs, the allied health professions and more. Not only do AGI members have the formal experience and education to develop these original training programs, they offer the added benefit of being people with autism themselves. Their curricula and workshops come from hard-won insight and personal trials they themselves have transformed into useful and inspiring tools and methods for the greater autism community. In 2011, AGI will produce and implement the first phase of training modules, a professional development series that teaches the philosophy and values of self-determination and person-centeredness as they apply to employment of people with adult. After 2011, AGI intends to expand trainings and develop further curricula that span living options, community integration, and health and wellness.

 

Currently in the United States, there are 1.5 million individuals with autism spectrum conditions, 80% of whom are under the age of 22. As these young people with autism age into the adult years, existing programs and services will be overwhelmed. Through its initiatives, AGI aims to play a role in the creation of infrastructure for adults with autism, in improving the quality of adult services, and in the public dialogue that shapes the mainstream view of who adults with ASD are and what they have to offer in their communities as employees and citizens.

 

 

 

AGI Group in UtahThe Autistic Global Initiative consists of 12 members who, together, represent a breadth of experience professionally, personally and autistically. Our members include: Ruth Elaine Hane, Ken Brewer, Valerie Paradiz, Janine Collins, Judy Endow, Sondra Williams, Paul Nussbaum, Zosia Zaks, Robyn Heffelfinger, Penny McMullen, Alicia Shank and Charles Joiner. To contact AGI, send us email at agi@autism.com.

 

 

 

 

 

 

 

Valerie Paradiz is Editor-in-Chief of the Adults with ASD ARI E-Bulletin.  She works as Director of Special Projects at ARI as well as developing programs and curricula for children and adults with autism spectrum and other conditions.  Janine Collins is a contributing editor to Adults with ASD ARI E-Bulletin. She works as a research associate at the Center for Community Inclusion and Disability Studies in the University of Maine's Center for Excellence in Developmental Disabilities.  Ken Brewer is a visual artist and graphic designer from Los Angeles, CA.  Valerie Paradiz, Janine Collins and Ken Brewer are founding members of AGI.  

 

 

Click for printable pdf 

 

 

 

 

 

 

 

 

 

Finding a Way for Vijay
Our Family's Search for Adult Services Nationwide
Angela Bryson


Finding services, resources and supports for an adult with autism is challenging. Parents often place high expectations on themselves because they feel responsible for the safety of their children on the spectrum and wish to protect them. As a single mother raising my 28-year-old son Vijay-who has non-verbal autism-ensuring his well-being is a daily struggle. Although his father and other family members have chosen not to be involved in his life, his two sisters, Anita and Sumeeta, have been a great source of love and support. But love of a family is not enough. My son does not have a quality of life that is equal to his neurotypical peers, even though, when Vijay was born, he was promised equal opportunity with no discrimination based on color, national origin, race or disability.


Each morning, I wake Vijay up, help him dress and assist him through his hygiene routine. His daily staff arrives and serves him breakfast, after which he attends his day program with other adults with disabilities. Part of Vijay's day treatment schedule includes volunteering at the program's office where he shreds documents and participates in community activities with his peers. When his day ends, Vijay returns home, has dinner and engages in art projects or a family activity. Then, he is given a bath, takes his medication and goes to bed. Our family would like to think Vijay enjoys his days, but knowing if that is true is difficult, since he cannot directly communicate his wants and needs. One thing we do understand is that his quality of life would be enhanced significantly if he had more choice of services available in his community.

Angela & Vijay

 

When my son was first diagnosed with autism in 1986, the diagnostic ratio was 1 in 8,000 births. Today the ratio is 1 in 110. Due to the steadily growing numbers of adolescents and young adults on the autism spectrum there is an urgent demand for appropriate and effective services. Unfortunately, the need for such services continues to far exceed the available resources, leaving a generation of people with autism and their families in financial and personal crises.


In the United States, what an individual does for a living, where he works, how he lives and what membership he maintains in his community are crucial in defining quality of life.  Too frequently, individuals with autism remain isolated at home because they do not have the supports they need to pursue a better quality of life.


When an individual is fortunate enough to have support through adult service providers, other obstacles can arise, such as a high turnover rate of inadequately trained staff. This can lead to services that look more like babysitting than provision of support to pursue one's goals in life. In our home, staff come and go so frequently I sometimes don't remember their names. In such a situation, the support from a caregiver becomes ineffectual, because all that person really does is act as a physical body to fulfill the Individual Service Plan (ISP) and nothing more. Occasionally, we do get lucky. Vijay is blessed to have one current staff person who genuinely cares abut him and who wants to see him reach his goals.
My son receives services through the Developmental Disabilities Office of West Virginia's Waiver Medicaid Program, which provides services to 440 individuals on the autism spectrum age 25 and over. The Waiver qualification assessment process for an adult on the spectrum essentially decides how services are purchased, who provides them, and the amount of time they may be provided. To identify the person's needs, West Virginia uses three assessments in the Waiver program: the Inventory for Client and Agency Planning (ICAP), the Supports Intensity Scale (SIS) and the Extraordinary Care Assessment (ECA). These assessments are completed by a trained evaluator who interviews three of the consumer's family members, the case manager and a behavioral consultant. Once this information is gathered, it is logged into an algorithm that results in a budget. This method, however, is not nuanced enough to pick up characteristics of autism spectrum disorder, and, all too often, the calculation leads to exclusion of the individual from receiving Waiver services or to limited services that do not meet real needs.


An appropriate and comprehensive qualifying evaluation for adults with autism has not been developed. The current assessments, which emphasize Vijay's deficits, don't show his strengths, and there is no resulting person-centered plan for improving his quality of life. The heart of the problem is the assessment process itself. If we had a better way of evaluating each individual's unique challenges and strengths, we would be better equipped to provide not only an appropriate amount of service and support, but more accurately matched service and support to the individual.


There is a crisis in adult autism services throughout the United States. Many funding sources have dried up. Yet, because of increased diagnostic rates of children with autism in the past ten years, we are expecting a tidal wave of adults with autism in need of services. Additionally, a lack in funding for residential facilities leads more adults with autism to live at home with their parents compared to their neurotypical peers. In 2002, the national percentage of people with autism living with their families was 75% for those age 15 to 29, and 32% for those age 30 to 44 (1).  In the state of West Virginia, I volunteer for Team Autism, a grassroots effort consisting of autism service providers and supporters whose aim is to develop a seamless system of service (2).   A committee I serve on within Team Autism is assigned specifically to investigating adult services, and, like many other states, we have discovered that there is very little support available, particularly for individuals with moderate to severe challenges.


Families with adult children on the autism spectrum have many concerns. The future is uncertain. Unlike parents of typical children, I feel that I must not get sick or have my own personal life because of the constant worry of who will protect Vijay and provide what he needs when I am no longer able to do so. We must overhaul our adult services systems, so that Vijay and other adults on the spectrum like him will receive the support they need to pursue a higher quality of life. I dream of my son graduating from college, starting a career or settling down and having a family. Together, we must create our own light at the end of the tunnel. One step in the right direction would be for Congress to reauthorize the Combating Autism Act, with an emphasis on the provision of quality services for adults throughout the United States. Then, instead of witnessing our young adults with autism flounder when they turn 21 and begin seeking adult services, we would begin to enjoy the same enthusiasm that other families do as their children embark upon their adult lives.

 

[1]Legislative Blue Ribbon Commission on Autism, A Comprehensive Service System for Adults   with Autism (September, 2006)

[2]You can find more information on our efforts at http://sites.google.com/site/wvteamautism. 

 


Angela Bryson is an advocate for her son and all West Virginia families with children on the autism spectrum who need support. She has a B.S. in Legal Studies and works as an Intake & Family Resource Coordinator for the West Virginia Autism Training Center at Marshall University.

 

 

Click for printable pdf 

News You Can Use: Current Events & Trends

 

ARI Conference in Atlanta features one-day track devoted to adults on the spectrum
 

In conjunction with the ARI Conference being held April 28-May 1, the Autistic Global Initiative (AGI), a new program sponsored by ARI, announces the first one-day conference track devoted to issues and concerns related to adults on the spectrum and those who support them. The Adults Track will be held on Sunday, May 1.  The AGI is a collaborative of individuals with autism who provide in-house advisory and consulting services to ARI, as well as to other organizations in the disability community. Make sure to stop by the AGI booth in the vendors' hall where you can meet and greet members of the collaborative and ask questions about adult services and concerns. Workshops offered in the adult services track will cover topics that include: the Hane Face Window, law enforcement and legal issues, transition and young adulthood, and a panel on medical and biomedical treatment for adults.  Speakers include Ruth Elaine Hane, Dennis Debbaudt, Judy Endow, Sherry Moyer, Charles Joiner, Sondra Williams, Janine Collins and Erika Laurion. For more information, use the links below. 

ARI Conference Information and Registration:  http://www.ariconference.com/

ARI Conference Adult Services Track:  http://ariconference.com/atlanta/adults.html

 

Autism Recognition, Response & Risk Management Training Conference 

 

 

As the rate of autism spectrum disorders has grown, law enforcement and first response professionals are more likely to come into contact with children and adults with autism. This free training provides information and best practices for interacting with children and adults who are affected by ASD. Focus is on increasing safety and enhancing officer, investigator and responder communication and response skills, as well as building community partnerships. Sponsored by the Autism Research Institute (ARI), The Autism Society of North Carolina and the North Carolina Office of State Fire Marshal, the training will be held March 4, 2011 in Charlotte, North Carolina. For more information or to register, follow the link below.
http://www.ncdoi.com/osfm/rpd/pt/Documents/Announcements/AutismConferenceBrochure.pdf

 

Autistic People, People First - Naturally Autistic ANCA Radio Show

 

In 2009, ANCA began a series of radio talk discussions that include features of Rainbowland Autism Services and the autism HWY Friendship Network for Families. Weekly shows are showcased in advance, via ANCA's YouTube account and on its Facebook group page and web site (www.naturallyautistic.com). The ANCA Foundation's mission is to support the natural development of autistic people by providing education and training to autistic individuals, their families and the community at large. ANCA values compassion, understanding and diversity and aims to help others understand autism "from the inside out." To listen to the radio shows and find other information about ANCA, use the link below.


http://www.facebook.com/l/3ecc1KcBLiXHUyVwRYihke-2_IQ;www.naturallyautistic.com

 

Autism Works:  A National Conference on Autism and Employment
 

Autism Works, a national conference on autism and employment, will be held March 3-4, 2011 in St. Louis, Missouri. The conference will bring together the disability employment services community (including vocational rehabilitation) and the autism community to learn from each other and to improve employment options for adults with autism. Topics will include: understanding the vocational rehabilitation (VR) process, what VR counselors need to know about autism, job development and workplace supports, funding possibilities for employment supports, and insights from working youth with autism. The University of Missouri's Disability Policy and Studies Office, along with Integrated Behavioral Systems, are sponsoring this national conference. Registration is $205 for two days, $125 for one day. For more information, visit http://www.dps.missouri.edu/Autism/Announcement02.html.

Autism Speaks Publishes Transition Tool Kit


The Autism Speaks Transition Tool Kit was created to serve as a guide to assist families on the journey from adolescence to adulthood. The Kit is designed to serve as a guide to help families begin to plan for adulthood.  The guiding principle in the Kit is that all individuals with autism, regardless of the level of support needed, should be able to live lives filled with purpose, dignity, choices and happiness. The Kit is divided into sections, with resources listed at the end of each section. Sections include:
Self Advocacy
Transition Planning
Community Living
Employment & Other Options
Post-Secondary Educational Opportunities
Housing
Legal Matters
Health
Internet & Technology
Getting Organized


Anyone can download the Transition Tool Kit for free!  For more information, click on the following link:
http://www.autismspeaks.org/community/family_services/transition.php

Vocational Rehabilitation Counselor Directory 
 

The Vocational Rehabilitation Service Models and Autism Spectrum Disorders project (University of Central Florida Center for Autism and Related Disabilities) is collecting information from state directors of vocational rehabilitation services about specialty counselors (or lead counselors) dealing with individuals with ASD who are interested in seeking vocational rehabilitation service supports. This directory is intended to help consumers and families make contacts with the vocational rehab system.
 

Individuals and contact information have been provided by state Vocational Rehabilitation agencies. This list is updated when new information is made available. Click on the link below to scroll through the list of contacts by state. The current directory includes contacts for the following states:  Delaware, Maryland, Michigan, Mississippi, Nebraska, New York, North Carolina, Ohio, Rhode Island, South Carolina, Tennessee, Texas, Utah, Virginia, Washington, Wisconsin, and Wyoming. Additional states and contact information will be added upon receipt from Vocational Rehabilitation administrators.


http://autism.sedl.org/index.php?option=com_content&view=article&id=77&Itemid=127

Study Participants Needed for NIMH Study of Adults with ASD


Researchers at the National Institute of Mental Health are looking for adults with Autism Spectrum Disorders to participate in our new brain imaging research study in Bethesda, Maryland.  The aim of the study is to investigate the effects of oxytocin and vasopressin on brain activity in adults with Autism Spectrum Disorders using functional magnetic resonance imaging (fMRI). Compensation will be provided.  For more information about participation in this study, please call 301-496-6807 (TTY: 1-866-411-1010) or e-mail NIMH-ASD@mail.nih.gov. National Institute of Mental Health, National Institutes of Health, Department of Health & Human Services.